Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Best Ways To Deal With Fructose Malabsorption?


bridgetm

Recommended Posts

bridgetm Enthusiast

Last winter I started noticing a problem with fructose, especially in digesting vegetables (tomatoes, corn, sweet potatoes), apples and sugary foods/drinks and also trouble with large amounts of fat (I couldn't digest nuts or seeds and had to watch out for butter and grease). I cut back on these things and noticed improvement. After a few months I began to eat them in moderation again and over the summer started eating them even more frequently. A few weeks ago I was slammed with those symptoms again (cramping, bloating/gas; loose, greasy, sweet-smelling stool). I'm hungry constantly; no matter what or how much I eat my stomach is growling again within an hour and everything goes straight through me. My acid reflux has also come back with a vengeance. One day I can eat anything with no problem and the next I'm nauseous after a lightly buttered slice of toast.

I just moved back onto campus in an apartment with a full kitchen so it will be easier for me to cook around these problems, but I am anxious about having to deal with the symptoms while getting to class and work. I had stopped taking my supplements (C, B12, iron, calcium and double doses of D for some bone density issues) in June because of a major knee surgery (my system gets screwed up from the anesthetic and narcotics so I take only what is absolutely necessary during the first phase of recovery) but just started back on them last week.

Obviously avoiding these foods is the best course of action but does anyone have any good ideas for how to deal with the symptoms? On occasion I'll slam some Pepto and Immodium to shut it down and 'reboot' my system, but that is not a solution I can use frequently.

I've gotten nothing but good advice here in the past so any help would be greatly appreciated.

~ Bridget

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bridgetm Enthusiast

Okay, I think I pretty much answered my own question there... How about this one:

What foods do you keep at the base of your low-fructose/fructose free diet? When I'm having a lot of trouble, I go back to the simple recovery diet (i.e. white rice, gluten-free bread, bananas, etc.), but unless I'm getting over a glutening I go crazy sticking with that.

ksymonds84 Enthusiast

Hello, I am a fellow fructose malabsorber. Honestly for me the only way not to be sick is I don't eat any fruit except maybe a few red grapes or 1/2 very ripe banana and never on an empty stomach. What helped me the most was joining the Australian fructose malabsorbtion group. they are way more advanced then we are here in the states on the disorder here is the link

Open Original Shared Link

It is an email based forum and you have to request membership but a very knowledgeable and helpful group.

bridgetm Enthusiast

Hello, I am a fellow fructose malabsorber. Honestly for me the only way not to be sick is I don't eat any fruit except maybe a few red grapes or 1/2 very ripe banana and never on an empty stomach. What helped me the most was joining the Australian fructose malabsorbtion group. they are way more advanced then we are here in the states on the disorder here is the link

Open Original Shared Link

It is an email based forum and you have to request membership but a very knowledgeable and helpful group.

Thank you for the link! I'll definitely check that out. Bananas are the only fruit I can eat consistently. Some berries on occasion and the rare tomato, but bananas are a staple for me. The big problem for me at school is that beans are one of my main sources of protein (cheap, fast and easy) when I'm here but I really have to limit them and plan all my other meals around them-- If I haven't had them for a week I can eat a cup or more with no problems, but if I eat them everyday I can only handle a tablespoon or two. The mean planning is getting very frustrating.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.