Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anemia And Headaches


stephharjo

Recommended Posts

stephharjo Rookie

I have read many articles and such that say that anemia is a classic sign of celiac, but I tested negative a few years ago. Can you be gluten intolerant and have anemia as well or is anemia specific to celiac? I am definetely one of the two. I have been gluten free for a month and the only symptoms I cannot resolve is my brain fog, off balance at times, and headaches. I just went to the docs 2 days ago and they said that it was from the anemia, though none of the doctors I have seen ever told me to supplement for it. Needless to say I am now supplementing. But for the past two days I have had the worst headache ever! Has anyone else ran into this problem where you can't function due to the headaches, and if so how do you deal with them? I haven't taken anything for the pain yet and don't want to but I'm desperate. I am the main worker for my household so it is imperative that I am able to function. Thank you for any insights! Also my iron was 11.7 and my hemoglobin was 3.59.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

I have read many articles and such that say that anemia is a classic sign of celiac, but I tested negative a few years ago. Can you be gluten intolerant and have anemia as well or is anemia specific to celiac? I am definetely one of the two. I have been gluten free for a month and the only symptoms I cannot resolve is my brain fog, off balance at times, and headaches. I just went to the docs 2 days ago and they said that it was from the anemia, though none of the doctors I have seen ever told me to supplement for it. Needless to say I am now supplementing. But for the past two days I have had the worst headache ever! Has anyone else ran into this problem where you can't function due to the headaches, and if so how do you deal with them? I haven't taken anything for the pain yet and don't want to but I'm desperate. I am the main worker for my household so it is imperative that I am able to function. Thank you for any insights! Also my iron was 11.7 and my hemoglobin was 3.59.

Be careful of what is in the supplements. Often gluten is in there, and even if in trace amounts could be a big problem. Don't use any Trader Joe's supplements for instance. Made in the same facility as wheat etc. is not good enough.

What kind of anemIa? Is it iron or is it from lack of B vitamins or vitamins A and D or some combination thereof?? This is common for celiacs--esp. difficulty absorbing minerals and fat soluble vitamins. I take co-enzyme B vitamins since I was unable to metabolize normal B vitamins. The co-enzyme ones go directly into the blood stream if they are taken on an empty stomach.

Sometimes pancreatic digestive enzymes really help, especially at first.

Taking probiotics also on an empty stomach (maybe with the co-enzyme B complex?) is also a good idea.

Eating liver a couple of times a week can help too.

Nattokinase with the probiotics and B complex on empty stomach can help heal the scarred villi a lot faster.

Bea

Jenniferxgfx Contributor

My iron was like yours and I needed iv iron. Then it went back down because of undx'd celiac and now I'm supplementing and gluten-free. The brain fog from anemia is brutal. But it'll get better as you heal and absorb iron. B12 can help too.

The current headaches could be gluten withdrawal, too, but iron can take awhile to build up with damaged intestines. If a hematologist is an option, some iv iron might perk you right up.

Jenniferxgfx Contributor

Ps: welcome!

rosetapper23 Explorer

I'd like to add to the conversation that your doctor should consider testing you for a thyroid condition. Brain fog from hypo/hyperthyroid can be terrible.

stephharjo Rookie

Yolo, thank you very much for the advice. I have iron deficiency anemia.

As I read everyone's response I realize that I am going to need to find a doctor that specializes in gluten conditions. My gastro in anchorage told me "I'm glad your feeling better continue the diet and here is a prescription for IBS if you need it. Call me if your symptoms return" I now realize that this condition needs more attention and since it was self diagnosed I am sure my current gastro knows little about it. Thank you everyone for your replies and advice I will be implementing your suggestions as I continue on my journey!

Lori2 Contributor

I am the main worker for my household so it is imperative that I am able to function. Thank you for any insights! Also my iron was 11.7 and my hemoglobin was 3.59.

Aren't iron and hemoglobin readings like this dangerously low?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,538
    • Most Online (within 30 mins)
      7,748

    Josiemc
    Newest Member
    Josiemc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.