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Going Back To Eating Gluten For My Endoscopy?

CourtneyLee

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CourtneyLee Contributor
CourtneyLee
Posted

So, I was diagnosed with coeliac disease through the blood test, my crappy doctor didn't tell me to stay eating gluten to confirm the diagnosis with an endoscopy, and by the time I found out that I should have kept eating gluten, it had been 6 months, and I wasn't looking to get one. My symptoms had gone and that was enough for me.

Fast forward to August, my symptoms came back, and to cut a long story short, I decided that me being the age I am (17), it is SO worth me getting the endoscopy, because what if for some bizzare reason I don't end up having coeliac?

So, I'm scheduled to get my endoscopy in February, but I was just wondering if (I highly doubt it...) you guys have anything that could make me feel better while I go back to gluten?

I've had a few accidental glutenings.. and oh god are the cramps bad.. not to mention the big D, followed by days of constipation after it.

Thanks guys!

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Duhlina Apprentice
Duhlina
Posted

So, I'm scheduled to get my endoscopy in February, but I was just wondering if (I highly doubt it...) you guys have anything that could make me feel better while I go back to gluten?

I don't have anything to say that will make you feel better, but enjoy your favorite foods while you can. When I went back on before my endoscopy I felt like I was on a bender! I ate EVERYTHING I could that I wasn't supposed to before. Beer (that KILLED me), pizza, bread, doughnuts, etc. The only thing that REALLY bothered me was the beer. Everything else seemed manageable.

My gastro let my husband stay in the room during the endoscopy and INSISTED I didn't have celiac based on what he saw during the procedure but the biopsy came back positive.

The procedure is easy, don't be nervous at all.

Reba32 Rookie
Reba32
Posted

well, if your endoscopy is not until February, I wouldn't start back on the gluten just now, and then be in pain and miserable until then. You probably only need to start back on the gluten 6 to 8 weeks before the scope, that should be sufficient enough damage within that time for them to get an accurate reading on the biopsies.

Roda Rising Star
Roda
Posted

I thought it was recommended to be consuming gluten for appx. 3 months to insure a better chance of diagnosis.

love2travel Mentor
love2travel
Posted

I thought it was recommended to be consuming gluten for appx. 3 months to insure a better chance of diagnosis.

Yes - three to four months are recommended with eating the equivalent to three to four pieces of bread each day. Don't forget to request lots of biopsies - at least 8-11!

eatmeat4good Enthusiast
eatmeat4good
Posted

I think I would accept the blood tests as diagnostic, especially if you ge that sick from gluten.

CourtneyLee Contributor
CourtneyLee
Posted
  • Author

I think I would accept the blood tests as diagnostic, especially if you ge that sick from gluten.

I actually had accepted it, but then I had all these weird symptoms coming back.. and I know that if I never get the biopsy done I'll always be thinking "what if?"

Ahhh :( I so don't want it done!!

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CourtneyLee Contributor
CourtneyLee
Posted
  • Author

Yes - three to four months are recommended with eating the equivalent to three to four pieces of bread each day. Don't forget to request lots of biopsies - at least 8-11!

Really? My doctor said 4 weeks.. So should I start in november?

I have my major school exams coming up (I'm in year 12 so these are my last exams ever, the huuuge ones) and they finish on the 16th of November, my plan was to start eating gluten then..

AVR1962 Collaborator
AVR1962
Posted

If you decide to do this, my suggestion is to go back to your doc if you get too sick to continue on glutens and have this documented. I last 12 days, I was so incredibly sick. By not being able to make it to my testing it helped me to get my diagnosis.

CourtneyLee Contributor
CourtneyLee
Posted
  • Author

If you decide to do this, my suggestion is to go back to your doc if you get too sick to continue on glutens and have this documented. I last 12 days, I was so incredibly sick. By not being able to make it to my testing it helped me to get my diagnosis.

Oh you poor thing :( Thankyou for that though, I'll definately keep this in mind. I'm pretty sure I do have coeliac because I've had mishaps before (like having a hot chocolate at a cafe and not checking for gluten..) and I get pains and D from that.. so.. fingers crossed!

Reba32 Rookie
Reba32
Posted

I only did about 7 weeks, and the damage was visible on the scope, not just confirmed by biopsy. Prior to the 7 weeks challenge, I had been pretty much gluten free for just over a year. For me, the damage was immediate and severe.

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