Celiac And Then Lupus

[fattycat]

I keep reading that a lot of people had a diagnosis of Lupus and then later in life got a diagnosis of celiac. I've been gluten free for about a year now and have still am having problems. The doctors are now thinking that I may have Lupus too. Any get a diagnosis of Celiac and THEN lupis?

[cahill]

  On 10/7/2011 at 9:03 AM, fattycat said:

I keep reading that a lot of people had a diagnosis of Lupus and then later in life got a diagnosis of celiac. I've been gluten free for about a year now and have still am having problems. The doctors are now thinking that I may have Lupus too. Any get a diagnosis of Celiac and THEN lupis?

If you are concerned about lupus have your doc do an ANA test. My doc did an ANA test that came back moderately positive ( 35 in mod range 20 to 60) but negative for lupus.My Hashimotos antibodys were off the scale( 998.76 with normal range being < 10.10)which accounted for the mod. positive ANA reading .

Since lupus and celiacs are both autoimmune disease it could be beneficial to be tested.

Have you considered that if you are still having problems after a year gluten free that you may have other intolerances going on??

[fattycat]

  On 10/7/2011 at 12:17 PM, a1956chill said:

If you are concerned about lupus have your doc do an ANA test. My doc did an ANA test that came back moderately positive ( 35 in mod range 20 to 60) but negative for lupus.My Hashimotos antibodys were off the scale( 998.76 with normal range being < 10.10)which accounted for the mod. positive ANA reading .

Since lupus and celiacs are both autoimmune disease it could be beneficial to be tested.

Have you considered that if you are still having problems after a year gluten free that you may have other intolerances going on??

The test is next week so I'll ask which one they are doing. Thank you.

Yup, considered other intolerances. Went to an allergist, kept a food journal, etc. Have also been to two endocrinologists, internal medicine doctor, acupuncturist, cardiologist (today), family doctors etc. Got tested for Cushings too and though I have all the symptoms, ends up I dont have it. So far every test has been normal. I was going to let it go and just say it was all in my head but when my internal medicine doctor heard that I'm retaining water, gaining weight (I started gaining weight before I went gluten free), etc with no reason he sent me to a specialist right away.

[Reba32]

It is not uncommon at all for someone to have more than one auto-immune disease, and there is no rule whatsoever about what order they'll attack you. If you are having Lupus symptoms, your doctor would also likely be testing for other auto-immune disease that have similar symptoms, like Sjogren's, scleroderma, rheumatoid arthritis, multiple sclerosis, etc etc ad nauseum. It may take a few vials of blood, so make sure you're well hydrated and well fed before you go!

[cahill]

  On 10/7/2011 at 3:39 PM, Reba32 said:

It may take a few vials of blood, so make sure you're well hydrated and well fed before you go!

My last testing they took 8 vials of blood thankfully I had a bottle of water and a banana in my car because I sure needed it when I left

[fattycat]

  On 10/7/2011 at 3:48 PM, a1956chill said:

My last testing they took 8 vials of blood thankfully I had a bottle of water and a banana in my car because I sure needed it when I left

lol Will do! I feel like I've had nearly every test under the sun done in the past 6 years! I've been medication free for the past 6-8 months now. Kind of bummed out that I may have to go on a ton of medications.

[Reba32]

yep, when I went in for my annual, they took 8 vials, and then a week later took 3 more! I'm going back today to talk to her again, and they'll probably take more.

[Loey]

  On 10/7/2011 at 9:03 AM, fattycat said:

I keep reading that a lot of people had a diagnosis of Lupus and then later in life got a diagnosis of celiac. I've been gluten free for about a year now and have still am having problems. The doctors are now thinking that I may have Lupus too. Any get a diagnosis of Celiac and THEN lupis?

I was diagnosed with Celiac last spring then I was diagnosed with CLL (Chronic Lymphocytic Leukemia) and recently Lupus. It seems to me that they're all connected. A lot of people also get Fibromyalgia (sp?). I agree that you need to get the ANA test. I hope that you feel better and get answers soon. We're all here for you!!!

Loey

[dilettantesteph]

You could also consider super sensitivity. There isn't a test for it that a doctor can give you. You can read up on it in the super sensitive section. You could get an idea if that is your problem by eating only produce and (non poultry) meat, packaged at the meat distributor, for a week and see if you feel better.