Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Eating Gluten Make All Celiacs Sick?

alexsami

Recommended Posts

alexsami Contributor
alexsami
Posted

the reason i ask is because i went gluten free for a month...and this past week i have been eating gluten....i do NOT get horrible sick like i hear most of you do.....my stools are still somewhat suspect but they still werent great gluten free yet either.....i am having an endoscopy wednesday because of an elevated gliadin antibody.....just curious.....thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


alexsami Contributor
alexsami
Posted
  • Author

i should add that i do get bloated but not violently ill like some people

MerrillC1977 Apprentice
MerrillC1977
Posted

My understanding is that a person can have Celilac Disease without experiencing any intestinal symptoms at all (gas, bloating, diarrhea, etc)....however, if you do have Celiac Disease, eating gluten will still seriously damage your intestines even if you aren't feeling it happen. So, just because you don't have the "typical" symptoms doesn't mean you aren't hurting yourself.

pricklypear1971 Community Regular
pricklypear1971
Posted

No. Not everyone gets sick at their stomach.

Some have very mild stomach issues, or no issues.

Some develop reflux over long periods of exposure.

Some get migraines, etc., vague symptoms re: other systems.

The list goes on. The longer you eat it, the more intense your symptoms may become.

alexsami Contributor
alexsami
Posted
  • Author

No. Not everyone gets sick at their stomach.

Some have very mild stomach issues, or no issues.

Some develop reflux over long periods of exposure.

Some get migraines, etc., vague symptoms re: other systems.

The list goes on. The longer you eat it, the more intense your symptoms may become.

that makes sense....thanks

love2travel Mentor
love2travel
Posted

When I ate gluten for 3.5 months on my gluten challenge I did not get sick even once. Now that I have been strictly gluten-free six months I do not care to find out whether I will get sick or not! Has not happened since I went gluten-free, either. The thought of all that damage to my villi (they were totally flat according to my GI doctor) keeps me on the right path.

The past month I did get quite sick but linked it to dairy which I have now eliminated as well.

AVR1962 Collaborator
AVR1962
Posted

the reason i ask is because i went gluten free for a month...and this past week i have been eating gluten....i do NOT get horrible sick like i hear most of you do.....my stools are still somewhat suspect but they still werent great gluten free yet either.....i am having an endoscopy wednesday because of an elevated gliadin antibody.....just curious.....thanks

My issues are not so much digestive. I get very dizzy, my speach is effected, my memory gets bad, I may even have blurred vision.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Librariangirl Newbie
Librariangirl
Posted

I have no symptoms except for my DH.

MerrillC1977 Apprentice
MerrillC1977
Posted

I have no symptoms except for my DH.

So, if a person is actually diagnosed with Celiac, but never had any intestinal symptoms....can that person assume that as long as they don't ahve intestinal symptoms, that their intestines are not being damaged (i.e. they are not on the way to intestinal cancer unless/until they have intestinal symptoms)?

Can a diagnosed Celiac person who never gets intestinal symptoms safely get away with eating gluten once in a while? (I understand that other symptoms might be triggered in this process.)

Bubba's Mom Enthusiast
Bubba's Mom
Posted

If you are a diagnosed Celiac you can NEVER have gluten! The damage will still happen. You may not notice it until you get to the point that you have malabsoption and start to get various symptoms that can come from that.

The Lymphoma can occur too without tummy symptoms.

I've had an intestinal cancer(not Lymphoma). I had no symptoms for quite a while. With any cancer it's common to have no noticeable symptoms until it has progressed to a very serious stage.

PLEASE don't ever take the chance that "it might not happen to you..just a little gluten won't hurt."

love2travel Mentor
love2travel
Posted

So, if a person is actually diagnosed with Celiac, but never had any intestinal symptoms....can that person assume that as long as they don't ahve intestinal symptoms, that their intestines are not being damaged (i.e. they are not on the way to intestinal cancer unless/until they have intestinal symptoms)?

Can a diagnosed Celiac person who never gets intestinal symptoms safely get away with eating gluten once in a while? (I understand that other symptoms might be triggered in this process.)

Sadly, no. I did not have any GI symptoms but my biopsies showed severe damage to my villi - they were totally flattened. I was told I have to be all the more vigilent for that reason.

Don't forget that once you are off gluten for awhile many people seem to become more and more sensitive if accidentally glutened so we could still get hit hard in the future. We can also have other food intolerances occur suddenly; I was off gluten five months before I strongly reacted to dairy.

MerrillC1977 Apprentice
MerrillC1977
Posted

Thank you, Bubba's Mom and love2travel, for those answers.

Here's another question -- once going OFF gluten, do the previously damaged villi recover?

love2travel Mentor
love2travel
Posted

Thank you, Bubba's Mom and love2travel, for those answers.

Here's another question -- once going OFF gluten, do the previously damaged villi recover?

You're welcome. When I first joined this board I was SO grateful for all the help I received - the amount of information here is incredible.

Your damaged villi certainly can recover; in fact, they can in the vast majority of people. I was told it can take between 2-5 years for that to happen. Of course recovery will be quicker in some and longer in others. I had bloodwork done recently; initially six months ago the values were WAY off the chart positive and now they are negative!! As I do not feel ill from eating gluten I requested bloodwork to ensure I was not getting any accidentally. So, it shows that I am starting to heal.

Don't forget that although our villi heal, we can never, ever eat gluten again because damage to the villi can happen quickly (though likely cumulatively but it does not take much).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.