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Gluten Is Still Sneaking In On Me

Roda

By Roda
in Coping with Celiac Disease

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Roda Rising Star
Roda
Posted
  • Author

Rhoda - sorry to see you have been struggling with cc or fat issues. You were kind enough to encourage me when I was miserable about fat digestion issues last week. As you suggested, digestive enzymes seem to work a treat with gas reducing by maybe 80 or 90% and I've been able to eat some salmon and a little non-dairy chocolate without suffering any further problems so far, so thank you for your help.

I looked into gallbladder problems and I am not convinced that it is linked to the fat issue. It seems more likely to be problems with its neighbour, the pancreas. I am not sure there is any proven link between pancreatitis and celiac, but if there is still inflammation/villi damage in the gut, then it seems possible that the pancreas might also be affected. Inflammation in the pancreas can also have an auto-immune basis. Treatment for mild pancreatitis is just to avoid alcohol, eat a low-fat diet and take digestive enzymes when needed. Autoimmune pancreatitis apparently responds well to steriod treatment. If you continue to have problems with this and you are sure it is not gluten cc, perhaps it is something to think about? I am going to mention it to doc at my follow up appt next week.

Thanks, that means a lot. I do still have creon and I have to be careful and not take to much. The symptoms right now are very subtle. My husband has been sick with GI virus, URI and now sinus infection so there is sickness going around. I may eventually pay a visit back to the GI to at least get my blood drawn again. I'm curious to know what my levels are since last year.

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Gemini Experienced
Gemini
Posted

Rhoda - sorry to see you have been struggling with cc or fat issues. You were kind enough to encourage me when I was miserable about fat digestion issues last week. As you suggested, digestive enzymes seem to work a treat with gas reducing by maybe 80 or 90% and I've been able to eat some salmon and a little non-dairy chocolate without suffering any further problems so far, so thank you for your help.

I looked into gallbladder problems and I am not convinced that it is linked to the fat issue. It seems more likely to be problems with its neighbour, the pancreas. I am not sure there is any proven link between pancreatitis and celiac, but if there is still inflammation/villi damage in the gut, then it seems possible that the pancreas might also be affected. Inflammation in the pancreas can also have an auto-immune basis. Treatment for mild pancreatitis is just to avoid alcohol, eat a low-fat diet and take digestive enzymes when needed. Autoimmune pancreatitis apparently responds well to steriod treatment. If you continue to have problems with this and you are sure it is not gluten cc, perhaps it is something to think about? I am going to mention it to doc at my follow up appt next week.

The small intestine sends out messenger enzymes to the pancreas during normal digestion, calling for whatever enzymes are needed to break down food. When villi become atrophied, these messengers lose their ability to send out the message and pancreatic enzymes are not released. Over time, portions of the pancreas can atrophy because they are not active. This becomes pancreatic insufficiency.

This can be the cause of trouble with fat digestion. It can give you the same symptoms as a gluten hit. Taking enzymes in pill form can help as some people do not regain their ability to digest fats well. I am one of them.

UKGail Rookie
UKGail
Posted

Gemini - that's really helpful. It makes a lot of sense, as I have been trying really hard to avoid gluten. I am sorry to hear that the damage to the pancreas can become permanent. Thank you for sharing.

dilettantesteph Collaborator
dilettantesteph
Posted

Canola oil. I've never thought to check for CC in oil. Something to consider.

Canola can be grown in rotation with wheat:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

That might be responsible for enough cc to bother a super sensitive.

Gemini Experienced
Gemini
Posted

Gemini - that's really helpful. It makes a lot of sense, as I have been trying really hard to avoid gluten. I am sorry to hear that the damage to the pancreas can become permanent. Thank you for sharing.

Everyone in life will sustain some level of malfunction in their bodies and, for the most part, it will not be a big problem. People sweat this too much.

There are much bigger problems you can have that I wouldn't want. I just follow a lower fat diet than most and make sure I don't eat what will not agree with me...that's not so hard to do. Unless my pancreas stops functioning all together, I don't worry about it. I have made a remarkable recovery considering I nearly died from this disease so I am happy with the way things are. Although I cannot eat lamb anymore as it's too high in fat and I miss that sometimes. :(

Lori2 Contributor
Lori2
Posted

I'm going to guess CC from the factory. Hubby is really good when it comes to the food. Other than not eating them he and I have not done anything different. I'm hoping it isn't all the brands. My favorite is the On The Border and we like to crush them up, mix them with taco seasoning, coat chicken strips with them, and bake them in the oven with butter drizzled over them. Everyone has been wanting these, but I have been very hesitant.

Did you check the taco seasoning. As I recall, that is one of the things I gave away when I cleaned out my gluten-containing products.

Roda Rising Star
Roda
Posted
  • Author

Did you check the taco seasoning. As I recall, that is one of the things I gave away when I cleaned out my gluten-containing products.

Taco seasoning is fine. I was having this problem without consuming it. I have been feeling pretty good lately.

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    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

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    • knitty kitty
      My only proof

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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