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Gluten Withdraw? Worse Before Better!

watata

By watata
in Coping with Celiac Disease

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watata Apprentice
watata
Posted

I have heard that things can get worse before better. Almost like a "withdrawal" I have been gluten-free just about a week. I am having less bloating, but more cramping, and the nausea is just as bad if not worse. Just wondering if anyone else has had this experience. thanks!

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CR5442 Contributor
CR5442
Posted

I'm totally with you on this. I've been gluten free for 4 weeks and the stomach cramps are worse and it feels like I'm reacting to everything I put in my body! However, the bloating has gone down and the headaches are definitely better. Does anyone else have this experience? How long is this likely to last?!

LilCowgirl Newbie
LilCowgirl
Posted

I have been gluten-free for about 6 weeks now & I had horrible headaches & stomach cramps still...while all of my GI issues and energy got better, I finally realized that it was the soy that was giving me problems still. So I am now gluten & soy-free. It is harder to find foods that are both gluten & soy-free, but it can be done. Usually with a Celiac Disease diagnosis there are other food allergies that come along with it. My aunt had the same problem after she was diagnosed and, instead of soy like myself, she was also allergic to yeast. Keep a journal of everything you eat & the symptoms that follow. It helped me figure out what foods were still making me sick & they all contained some form of soy. Hope this helps!

kwylee Apprentice
kwylee
Posted

Yes! Gluten withdrawal is normal for some. It was for me! Please hang on if you've just been at it a couple weeks. I think by the third week I started noticing a bit of an improvement but I think everyone is different. My symptoms were mostly neurological, and by the end of that third week it was also recommended that I try removing soy from my diet as well as gluten and dairy (that advice from the wonderful collection of helpful souls on this forum). And that did it! I woke up one morning (a month or so after originally removing gluten) feeling, for the first time in years, like a gal in her 20's!!! (...which I am NOT!)

If it's been a number of weeks and you're still feeling badly, try considering any other food as the culprit (even one you've been able to eat with no problem in the past), or here's a biggie: cross-contamination - it's real and it's everywhere, but not so bad once you get the hang of it. Search the posts on that last issue for lots of info.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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