Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Early Signs


Googles

Recommended Posts

Googles Community Regular

I was wondering if anyone has early signs before the D that they have been glutened (when you don't know you have eaten something with gluten). For me I have D as the first sign and don't have much warning with that. I am starting a practicum where I will be working with patients for 50 minute stretches and am worried about becoming ill during one of them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pain*in*my*gut Apprentice

I was wondering if anyone has early signs before the D that they have been glutened (when you don't know you have eaten something with gluten). For me I have D as the first sign and don't have much warning with that. I am starting a practicum where I will be working with patients for 50 minute stretches and am worried about becoming ill during one of them.

I start to get really gassy and have lots of churning going on. I know when I start to feel that way, I need to be prepared to find the nearest bathroon ASAP. I also feel sleepy, to the point I feel drunk. :(

Sometimes I get tingly in my hands and feet, sometimes my tongue tingles.

ravenwoodglass Mentor

I understand your concerns but my signs may not be your signs. I get severely depressed and used to get a migraine and then the D would hit 3 days later.

If you don't get glutened often then simply keep on as you are. If you do have accidental glutenings then do your best to avoid them by going with just whole gluten free food and bring something safe to eat at all times so you don't have to risk a caf or restaurant.

For those of us who were very ill before diagnosis and may have had accidents in public or at home with family or friends there can be a great deal of anxiety about this. Mine was so bad I became agoraphobic and almost never left my house for years. For me counseling and some antianxiety meds helped a great deal. After I could get out and about I would bring a change of clothes and Immodium whenever I went anywhere. I found I never needed them but it was a comfort to know I had them if needed.

Remind yourself also that even people without celiac can get sick from a tummy virus or whatever. If you do end up having to excuse yourself or call in sick well that is something everyone has to do at times celiac or not.

Roda Rising Star

I bloat and my abdomen gets so distended. I also have a lot of rumbling going on. Usually in 1-2 days the big D hits.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,781
    • Most Online (within 30 mins)
      7,748

    BH1951
    Newest Member
    BH1951
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ok thank you.  Me either 
    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.