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Anyone Gluten-Free Before Endoscopy?


alexsami

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alexsami Contributor

if so, how long and what were your results


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shadowicewolf Proficient

yes, 4 weeks. Negative. Not worth it before endo imo.

alexsami Contributor

yes, 4 weeks. Negative. Not worth it before endo imo.

great, i have been gluten free 4 weeks as well

mmm1017 Rookie

great, i have been gluten free 4 weeks as well

I was gluten free for a little over 4 weeks when my egd was scheduled. I was told to eat as much bread as I could for the next 2 weeks and I did (whole wheat tortillas, 4-8 a day). I'm supposed to get the results tomorrow, but my GI said she saw all the classic signs of celiac (cracked river bed appearance, scalloping, etc.).

ldinap Newbie

if so, how long and what were your results

I was gluten free 4 weeks before with about 2 days in there of eating normal to see if it was truly gluten. My MD felt that if it were celiac 4 weeks with several exposures wouldn't be long enough to be false negative. My blood work and EGD were negative so they are recommending I get skin tested for an actual wheat allergy instead. If its not that, then it is a "wheat intolerance". Either way, no gluten for me, not worth it.

  • 2 weeks later...
tempus fugit Newbie

I had stopped eating gluten for three weeks prior to my endo. My blood labs showed positive. When I went to the GI for my consult about my upcoming endo they said nothing about gluten loading before the biopsy, even though I informed them I had stopped eating it. The biopsy was negative. Then going back to my primary doctor she basically said a positive is a positive when it comes to blood work and endo's may not be the "gold standard" that they use to be. I felt a little led astray by the GI now that I'm out $500 on an endo that came back negative.

nora-n Rookie

You know how fast your mouth heals if you happen to bite yourself in the chin?

Same with the gut, so three weeks off gluten can do a lot of healing so that hte damage is not visible in the microscope anymore.

But if they had incubated the sample together with gluten and looked at it, and/or measured ttg in that sample, it would have showed celiac. (I read that Dr. Greene had done that with a patient who had been gluten-free for years but the diagnosis was unsure)


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    • Scott Adams
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    • Xravith
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    • Scott Adams
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    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
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