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What Is A Gluten Challenge?

paperbagprincess

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paperbagprincess Rookie
paperbagprincess
Posted

I've heard two different things

1. You're on a gluten free diet, then you introduce enough gluten for a period of time so you can have testing done for Celiac Disease

2. You're eating a gluten free diet, you introduce gluten, if you feel terrible you 'failed' the gluten challenge.

Someone recommended it to me because my mum and uncle both had positive biopsies, I have the genes and my antibodies were weakly positive. I had a B12 and foliate deficiency and stomach problems. I was moving cities and was told it'd be 6 months + to get into have a biopsy, so my doctor advised I go gluten free. I did, not knowing at the time that I wouldn't get an accurate biopsy. My deficiencies improved, my stomach problems resolved and my antibodies are now normal.

I commented that it sucked not having a definitive answer, but the way I feel when I eat gluten is terrible. I'm sick for a week. I've been gluten free for 4, nearly 5 years. Someone recommended a gluten challenge, when I asked which one of the two they meant and that the way I react when I eat gluten was so bad that it's not worth, they just got angry with me!

Thanks for any help!

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beebs Enthusiast
beebs
Posted

I've heard two different things

1. You're on a gluten free diet, then you introduce enough gluten for a period of time so you can have testing done for Celiac Disease

2. You're eating a gluten free diet, you introduce gluten, if you feel terrible you 'failed' the gluten challenge.

Someone recommended it to me because my mum and uncle both had positive biopsies, I have the genes and my antibodies were weakly positive. I had a B12 and foliate deficiency and stomach problems. I was moving cities and was told it'd be 6 months + to get into have a biopsy, so my doctor advised I go gluten free. I did, not knowing at the time that I wouldn't get an accurate biopsy. My deficiencies improved, my stomach problems resolved and my antibodies are now normal.

I commented that it sucked not having a definitive answer, but the way I feel when I eat gluten is terrible. I'm sick for a week. I've been gluten free for 4, nearly 5 years. Someone recommended a gluten challenge, when I asked which one of the two they meant and that the way I react when I eat gluten was so bad that it's not worth, they just got angry with me!

Thanks for any help!

Hi again pbp - we are stalking each other :P

The first one is correct. You basically eat gluten until you do enough damage (assuming you are celiac - which you prob are with your symptoms and family history) to show up in a biopsy. Fun right!?? :D

Roda Rising Star
Roda
Posted

I wouldn't do it. You had the positive blood work and responded positive to the diet and have a family history. I wouldn't bother telling anyone you don't have the "gold standard" diagnosis (positive biopsy). Just tell them you are diagnsosed. My 6 1/2 year old is diagnosed without a biopsy. He had positive blood work and a good response to the diet. I did reintroduce gluten after he was 4 1/2 months gluten free. We made it three days and my husband said enough.

paperbagprincess Rookie
paperbagprincess
Posted
  • Author

Thanks =]

I'm not planning to! It sucks I don't know for definite, but it's not worth it. I usually just say I have Celiac Disease and leave it at that lol.

ravenwoodglass Mentor
ravenwoodglass
Posted

I've heard two different things

1. You're on a gluten free diet, then you introduce enough gluten for a period of time so you can have testing done for Celiac Disease

2. You're eating a gluten free diet, you introduce gluten, if you feel terrible you 'failed' the gluten challenge.

Both of these are gluten challenges. In your case since you have a family history of celiac, you had a positive blood test and you have responded well to the diet and have problems if you injest gluten I would consider myself diagnosed.

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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