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Celiac And Gastritis


kristen34

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kristen34 Newbie

I was diagnosed with celiac over the summer. Earlier this week, after having increased stomach pain, I had another endoscopy. It showed that I had an extremely rare type of gastritis called collagenous gastritis. My doctor wants to put me on steroids but I have absolutely no interest in being put on steroids. I want my stomach to grt better because it's very very inflamed, however the side effects of steroids are too crazy for me. I am in high school and there is no way I can have my face break out and be puffy and not get enough sleep. I get side effects from every medication soi know I will react negatively with steroids. Are there any other medicines I can take?


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Roda Rising Star

Are you strict about gluten free? Do you cook for yourself or does your parents? Have the necessary precautions been taken to minimize/eliminate cross contamination?

glutengirl42 Rookie

I was diagnosed with celiac over the summer. Earlier this week, after having increased stomach pain, I had another endoscopy. It showed that I had an extremely rare type of gastritis called collagenous gastritis. My doctor wants to put me on steroids but I have absolutely no interest in being put on steroids. I want my stomach to grt better because it's very very inflamed, however the side effects of steroids are too crazy for me. I am in high school and there is no way I can have my face break out and be puffy and not get enough sleep. I get side effects from every medication soi know I will react negatively with steroids. Are there any other medicines I can take?

You should look into going on the Specific Carbohydrate Diet. Before being diagnosed with Celiac I was told I had gastritis after going to the emergency room for abdominal pain. I was on prednisone for severe uticaria (hives) and swelling. Prednisone has a lot of side effects and isn't a good medication to be on for an extended period of time. I hated how I felt on prednisone. I'm thankful I'm off and hope I dont need to go back on it. I gained 30 pounds on prednisone and was swollen with fluid retention. Try to stay active and drink lots of water to prevent fluid retention.

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      I'm trying to figure out if Oat In Calming Gel Cream from Purito is safe to use as a moisturizer on my face.  In particular, I'm not sure what to think about the oat seed water. Not sure if that should be considered safe or not. The full list of ingredients on their website are: Avena Sativa (Oat) Seed Water (77%), Butylene Glycol, Glycerin, 2,3-Butanediol, 1,2-Hexanediol, Aqua/Water, Ammonium Acryloyldimethyltaurate/VP Copolymer, Squalane, Hydroxyacetophenone, Carbomer, Dipotassium Glycyrrhizate, Panthenol, Tromethamine, Ethylhexylglycerin, Inulin Lauryl Carbamate, Sodium Surfactin, Beta-Glucan
    • Heatherisle
      Aw thank you so much for replying so quickly. Just wish the endoscopy had been clearer but as you say she might be in the early stages although she’s had gastric intestinal symptoms for a few years now but was told it was IBS. She won’t get the results for about 12 weeks which is frustrating, so hopefully if she trials a gluten free diet things will hopefully improve even if only slightly. I know improvements aren’t likely to happen immediately
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      Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac disease, perhaps transitioning from NCGS (Non Celiac Gluten Sensitivity) to celiac.
    • Heatherisle
      Sorry, typing error, not strophic, should read strophic!!!! Did it again, atrophic, not strophic, (flippin technology)
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      Hi  My daughter has had her endoscopy and biopsies done but still none the wiser as to whether it’s coeliac even though she has many of the signs and symptoms. Gastroenterologist not 100% convinced as herEMAb blood test was negative even though her TTG Ab19 was positive at 19, lab range was 0.0-7.0. Bulb D1 biopsy potentially looked a little flat/strophic, D2 relatively unremarkable. Also found some oesophagitis and mild gastritis, biopsy taken from there. She has also to hand take another stool sample for faecal Calprotectin which I’ve never heard of!! Als advised to trial a gluten free diet. Just wondering if anyone has had similar results. Thanks so much
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