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Extreme Reaction To Glutening

annegirl

By annegirl
in Coping with Celiac Disease

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annegirl Explorer
annegirl
Posted

I've been gluten free since Fenruary 1, 2011. I know I've had a couple little cc things, but with my other allergies I just tend to only eat what I cook so I've been fine.

Last Tuesday I went to lunch with 3 people I was working with, so I ordered a salad with no croutons (brought my own dressing). Long story short, one of the last bites I took I crunched into a tiny crumb of crouton. It was done so I hoped I would be fine and went on with my day.

Fast forward 6 hours and my stomach is bloating and cramping like there is no tomorrow. Excrutiating pain. I ended up actually throwing up (haven't done that in 12 years) and was physically unable to eat for 4 days after (lost 5 pounds). I had stomach pain, cramping, bloating, but in addition I had a an extreme sort of burning and feeling of inflammation in my guts. I just had a friend die after a long bout with Crohn's and I'm a little freaked out that my extreme reaction and inability to eat for so long after could indicate something in addition to Celiac. I'm doing better now, but am still eating light and haven't totally regained my strength.

My reaction was extreme enough to get both my parents to ask me to go to a specialist to see if I had something else wrong. We're not big doctor people. More the "rub some dirt in it" and move on type, so that might give an idea of how bad a week it was.

Does this sound at all familiar to anyone? Am I (and my folks) unnecessarily worried?

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beebs Enthusiast
beebs
Posted

I've been gluten free since Fenruary 1, 2011. I know I've had a couple little cc things, but with my other allergies I just tend to only eat what I cook so I've been fine.

Last Tuesday I went to lunch with 3 people I was working with, so I ordered a salad with no croutons (brought my own dressing). Long story short, one of the last bites I took I crunched into a tiny crumb of crouton. It was done so I hoped I would be fine and went on with my day.

Fast forward 6 hours and my stomach is bloating and cramping like there is no tomorrow. Excrutiating pain. I ended up actually throwing up (haven't done that in 12 years) and was physically unable to eat for 4 days after (lost 5 pounds). I had stomach pain, cramping, bloating, but in addition I had a an extreme sort of burning and feeling of inflammation in my guts. I just had a friend die after a long bout with Crohn's and I'm a little freaked out that my extreme reaction and inability to eat for so long after could indicate something in addition to Celiac. I'm doing better now, but am still eating light and haven't totally regained my strength.

My reaction was extreme enough to get both my parents to ask me to go to a specialist to see if I had something else wrong. We're not big doctor people. More the "rub some dirt in it" and move on type, so that might give an idea of how bad a week it was.

Does this sound at all familiar to anyone? Am I (and my folks) unnecessarily worried?

I get extreme reactions to eating gluten as well. It doesn't sound exactly the same - but I get itransient intussusception, I've had it 5 times and its very similar to being in labour. Agonising isn

t the word - It's so bad I can't talk. Anyhow - if it *is* that then yes- its dangerous and you need to let your specialist know. It can be life threatening and is considered a medical emergency - the kind where you call an ambulance....I know Dr google is dangerous-but maybe read up and see if your symptoms match...

annegirl Explorer
annegirl
Posted
  • Author

I get extreme reactions to eating gluten as well. It doesn't sound exactly the same - but I get itransient intussusception, I've had it 5 times and its very similar to being in labour. Agonising isn

t the word - It's so bad I can't talk. Anyhow - if it *is* that then yes- its dangerous and you need to let your specialist know. It can be life threatening and is considered a medical emergency - the kind where you call an ambulance....I know Dr google is dangerous-but maybe read up and see if your symptoms match...

I looked it up....and though hard to see many symptoms it seems like the type of pain comes in "waves" where my pain is a constant. Almost like my stomach and intestines are completely contracted and never release.

Thanks for the idea and I will continue researching!

beebs Enthusiast
beebs
Posted

I looked it up....and though hard to see many symptoms it seems like the type of pain comes in "waves" where my pain is a constant. Almost like my stomach and intestines are completely contracted and never release.

Thanks for the idea and I will continue researching!

Yeah - it comes in waves - like contractions...I'd talk to your GI about your reaction though, just so he/she knows whats going on etc :)

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