Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Over And Over Again...

ElseB

By ElseB
in Coping with Celiac Disease

Recommended Posts

ElseB Contributor
ElseB
Posted

This past weekend my husband and I went up north to a lodge with my mother-in-law and other family. It was something my MIL invited us to, and from the beginning, I hadn't really wanted to go. Meals were included, so of course I was nervous. I was feeling a bit better after speaking with the chef the week before and it sounded like they knew what they were doing and would have lots of gluten-free food available. Everything was going well until last night....two hours after dinner the telltale stomach ache started. And then, because I wasn't feeling well today, I drank some Tazo ginger tea. Two cups of it. Then realized its not gluten free. And two days before leaving for the lodge I"d only just started feeling better after a month of being sick from the last glutening (it takes at least a month for my body to get back to normal after gluten). I'm so frustrated and annoyed with the situation since now I'm facing at least 4-6 weeks of feeling sick. I used to be so careful. I got careless and now I'm paying the price. AAAAAHHHHHH Sorry, no real point to this post. I just needed to vent.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tictax707 Apprentice
tictax707
Posted

I am so sorry you are feeling badly. I've been through the same thing before and it's really frustrating because it also takes me 4-6 weeks to recover. But you have to remember that you are human and not perfect and sometimes you are going to make mistakes. Sometimes others are going to make mistakes and it will cost you too. It TOTALLY sucks but it's something we need to sort of accept and deal with as best we can. Don't kick yourself about the past. The only thing you can do now is love yourself and take as good care of yourself as you possibly can. Take it easy for a while to let your body get better. If you can afford to baby yourself with a spa treatment or massage or something extra nice right up front, I highly recommend it. Even if you can't afford anything, find a few really nice free things to do for yourself in the next few days. You deserve it for all the times that you never thought about where you were successful in staying healthy. The stress and negativity of kicking yourself about it will just make it harder to recover. So go start babying yourself!!! :)

melikamaui Explorer
melikamaui
Posted

I'm in the same boat. My hubbie and I went out for our anniversary over the weekend and I got contaminated. We both double checked that the food I ordered was gluten-free, but something inside was telling me not to trust it. I didn't listen and ate it. I could tell before I even left the table that I was in trouble. This is my first major contamination since going gluten-free 8 months ago so I have no idea how long I'm going to feel bad. I can definitely tell that the brain fog is clearing up, but my stomach is an absolute mess. Even drinking water is unpleasant. Hearing you say you're sick for a month or more scares me. I hope you and I both get better ASAP!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,721
    • Most Online (within 30 mins)
      7,748
    Orchids
    Newest Member
    Orchids
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      What apps or tech tools help you manage celiac disease?

      By Scott Adams · Posted

      I think the best approach is to lean how to read product labels, especially the allergen warnings, and these lists might be helpful:      
    • Scott Adams
      Any bad experience with King Arthur Gluten-free bread flour

      By Scott Adams · Posted

      It looks like you are referring to this product: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Their site says: "Made with gluten-free wheat starch to give baked goods incredible taste and texture, it’s ideal for classic yeasted recipes like artisan boules, bagels, cinnamon rolls, and burger buns", and it is true that Codex quality wheat starch is gluten-free, and does make better baked goods. However, it also contains very low levels of gluten (under 20ppm), and some celiacs do react to this level, so if you are super sensitive it's best to avoid it. They also make this very similar product, which doesn't include any wheat ingredient, and is certified gluten-free: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Although labeling products in the USA as "gluten-free" that contain such wheat starch is relatively new, it has been offered in Europe for decades. You can read more about studies on it here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies.  It tests the intracellular levels of the nutrients, not blood levels.  When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests.  I have a genetic inability to process Vitamin D, B12 and antioxidants, so I am on high doses of those for life.  The rest of the initial deficiencies resolved within 6 months to a year and a good multi vitamin is sufficient to address those.  My husband has historically had high homocysteine levels and his low folate, B 12 and B6  levels are because of his MTHFR gene mutation.  Always good to get to the root cause!
    • trents
      Ectopic heartbeats - any relation to digestive issues?

      By trents · Posted

      Welcome to the forum, @Idnam! Ranitidine and Famotidine are not proton pump inhibitors. They are H2 blockers. It is true that histamine intolerance is common in the celiac population. We often don't produce enough of a histamine regulator called DAO (diamine oxidase). Not sure, but this may be due to damage to the gut lining by celiac inflammation. You might also want to research MCAS (Mast Cell Activation Syndrome) as it is often goes hand in glove with histamine intolerance and is actually the root cause. Or, at least that is my understanding. By the way, you can purchase DAO capsules but there is not clear evidence they work.
    • cristiana
      Ectopic heartbeats - any relation to digestive issues?

      By cristiana · Posted

      Very interesting, @Idnam.  When I was experiencing this problem at its worse, I found high carb meals like lots of rice or too many cookies were a trigger.
×
×
  • Create New...