Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Then Lupus


fattycat

Recommended Posts

fattycat Rookie

I keep reading that a lot of people had a diagnosis of Lupus and then later in life got a diagnosis of celiac. I've been gluten free for about a year now and have still am having problems. The doctors are now thinking that I may have Lupus too. Any get a diagnosis of Celiac and THEN lupis?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
GliadinX
Daura Damm



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


cahill Collaborator
  On 10/7/2011 at 9:03 AM, fattycat said:

I keep reading that a lot of people had a diagnosis of Lupus and then later in life got a diagnosis of celiac. I've been gluten free for about a year now and have still am having problems. The doctors are now thinking that I may have Lupus too. Any get a diagnosis of Celiac and THEN lupis?

If you are concerned about lupus have your doc do an ANA test. My doc did an ANA test that came back moderately positive ( 35 in mod range 20 to 60) but negative for lupus.My Hashimotos antibodys were off the scale( 998.76 with normal range being < 10.10)which accounted for the mod. positive ANA reading .

Since lupus and celiacs are both autoimmune disease it could be beneficial to be tested.

Have you considered that if you are still having problems after a year gluten free that you may have other intolerances going on??

fattycat Rookie
  On 10/7/2011 at 12:17 PM, a1956chill said:

If you are concerned about lupus have your doc do an ANA test. My doc did an ANA test that came back moderately positive ( 35 in mod range 20 to 60) but negative for lupus.My Hashimotos antibodys were off the scale( 998.76 with normal range being < 10.10)which accounted for the mod. positive ANA reading .

Since lupus and celiacs are both autoimmune disease it could be beneficial to be tested.

Have you considered that if you are still having problems after a year gluten free that you may have other intolerances going on??

The test is next week so I'll ask which one they are doing. Thank you.

Yup, considered other intolerances. Went to an allergist, kept a food journal, etc. Have also been to two endocrinologists, internal medicine doctor, acupuncturist, cardiologist (today), family doctors etc. Got tested for Cushings too and though I have all the symptoms, ends up I dont have it. So far every test has been normal. I was going to let it go and just say it was all in my head but when my internal medicine doctor heard that I'm retaining water, gaining weight (I started gaining weight before I went gluten free), etc with no reason he sent me to a specialist right away.

Reba32 Rookie

It is not uncommon at all for someone to have more than one auto-immune disease, and there is no rule whatsoever about what order they'll attack you. If you are having Lupus symptoms, your doctor would also likely be testing for other auto-immune disease that have similar symptoms, like Sjogren's, scleroderma, rheumatoid arthritis, multiple sclerosis, etc etc ad nauseum. It may take a few vials of blood, so make sure you're well hydrated and well fed before you go! ;)

cahill Collaborator
  On 10/7/2011 at 3:39 PM, Reba32 said:
It may take a few vials of blood, so make sure you're well hydrated and well fed before you go! ;)

My last testing they took 8 vials of blood :huh: thankfully I had a bottle of water and a banana in my car because I sure needed it when I left :lol:

fattycat Rookie
  On 10/7/2011 at 3:48 PM, a1956chill said:

My last testing they took 8 vials of blood :huh: thankfully I had a bottle of water and a banana in my car because I sure needed it when I left :lol:

lol Will do! I feel like I've had nearly every test under the sun done in the past 6 years! I've been medication free for the past 6-8 months now. Kind of bummed out that I may have to go on a ton of medications. :(

Reba32 Rookie

yep, when I went in for my annual, they took 8 vials, and then a week later took 3 more! I'm going back today to talk to her again, and they'll probably take more.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Tierra Farm
Little Northern Bakehouse



Celiac.com Sponsor (A8-M):
Lakefront Brewery


Loey Rising Star
  On 10/7/2011 at 9:03 AM, fattycat said:

I keep reading that a lot of people had a diagnosis of Lupus and then later in life got a diagnosis of celiac. I've been gluten free for about a year now and have still am having problems. The doctors are now thinking that I may have Lupus too. Any get a diagnosis of Celiac and THEN lupis?

I was diagnosed with Celiac last spring then I was diagnosed with CLL (Chronic Lymphocytic Leukemia) and recently Lupus. It seems to me that they're all connected. A lot of people also get Fibromyalgia (sp?). I agree that you need to get the ANA test. I hope that you feel better and get answers soon. We're all here for you!!!

Loey

dilettantesteph Collaborator

You could also consider super sensitivity. There isn't a test for it that a doctor can give you. You can read up on it in the super sensitive section. You could get an idea if that is your problem by eating only produce and (non poultry) meat, packaged at the meat distributor, for a week and see if you feel better.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      130,484
    • Most Online (within 30 mins)
      7,748

    Miaokang
    Newest Member
    Miaokang
    Joined

  • Celiac.com Sponsor (A20):
    GliadinX


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX



  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):
    Authentic Foods



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...