Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Did I Missed?


dreamfish

Recommended Posts

dreamfish Newbie

Hi, I've been on gluten-free diet for 1 month now. had very bad blister all over my back, butt, legs for 2 months; 2 weeks after I started gluten-free diet, it slowly healed. I would say that now, I don't have any open sores just scars from the lesion.

I've been pretty careful with gluten-free + Iodine free with food and products. Last night, went to a Chinese restaurant, brought my own soy sauce and iodine free salt for them to cook my meal. This morning, I found a huge blister on my leg where one of the old lesion use to be. as you can see on the picture, the skin over the blister is thicker so it didn't break yet. but it is still filled with fluid (i can feel it) and it's very itchy. My question is "what did I missed?" is it just because I went to a restaurant? or maybe there're still gluten left in my body and just acting up. I know this form of blister is already much better than the ones I've got before, small and easily breaks/spread. I'm just very frustrated. any thought/comment would be greatly appreciated. Thanks. -Megan

DSC04883.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Asian cuisine is always risky. I ate an Asian-fusion restaurant that has a celiac menu and had some hand swelling the next day.

It's just a tough cuisine. Good news is you can make basic dishes safely at home. Maybe wait til you've been gluten-free longer before trying again, or try a different restaurant.

rosetapper23 Explorer

I NEVER eat in a Chinese or Japanese restaurant (except PF Chang's), because I always get sick afterwards. I assume it's because they're cooking the food in a pan that had regular soy sauce in it earlier or the grill wasn't cleaned. Oftentimes, there's a language problem, and I assume that they truly don't understand how sensitive a person with celiac can be.

cyberprof Enthusiast

I NEVER eat in a Chinese or Japanese restaurant (except PF Chang's), because I always get sick afterwards. I assume it's because they're cooking the food in a pan that had regular soy sauce in it earlier or the grill wasn't cleaned. Oftentimes, there's a language problem, and I assume that they truly don't understand how sensitive a person with celiac can be.

Same here. Exactly.

dreamfish Newbie

Thanks for the replies. Since the beginning of my gluten-free diet, I've always thought that Asian restaurant would be safer choice for me, since there's always plain rice and stir fry vegetables. I agree that language is a huge problem. I had to explain to the waitress many time why I had to bring my own soy sauce and salt. also have a friend who is Cantonese to translate for me, so I thought I was safe. oh well.

My lesion this time is different. the bubble just store a massive amount of fluid inside, without bursting. does anyone knows why or what to do? it's been 2 days.

Megan

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.