Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sticking To gluten-free Diet?


LittleTee

Recommended Posts

LittleTee Rookie

Hi there,

I'm self-diagnosed gluten-sensitive, possibly celiac but have not been tested. I've been on the gluten-free diet for 6 months, but have slipped up many times. Usually it's lack of knowledge (took me a while to figure out soy sauce, for example) but once in a while -- as happened last week -- I just got sick of eating gluten-free and wanted the taste of bread or pizza or something. (I think not being DXed lets some weird inner voice say "it's ok, you can eat it, you're not DXed celiac, after all").

At first I could handle it, but the last two times I've gotten quite sick. Flu-like symptoms plus bloating, D, and cramps. I've been in bed two days now this time around. I think my sensitivity is getting worse? Is that possible?

I'm finding it just difficult to stay gluten-free. Eating out is next to impossible. So, so tired of rice and pasta. I feel like the only safe things to eat are bland chicken and salad -- I'm a big foodie-type so I can't just see food-as-fuel. I used to be a baker, so it's killing me not to make bread, cookies, muffins, etc. like I used to. I've tried gluten-free breads but they taste like they are made with sawdust.

I know this is a lot of complaining, I'm just lost and sad about being on this diet right now. I guess I'm looking for some motivation or BTDT advice. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Hi there,

I'm self-diagnosed gluten-sensitive, possibly celiac but have not been tested. I've been on the gluten-free diet for 6 months, but have slipped up many times. Usually it's lack of knowledge (took me a while to figure out soy sauce, for example) but once in a while -- as happened last week -- I just got sick of eating gluten-free and wanted the taste of bread or pizza or something. (I think not being DXed lets some weird inner voice say "it's ok, you can eat it, you're not DXed celiac, after all").

At first I could handle it, but the last two times I've gotten quite sick. Flu-like symptoms plus bloating, D, and cramps. I've been in bed two days now this time around. I think my sensitivity is getting worse? Is that possible?

I'm finding it just difficult to stay gluten-free. Eating out is next to impossible. So, so tired of rice and pasta. I feel like the only safe things to eat are bland chicken and salad -- I'm a big foodie-type so I can't just see food-as-fuel. I used to be a baker, so it's killing me not to make bread, cookies, muffins, etc. like I used to. I've tried gluten-free breads but they taste like they are made with sawdust.

I know this is a lot of complaining, I'm just lost and sad about being on this diet right now. I guess I'm looking for some motivation or BTDT advice. Thanks.

Hi, Little Tee! Many people find that gluten sensitivity becomes increasingly worse the longer they are gluten free. It is common.

I'm a foodie, too, but am continuing to cook awesome gourmet gluten-free stuff. Give me nearly any recipe and I can make it awesome (except am still working on yeast breads and such). Did you know that you can easily make wonderful gluten-free cookies, cakes, muffins, etc. that do not taste gluten-free at all? Very easy to replicate. The trickier things are doughnuts, bagels, good bread...

gluten-free foods should NOT be bland. No reason to be. Why not have duck, lamb, pheasant, bison, fresh fish, seafood? Swing on over to the food and recipe section for ideas on how we make our meals shine! :D

GlutenFreeManna Rising Star

Hi there,

I'm self-diagnosed gluten-sensitive, possibly celiac but have not been tested. I've been on the gluten-free diet for 6 months, but have slipped up many times. Usually it's lack of knowledge (took me a while to figure out soy sauce, for example) but once in a while -- as happened last week -- I just got sick of eating gluten-free and wanted the taste of bread or pizza or something. (I think not being DXed lets some weird inner voice say "it's ok, you can eat it, you're not DXed celiac, after all").

At first I could handle it, but the last two times I've gotten quite sick. Flu-like symptoms plus bloating, D, and cramps. I've been in bed two days now this time around. I think my sensitivity is getting worse? Is that possible?

I'm finding it just difficult to stay gluten-free. Eating out is next to impossible. So, so tired of rice and pasta. I feel like the only safe things to eat are bland chicken and salad -- I'm a big foodie-type so I can't just see food-as-fuel. I used to be a baker, so it's killing me not to make bread, cookies, muffins, etc. like I used to. I've tried gluten-free breads but they taste like they are made with sawdust.

I know this is a lot of complaining, I'm just lost and sad about being on this diet right now. I guess I'm looking for some motivation or BTDT advice. Thanks.

As you have discovered the hard way gluten sensitivity can be just as serious as celiac. Many of us do become more sensitive after going gluten free. Also if you keep cheating you are more likely to develop other food intolerances.

