Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am So Mad!


ACopsWife

Recommended Posts

ACopsWife Rookie

I am from the Quad Cities (IA/IL border) I was in Madison, WI yesterday for work and we ate at Clauddaugh Irish Pub. I ordered a Steak Sandwich, no bread and I told the waitress it was for dietary needs perscribed by the doctor. She comes back and says they can not do it because it is a new menu item and it has to be prepared the same way for 30 days. We asked if this came from the manager and she said YES. I was so upset I was almost in tears. So I got a burger plain (HOW BORING!) So after my meal I asked to speak with the manager to express my frustration. We explained we are in the restaurant business (Corporate Side) and understand the need for consistency but you need to be accomodating to guests needs. He was very non-apologetic and said they do make exceptions for special dietary needs but he didn't know that was why I couldn't have the bread! He made it seem like it was my fault. I cleary stated it was doctor perscribed.

UGH!! I just needed to vent. This has been hard for me as it is and then this...How frustrating. I think I need to get a dining card, do you know where I can get one!

Thanks

Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Here are some restaurant cards you can get:

Open Original Shared Link

I understand it is frustrating and there are encounters like that we will get.

Ordering something with no bread you have to make sure that the bread never touches what you eat because if they just take it off of the burger then it will be contaminated. It will always be a risk to eat out if the place serves gluten so just be prepared of that too.

Guest nini

Open Original Shared Link

has .pdf files of printable dining cards in both English and Spanish for free.

elonwy Enthusiast

I got my dining card from the celiac sprue association's intro packet.

Its more in depth than the other ones, and makes recommendations for what you CAN have too, which i like.

www.csaceliacs.org

hth

Elonwy

macman Rookie
I am from the Quad Cities (IA/IL border) I was in Madison, WI yesterday for work and we ate at Clauddaugh Irish Pub.  I ordered a Steak Sandwich, no bread and I told the waitress it was for dietary needs perscribed by the doctor.  She comes back and says they can not do it because it is a new menu item and it has to be prepared the same way for 30 days.  We asked if this came from the manager and she said YES.  I was so upset I was almost in tears.  So I got a burger plain (HOW BORING!)  So after my meal I asked to speak with the manager to express my frustration.  We explained we are in the restaurant business (Corporate Side) and understand the need for consistency but you need to be accomodating to guests needs.  He was very non-apologetic and said they do make exceptions for special dietary needs but he didn't know that was why I couldn't have the bread! He made it seem like it was my fault.  I cleary stated it was doctor perscribed.

UGH!! I just needed to vent.  This has been hard for me as it is and then this...How frustrating.  I think I need to get a dining card, do you know where I can get one!

Thanks

Heather

<{POST_SNAPBACK}>

I am surprised you stayed there and gave them any of your money. I had a frustrating experience at a Tony Roma's in NV. Their website say they are gluten-free. The restaurant said no-so I said bye-bye and told them I was headed to Outback.

Sorry you had that experience....

pixiegirl Enthusiast

I've read about similar experiences on these boards, I'm very thankful they have never happened to me. But I do agree with the poster that said, why did you stay? Probably you had other people in your party that wanted to stay but even so... there had to be other places that you'd all like that would be more accomodating. I make it a point to never go to places that won't work with me and to frequently visit the places that do. I'd never pass my money out to a restaurant like that.

Lastly, I think when the server told you that you should have politely said, Could you ask the manager to come to our table for a minute? However I'd be afraid in a place like that, that they would make it in the normal way and then take the bun off.

Oh well, I'm sorry you had such a rotten experience.

Susan

Canadian Karen Community Regular

I would have pointed out to the manager that they had better wake up and smell the gluten free coffee. I would have pointed out the high incidence of celiac disease in the Irish population and if they want to stay competitive in the restaurant business during the "celiac disease diagnosis revolution", they better be more accomodating......

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would have just said "It doesn't matter if YOU don't know why I can't have it - my doctor knows. As you've just stated you have a policy allowing the chef to make dietary accomodations, why are you discriminating against me in particular in applying that policy?"

  • 2 weeks later...
Dittenheim Newbie

Hi "Cop's Wife"

I had a very similiar situation last summer in Rhode Island (see the string I started "Discrimination").

I wrote a letter to the restaurant and never got a reply, so I wrote to the RI Commission of Human Rights who felt it was an important issue and instigated a suit on my behalf against the restaurant. Unfortunately, according to the ADA regulations no special accommodations or considerations need to be made for dietary restrictions, so the suit was denied.

A substitution of something else that is also on the menu and/or a willingness to leave something off the serving to protect our health is a very small concession for any restaurant to make. It's the difference between being dietary friendly and dietary hostile.

Anyway, give us the address of the restaurant you had your problem with and I will write a letter of complaint, as, I'm sure, many others will.

Restaurants that are so unaccommodating need to be publicized. There are enough of us (especially when you add in our non gluten-free family members who eat out with us) to make an impact on a restaurant's bottom line.

We need to share the replies (or lack thereof) we get back from the restaurants to see what effect our correspondence has on them. Not too many will be as dietary friendly as Outback, but some, I'm sure, will realize they need to be less dietary hostile and will change their policies - if only to allow substitutions when necessary.

Those which refuse to allow any concessions should be placed in a "Hostile Restaurants" list and we should boycott them.

- Dittenheim

PreOptMegs Explorer

It is situations like these that scare me away from eating out... I ate at Outback for the first time since my diagnosis. I was so scared of cross-contamination, I almost forgot to enjoy the food, but today I feel great and the waitress was so nice and considerate. I am not going to make it a habit, but it was nice to have a gluten-free meal outside of home....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.