Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin Biopsy Results Today

Flasaltwater

By Flasaltwater
in Dermatitis Herpetiformis

Recommended Posts

Flasaltwater Apprentice
Flasaltwater
Posted

I was diagnosed with prurigo nodularis. She did tell me to continue to stay off of Gluten and wheat and any other associated grains since I had already been off for 6 weeks and was feeling better. I go for bloodwork in the morning to check my B12 and iron levels and thyroid. I wanted to post this since I do not believe I have read it anywhere here but I found it on Wiki-pedea and thought maybe others that could not identify their rash as blistery understood it does not have to be in order to be related to Celiacs

"Prurigo nodularis. Prurigo nodularis has been identified with coeliac diease."

Found that line quit interesting. She did say she felt as though I may be Gluten intolerant since this rash is common with this intolerance but that was before I found that line.

Im taking Hydroxyzine and a Corticosteroid cream for itch. I will post with future findings

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

It's also associated with DH.

Open Original Shared Link

If you try a low-iodine diet and it works it would be a strange coincidence.

Mast cells and neutrophils are seen in higher-than-normal levels in prurigo nodularis, so the cromolyn cream recipe on the chronic urticaria site may help.

Flasaltwater Apprentice
Flasaltwater
Posted
  • Author

It's also associated with DH.

Open Original Shared Link

If you try a low-iodine diet and it works it would be a strange coincidence.

Thank you for posting this. I bookmarked it so I could read more. Well I thought because she did not say DH I would help myself to some rock shrimp at lunch.I've noticed some slight swelling in my bumps since then and a they are starting to itch some this evening. That shrimp was good but not worth aggravating my rash. Which I have almost under control. My husband wants me to go for a 2nd opinion to get the skin biopsy done correctly. They did a punch biopsy on the lesion not beside it. anyway it did come back positive for PN. Once I get me labs back I am seeing another Dr. Well see what happens, in the meantime I'll stay gluten free it keeps my digestive system in check.

pricklypear1971 Community Regular
pricklypear1971
Posted

Thank you for posting this. I bookmarked it so I could read more. Well I thought because she did not say DH I would help myself to some rock shrimp at lunch.I've noticed some slight swelling in my bumps since then and a they are starting to itch some this evening. That shrimp was good but not worth aggravating my rash. Which I have almost under control. My husband wants me to go for a 2nd opinion to get the skin biopsy done correctly. They did a punch biopsy on the lesion not beside it. anyway it did come back positive for PN. Once I get me labs back I am seeing another Dr. Well see what happens, in the meantime I'll stay gluten free it keeps my digestive system in check.

I would seriously keep up the low iodine diet along with gluten-free and take photos to show your second opinion doc. And document what happens when you eat iodine, gluten.

It may very well be Prurigo - caused by DH.

Also, try that cromolyn cream. If mast cells are involved it may bring relief.

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748
    Cwbtex
    Newest Member
    Cwbtex
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.