Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unclear Test Results


Questions?

Recommended Posts

Questions? Newbie

Test results: Deaminated Gliadin Abs, Iga 138(ABN:H)

t-Transglutaminase(tTG)IgG 6(ABN:H)

These were the only Abnormal results! The Biopsy was neg.

Dr now has me on a month of gluten-free Diet. I have asked if it would be wise to do the Genetic Testing and he has said No! I have been told in the past that I have some sort of Auto Immune problem. I had 9 miscarriges. I have had a Neice diagnosed as a child with Celiacs. A father with bowel issues and A brother also with issues and never diagnosed. Both not living at this time. I have had lots of bowel issues that I thought was IBS. I also have problems with Reflux. I have always thought I was Lactose Intolerant. Does this sound like Celiac Disease? What should I request as far as test now?

I would appreciate any insite at all! Thanks! Concerned for my Children and Grandchildren!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Your celiac testing was positive. False negatives with biopsies are not uncommon and the same with blood tests but false positives are almost unheard of. Your doctor gave you good advice but you may have some ups and downs while you get the hang of the gluten-free lifestyle. It is a good idea to eliminate dairy for a while as well as it may be hard to digest until you heal. Read as much as you can here and ask any other questions you need to. You may be a bit emotional at first as some of us do go through withdrawl when we stop gluten.

Questions? Newbie

Your celiac testing was positive. False negatives with biopsies are not uncommon and the same with blood tests but false positives are almost unheard of. Your doctor gave you good advice but you may have some ups and downs while you get the hang of the gluten-free lifestyle. It is a good idea to eliminate dairy for a while as well as it may be hard to digest until you heal. Read as much as you can here and ask any other questions you need to. You may be a bit emotional at first as some of us do go through withdrawl when we stop gluten.

Thank you for your reply! So you feel certain on those blood test! I have not yet seen the Dr. I have seen his PA and have a dear friend who works with this Dr. I see him the 23rd. I just needed someone to say yes this is the disease and not just sensitivities! I am just like you said uncertain and uncomfortable about it all. Thank you again and I love this site for help.

Skylark Collaborator

You have what's sometimes called "latent celiac" meaning you are in the period when you have antibodies but the intestinal damage hasn't accumulated to where it shows up on biopsy. If you keep eating wheat, it's only a matter of time until your intestines are a mess!

Go onto the diet like your doctor suggests, and please hang around and ask questions. It's a big change and we're happy to help you through it.

mushroom Proficient

Yes, I agree with ravenwoodglass, with those results, your symptoms, your family history, the 9 miscarriages, I would consider that you most definitely need to be on the gluten free diet. While it is a bit overwhelming at first, once you get the hang of it it is not nearly as difficult as some people make it out to be. Inconvenient, yes, but difficult? No, I don't think so. Stay in there and you will soon get the hang of it. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.