Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Gluten For Labs


glutenfreemamax2

Recommended Posts

glutenfreemamax2 Enthusiast

Is 14 days enough to show on labs, and how much gluten do I need to eat?

I've done the gluten challenge before, but could only get 3 weeks in before I was so miserable.

I looser insurance at the end of the month. I wanted to do it before I lost it if it's enough time. Also- does insurance cover the gene test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Is 14 days enough to show on labs, and how much gluten do I need to eat?

I've done the gluten challenge before, but could only get 3 weeks in before I was so miserable.

I looser insurance at the end of the month. I wanted to do it before I lost it if it's enough time. Also- does insurance cover the gene test?

If you have been gluten-free for a while then NO. The bare minimum is 6 weeks, but the more common recomendations I have seen is 3 months. That's eating the equivalent of 3 to 4 slices of bread a day for 3 months. If you can only get so far in without feeling miserable then you already have your answer that you need to be gluten-free. Why put yourself through the misery for an official diagnosis, especially if you are going to be without insurance soon? In the US it can be hard to get insurance for some people with celiac as a pre-existing condition. I would just self diagnose as Gluten intolerant and stay gluten-free if I were you.

As far as the gene tests you will have to check with your individual insurance company. Many companies do not cover the gene test but some will.

glutenfreemamax2 Enthusiast

Unless I have a diagnosis I won't have support :-(

GlutenFreeManna Rising Star

Unless I have a diagnosis I won't have support :-(

If you are desperate for some positive tests you might look into Enterolab. Supposedly you can test with them with less gluten in your system because they test via a stool sample test. However, they are NOT covered by insurance (at least i have never heard of an insurance covering them) and technically they do not diagnose celiac disease. They will only tell you if you have a gluten sensitivity. They also have gene tests. You can send away for the test kit without a dr.

Who is it that will not support you if you don't have a diagnosis? It is nobodies business but your own whether or not you had positive blood tests for celiac. You can simply tell most people your DR strongly reccommended a gluten-free diet for life and your symptoms are very bad if you eat gluten.

glutenfreemamax2 Enthusiast

My family is not supportive. They think I'm being difficult. I had labs done but I had been gluten-free for almost a month prior. Family says labs were negative and me being gluten free has nothing to do with it. Even all the nurses in my family say that, so its lonley old me battling everyone.

GlutenFreeManna Rising Star

My family is not supportive. They think I'm being difficult. I had labs done but I had been gluten-free for almost a month prior. Family says labs were negative and me being gluten free has nothing to do with it. Even all the nurses in my family say that, so its lonley old me battling everyone.

Show them this link about testing from the celiac center in Chicago:

Open Original Shared Link

The first few sentences on the second page say:

"Antibody tests are only accurate when a patient is on a gluten-containing diet. Those concerned about celiac disease are strongly discouraged from starting a gluten-free diet without having had a firm diagnosis. Any change in the diet, even for as little as a month or two, can complicate the diagnostic process."

If this is your extended family then the next time you do get testing tell them it was positive regardless of the result. If this is your spouse causing your grief then I think you may need some counseling. I would not lie to my spouse about this but my spouse supports me even without a piece of paper--he saw the dramatic difference in my health after I went gluten-free and is very good about helping me stay that way.

eatmeat4good Enthusiast

My spouse didn't believe me...divorced me for being sick when the Dr.'s didn't think it was anything significant.

My family didn't believe me...thought I was just depressed and making things up.

My doctors didn't believe me...thought it was mental, an eating disorder, neurotic excoriation and fibromyalgia.

In the end, the only thing that mattered was that I believed me...after I read ab out Celiac on Celiac.com.

None of them really believe me still....but I am ok with that.

I eat gluten free and I am healthy for the first time in years...

It is so well worth it.

The only support you need is from the hand that puts food in your mouth.

You can do it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

My family is not supportive. They think I'm being difficult. I had labs done but I had been gluten-free for almost a month prior. Family says labs were negative and me being gluten free has nothing to do with it. Even all the nurses in my family say that, so its lonley old me battling everyone.

You may be gluten intolerant rather than celiac. If that's the case, you won't ever show anything on labs. This talks some about Faesano's research on gluten sensitivity.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.