Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Horrible Insomnia Rant (With A Question)


HopefulMama23

Recommended Posts

love2travel Mentor

I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth.

We'll see what the new endo thinks.

Hmmm....interesting. I see my doctor next week so will ask him about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HopefulMama23 Explorer

Am curious too which homeopathics you tried for insomnia. There are a variety given for different causes of insomnia. As I recall I remember one that is good in cases of "fear of never falling asleep." Besides caffeine, mint products will make homeopathics not work--and probably other strong herbs as well.

Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0

I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.

jerseyangel Proficient

I found a homeopathic remedy called "Calming" by Heel. I use it 3 or 4 times a day and have been sleeping better. I was having terrible insomnia, sometimes not sleeping at all or for just a couple of hours. This works better than "Calms Forte" for me and is completely gluten-free.

pricklypear1971 Community Regular

Do you need a specific test for Hashimoto's or is the TSH bloodwork the required indicator? Had my physical and bloodwork done in August and was told my thyroid was "normal".

It's specific, called TPO.

pricklypear1971 Community Regular

I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth.

We'll see what the new endo thinks.

Uhm, you need a specific test for this called TPO. I've never heard of it being diagnosed symptomatically. Perhaps it can be, but never heard of it.

love2travel Mentor

It's specific, called TPO.

Thank you. I will request it. I would do anything to conquer this insomnia once and for all. Perhaps this is it...

Takala Enthusiast

I sleep when I am tired, instead of trying to sleep whenever everybody else is. Heck, the **** dogs sleep all day, snore snore snore. The cat is asleep now. I've seen the horses go down for naps mid morning to mid afternoon after they were up grazing at night, why fight the trend ? My spouse has to get up really early sometimes to talk to people in different time zones, then he's down for the count by 4pm and sleepy. It's a hundred degrees out now in the sun, I'd be out like a lightbulb if it were not for the A/C ; ) Yet the myth persists we should get up at 6 am fresh and perky. pffffffffffffffffffffffttttttttttttttttt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0

I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.

Do let me know how it goes. I agree, homeopathy is both very helpful as well as interesting. Just got a book on it that is helping me a lot.

Meanwhile I know what its like not being able to get to sleep. Have had that problem for years. Everything seemed to conspire to create it--the gluten and salicylate sensitivity as well as old injuries to my sacrum and L- 5 vertebrae with sciatica at night not to speak of too much drama going on in my life as an infant.

So like the last responder I eventually learned to just go to bed really late and get up late and do what I do in the wee hours of the morning and call it "normal".

But now I am trying to break the cycle. I do think that hormones are a factor, as well as habits, fears etc. pure and simple. Or should I say, not so simple??

At least the homeopathics are making it so my body isn't jerking around at night when I lie down. A huge improvement. Hypericum perforatum thus is helping a lot... Next I also want to try out some cell salts since I am very low in minerals even though I have been taking a ton of them for years.

Skylark Collaborator

Skylark, you're right. I see a new endo Monday and I'm prepared to push. Hard.

Good luck! I know how awful the insomnia is because my thyroid went a little bonkers this spring.

There are actually three autoimmune thyroid antibodies. TPO is the most common, but you should also be tested for anti-thyroglobulin, and possibly TSI. TSI is the Graves' disease test.

Also, "normal" for TSH should be between 0.5 and 2.5. It used to be that below 5.0 was considered normal, and some ignorant doctors still use the old range but most people with TSH at 5.0 feel pretty sick.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.