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Hi My Name Is Gina........


jerseygirl221

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jerseygirl221 Rookie

and I have Celiac Disease! I was just diagnosed 2 weeks ago. I look forward to meeting many new people on here who can support me on my journey. I live in Burlington County NJ. I am 36 and I have 2 children-ages 9 & 11 who have not been tested yet.


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love2travel Mentor

and I have Celiac Disease! I was just diagnosed 2 weeks ago. I look forward to meeting many new people on here who can support me on my journey. I live in Burlington County NJ. I am 36 and I have 2 children-ages 9 & 11 who have not been tested yet.

Glad to have you join our elite club, Gina! Well, sort of. :huh: At first this celiac stuff can be overwhelming but eventually it becomes second nature. I was diagnosed in February and it took nearly two months to really get my mind wrapped around it. Already my numbers are negative (they were overwhelmingly positive) and I am on my way to healing! So, hang in there. It truly CAN be done! :)

Twinklestars Contributor

Hi Gina! Congratulations on your diagnosis. I'm new to the forum too. I'm not yet diagnosed, but am in the process. Regardless of my results, I'll be sticking around because I can't imagine living like this for any longer. I'm a Mum too, I have 4 children :) Looking forward to seeing you around!

Stephanie1221 Newbie

Nice to meet you both, I am new to the forum, diagnosed with Celiac since June 2011. I am a mother with three, two still at home ages 8 and 13...I have a concern right now, I have been gluten free since July however I continue to break out with rashes on my back, stomach, and leg, what else could it be? I am dairy free and sugar free nonetheless I do eat a variety of fruit daily.

pricklypear1971 Community Regular

Nice to meet you both, I am new to the forum, diagnosed with Celiac since June 2011. I am a mother with three, two still at home ages 8 and 13...I have a concern right now, I have been gluten free since July however I continue to break out with rashes on my back, stomach, and leg, what else could it be? I am dairy free and sugar free nonetheless I do eat a variety of fruit daily.

Well, if you're celiac it's probably Dermatitis herpetiformis.

There's a whole section on this board about it. In short, the Iga antibodies get in your skin and the sores/rash are an external expression of your gluten intolerance. If you want to test the rash and see if it acts like DH, go on a low-iodine diet in addition to the gluten-free diet. You can find a lot of info about a low-iodine on the thyca website (for people going through thyroid irradiation - diet advice works for everyone).

Stephanie1221 Newbie

Well, if you're celiac it's probably Dermatitis herpetiformis.

There's a whole section on this board about it. In short, the Iga antibodies get in your skin and the sores/rash are an external expression of your gluten intolerance. If you want to test the rash and see if it acts like DH, go on a low-iodine diet in addition to the gluten-free diet. You can find a lot of info about a low-iodine on the thyca website (for people going through thyroid irradiation - diet advice works for everyone).

Thank you, I will look into that....

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    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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