Check out the "what's for dinner?" thread over in the recipe section of the board and you'll see people eat a lot of different things. Your meals don't have to be bland or boring. Go to your local library and get some gluten-free baking books and start experimenting. It may take some time and some trial and error to learn to bake gluten-free but it can be done.

LittleTee Rookie

Thank you very much for responding. I think I need to use my imagination a bit more with this diet, and maybe practice with the baking. I will check the forum for sure.

Skylark Collaborator

I've become MORE of a foodie since going gluten-free. Most of my favorite recipes work gluten-free and I certainly don't eat bland food. I make beef Bourgignon (thicken with arrowroot starch), chicken cacciatore, yankee pot roast, or I'll saute chicken with fresh herbs from the garden. Pork chops are good baked with butter and tabasco sauce. I make soy sauce chicken with gluten-free soy sauce too. Veggies don't have to be limited to salad. Didn't you cook vegetables before you went gluten-free? Try making ratatouille. I love to make soups like lentil soup, black bean soup, split pea soup, or chili. I do rice dishes like Cuban black beans and rice or jambalaya. This morning I had friends over and made a crustless spinach quiche.

Rice doesn't have to be boring. I have about five different kinds of rice in the pantry right now including brown short-grain rice, basmati rice, black "forbidden rice", brown jasmine rice, and a small package of wild rice to add to other rices for variety. I have quinoa too, and a couple different kinds of gluten-free pasta. I also eat white and sweet potatoes.

I bake bread occasionally, using a Bob's Red Mill mix. I also like the Betty Crocker mixes and the gluten-free Bisquick makes drop biscuits that I thought were really good. Mostly I make scones and I am working on a cheese puff recipe using Jules' gluten-free flour. There are hundreds of gluten-free baking recipes around the board.

T.H. Community Regular

Thank you very much for responding. I think I need to use my imagination a bit more with this diet, and maybe practice with the baking.

If you're looking for something fun to start with, just to boost your spirits? There are a few versions of gluten-free girl scouts-esque cookie recipes on line that you can google. :-) Some of them looked pretty good! Gluten free thin mints, gluten free samoas, etc...

Takala Enthusiast

You will actually have an advantage over some other people if you at least know how to bake with regular flour.... these poor kids didn't suffer thru the required home economics classes and/or they have no restaurant prep experience, and many of them can't grasp the basics and have to be taught how to cook from scratch.

The commercial gluten free breads are mostly going to taste like.... [redacted] until you either find a good decent gluten free bakery and then can get an idea of what it can taste like, or you figure out how to adapt recipes to what sorts of gluten free flour substitutes you can eat. Some people think bean flours taste nasty (this can be fixed by doing quick breads leavened with vinegar and adding spices like cumin) but then others can't taste it but find other flavors unappealing, for example, I don't like flax so I don't use it. Others just won't or can't eat eggs so they need recipes that work with out eggs, others need high protein because they are carb intolerant. It is actually fun to experiment with this, by making microwave mini breads in cups which only take a minute or two to cook. For example, if I needed 2 hot dog buns I'd make a cereal bowl shaped bread, and then cut it in half for two half moon shapes and then slice those sideways for the "bun." Anything I do is going to be at least nutritious because I am likely using almond, amaranth, bean, buckwheat, teff types of flours in the mixtures instead of just a rice/tapioca blend. Other people want to recreate the better version of the gluten free white bread.

Somebody said they should try to accept that gluten free is of itself a nourishing food type, and not try to exactly recreate the alternatives. I think it takes the tastes awhile to adapt. Many other world cuisines and cultures do not use gluten in their cooking unless it is Americanized, and by going back to those basic cuisines, such as Mexican or Asian Indian, we can find many fulfilling foods to eat. Even "Italian" cooking, which is thought of as "pasta pasta pasta tomato pizza" is Americanized, because tomato is a New World vegetable and there were no tomatoes in Europe pre 1500's. Our indigenous cuisine here before Columbus did NOT have wheat, yet we had everything that we needed - meat, potatoes, beans, grains such as corn, quinoa, amaranth, seeds, nuts, vegetables, roots. Now corn/maize is considered an African staple, and yet there was no corn for Africa, before the cross ocean invasion. In return we are discovering teff, which is Ethiopian/Kenyan and which they were making flatbreads out of for centuries. They did have sorghum(Africa) and millet(China) in the old World, and now we are using them here in America for gluten free baking as if they are exotic. Many people obsess over finding gluten-free "breads" that could resemble Wonderbread, but don't consider that freshly made flatbreads are very popular in other parts of the world, besides rice or corn porridge.

We are not successful at this until we get past the mental hangup about expecting to be fed, instead of doing the feeding.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    2. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    4. - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

    5. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.