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Really Bad

gluten free overseas

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gluten free overseas Apprentice
gluten free overseas
Posted

I think I was glutened really badly. I bought some buckwheat flour--the same flour I've bought in the past. It looked different, but I bought it anyway. I made bread and pancakes with it and am in really bad shape now.

I get immobilizing anxiety, I feel like I'm losing my mind. Along with vomiting and pain in my back too. I'm so discouraged. After about 5 hours, I'm able to breathe enough to sit in a chair and watch TV or check email.

I'm having flashbacks of being in the hospital and being in so much pain and the doctor saying he couldn't do anything else. I thought I was dying back then. I know I'm not dying now, but it feels like it.

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rosetapper23 Explorer
rosetapper23
Posted

I'm so very sorry you were "poisoned." Gluten seems to act like poison with so many of us with celiac. I wish there were something I could say to make you feel better....but I know that you just have to get through the worst of it before that can happen.

I fully understand what you're going through...and I hope you start feeling better soon.

Keep thinking, "Better times ahead...."

eatmeat4good Enthusiast
eatmeat4good
Posted

God, I hate that feeling of going downhill when you know you have been glutened. I wish I only had the gastrointestinal problems, but I have full on neurological problems...anxiety and despair set in and it seems it will never go away. It is horrifying. I know what you are going through. Sorry you have to go through it. I was lost completely when Dr.'s said they couldn't help....so I know the despair of that feeling too. Hopefully this will pass quickly and you will be ok soon. At least we do know these episodes are temporary in spite of how horrifying they can be. hang in there.

gluten free overseas Apprentice
gluten free overseas
Posted
  • Author

Thank you for the encouraging words. I helps me a lot. I woke up today, and I couldn't open my eyes--my whole face had just sagged. And I couldn't feel my hands, and I couldn't breathe very well. I get really down on myself for freaking out and like losing my mind, but you know, that does feel a little bit like you are dying. So I'm doing a bit better. It'll probably be a couple of days.

AVR1962 Collaborator
AVR1962
Posted

Try to be patient with yourself. I do understand exactly what you are saying. I get so depressed when I get glutened. My speach and balance are affected and I too feel like I am losing my mind and do crazy dumb things like leaving on burners and buying food for a planned meal twice. I sometimes wonder if I am ever going to figure it out but then when I get to feeling better I realize I have just got to be careful. Part of it is learning what works and what doesn't and forgiving ourselves for our mistakes and moving on.

Juliebove Rising Star
Juliebove
Posted

Sorry to hear that. Gluten isn't an issue for me. But I do have an egg allergy. A couple of weeks ago I stupidly ate a bite of the gluten-free bread on my daughter's sandwich, totally forgetting that the wrapper listed egg in the ingredients. And then I paid for it. It happens.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thank you for the encouraging words. I helps me a lot. I woke up today, and I couldn't open my eyes--my whole face had just sagged. And I couldn't feel my hands, and I couldn't breathe very well. I get really down on myself for freaking out and like losing my mind, but you know, that does feel a little bit like you are dying. So I'm doing a bit better. It'll probably be a couple of days.

Unless these are regular glutened symptoms for you it would be a good idea to visit the doctor or even the ER. We tend to forget that not all symptoms are gluten related and you could have something else going on. The not being able to open your eyes and sagging has me a bit concerned. Do give us an update on how you are doing.

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gluten free overseas Apprentice
gluten free overseas
Posted
  • Author

I'm doing better today! Thanks everyone. I am still lying around, but I've definitely turned a corner. Raven, is that a picture of your new dog? She is so cute.

I wonder if I ought to get counseling.

ravenwoodglass Mentor
ravenwoodglass
Posted

I'm doing better today! Thanks everyone. I am still lying around, but I've definitely turned a corner. Raven, is that a picture of your new dog? She is so cute.

I wonder if I ought to get counseling.

Glad to hear you are doing better. That picture is of my little Pooh Bear when he was a couple years old. I have got to try again to get a picture of Maggie, she is a Blue Merle Dapple Doxie and adorable also. I have trouble resizing pics and the ones I have taken so far are too big. Thats my task for today.

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    • AlwaysLearning
      Gluten related ??

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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