Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Here With Jumpy Eyes?


AVR1962

Recommended Posts

AVR1962 Collaborator

There's a few of my symptoms that have not cleared up from supplementation and changed diet, on of them being the jumpy eyesight. Anyone have this, and what helps it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

;) Ok, maybe you can define jumpy eyes...

I'm thinking if it's sorta wonky eyesight, I'm in. Some days my eyes seem to cross...not really of course but I'm not sure if my astigmatism becomes an issue or what. Other days, things are fine. It seems worse when I'm tired or if I have grumpy sinuses. It sorta like my eyes won't work together ???

allergyprone Contributor

I get that too, where i'll be sitting in class and it seems like the board in jumpping up and down but really fast, i usually get this if i eat a lot of sugar and/ or i'm tired I haven't found anything that helps and my doctor just looked at me like i was crazy. if someone out there has a solution it would be much appreciated because looking at a board that wont stay still gets on my nerves

AVR1962 Collaborator

I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking at lines and have actually let one student go because I could not keep up with all the notations in the music. I have made so many simple mistakes identifying the wrong notes only to realize my students are correct. Then I feel terrible for correting them when all along they were right but it's because my eyes are doing crazy things.

bartfull Rising Star

I believe the jumpy eyes are one of the symptoms of gluten ataxia. I have a friend who shows all of the symptoms of this, from difficulty walking, slurred speech, and jumpy eyes. He has been to see several doctors and has had multiple MRI's, CT scans, and neurological tests. They say they don't know WHAT it is. When I discovered what I did about the gluten ataxia and showed him, he went into denial and refuses to go back to the doctor to be tested. He's risking permanent damage, and quite literally risking his very life. :(

Here is a brief excerpt of an article about it. Click on the link to read the rest.

Gluten Ataxia

Ataxia is the most common neuropathy symptom associated with gluten allergy, according to the 2002 "Journal of Neurology, Neurosugery and Psychiatry." It is known as gluten ataxia. Ataxia is loss of muscle coordination in order to perform voluntary tasks such as picking up a book or walking. Symptoms of ataxia my involve difficulty swallowing, walking, slurred speech and eye movement changes.

Read more: Open Original Shared Link

AVR1962 Collaborator

I believe the jumpy eyes are one of the symptoms of gluten ataxia. I have a friend who shows all of the symptoms of this, from difficulty walking, slurred speech, and jumpy eyes. He has been to see several doctors and has had multiple MRI's, CT scans, and neurological tests. They say they don't know WHAT it is. When I discovered what I did about the gluten ataxia and showed him, he went into denial and refuses to go back to the doctor to be tested. He's risking permanent damage, and quite literally risking his very life. :(

Here is a brief excerpt of an article about it. Click on the link to read the rest.

Gluten Ataxia

Ataxia is the most common neuropathy symptom associated with gluten allergy, according to the 2002 "Journal of Neurology, Neurosugery and Psychiatry." It is known as gluten ataxia. Ataxia is loss of muscle coordination in order to perform voluntary tasks such as picking up a book or walking. Symptoms of ataxia my involve difficulty swallowing, walking, slurred speech and eye movement changes.

Read more: Open Original Shared Link

So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.

bartfull Rising Star

AVR, I don't have this problem myself. But because my friend does, I've read a lot about it. It is the slowest to heal, and for some it never completely goes away, although it does get better. If you google it, you will find a lot of info. Or better yet, do a search on this site. There are several members who have neurological problems caused by gluten. They can help you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gigifree Rookie

Yes, I had jumpy eye, dry eye and keratoconus . My jumpy eye and dry eye are better with a gluten-free diet and vitamins, but keratoconus is a life long condition. In some studies, keratoconus is linked to/ a complication of celiac disease.

  • 2 weeks later...
Februaryrich Rookie

I get the jumpy eye too..my peripheral vision is bad

Celiac Ninja Enthusiast

So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.

I've got it. When I'm trying to read and I'm feeling tired or stressed that's when it starts, my eyes will jump off the line that I'm reading or while I'm drawing and staring at one spot real close they will bounce off and I loose my pace. It's annoying, but it's still bothering me a bit and I've been on a gluten free diet for years. Although, it seems when I get a small gluten episode it does show up again. Latley I've found that my chapsticks are causing small gluten episodes, so the jumpy eyes are back today. I didn't think anyone else had this, thought I was going mad or something. lol Yhea I'm not alone :D

Anyway, stress and being tired area a trigger for me, especially when I'm slouching in my chair. Those are the only things I know that's going on when it happens.

Hope this helps.

Loey Rising Star

I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking at lines and have actually let one student go because I could not keep up with all the notations in the music. I have made so many simple mistakes identifying the wrong notes only to realize my students are correct. Then I feel terrible for correting them when all along they were right but it's because my eyes are doing crazy things.

I have vertigo and double vision and I had severe migraines. I had a mass and they removed it. It was Fibrodysplasia. The double vision and vertigo are still there so I need to go back to my optometrist. Good luck. We're all pulling for each other. That's what's so special about this forum.

Loey

  • 2 weeks later...
Chrissyb Enthusiast

I have MS and Celiacs and have been on a gluten free, dairy free diet for over 4 years now and to my dismay none of my ms symptoms have cleared up. :( All my gastro symptoms are better and I can sure tell when I have has something with gluten in it. I have all the eye problems and the neuropathy but such is life with ms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.