Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Operation: Pregnancy

Muffy

By Muffy
in Related Issues & Disorders

Recommended Posts

Muffy Rookie
Muffy
Posted

Hello,

I am just re-kindling my gluten/wheat issue research. I have been gluten free for about a year and a half, maybe a little longer. Shortly before going gluten-free I went refined fructose super-lite and right after going gluten-free I went grain, dairy, soy, and canola oil free. I have a long history of thyroid issues, rashes, dead intestines (leaky as all get out and had part of them removed 2 years ago), migraines, nerve issues, muscle issues, insmomnia, anxiety, fatigue, asthma, tons of secondary food allergies (mostly fruits)...the whole works. I am strict, the concept of 'cheating' is alien to me. My house is gluten-free. I know I have a long way to go toward healing my leaky gut but I also know I am the healthiest I have probably ever been in my life.

Since I am trying to get pregnant I realized that I have never researched this and need too. Anyway. I am 38. I had a pregnancy and birth 14 years ago. I was 24 and sick before during and after. I had no fertilty or delivery difficulties but I was not well durng the pregnancy. Tons of ridculously severe acid reflux, high blood pressure, water retention, migraines, thyroid was hard to stabalize, 'morning' sickness...and I was pushing that line between overweight and obeseity at conception and gained a lot of weight during. I know these things are 'normal' to an extent.

I don't really know what I am looking for, I am just starting my way through this thread right now. This is just a shout-out in case anyone out there has some adivce or a kernal of wisdom they'd like to throw back ;)

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jswog Contributor
jswog
Posted

Hello,

I am just re-kindling my gluten/wheat issue research. I have been gluten free for about a year and a half, maybe a little longer. Shortly before going gluten-free I went refined fructose super-lite and right after going gluten-free I went grain, dairy, soy, and canola oil free. I have a long history of thyroid issues, rashes, dead intestines (leaky as all get out and had part of them removed 2 years ago), migraines, nerve issues, muscle issues, insmomnia, anxiety, fatigue, asthma, tons of secondary food allergies (mostly fruits)...the whole works. I am strict, the concept of 'cheating' is alien to me. My house is gluten-free. I know I have a long way to go toward healing my leaky gut but I also know I am the healthiest I have probably ever been in my life.

Since I am trying to get pregnant I realized that I have never researched this and need too. Anyway. I am 38. I had a pregnancy and birth 14 years ago. I was 24 and sick before during and after. I had no fertilty or delivery difficulties but I was not well durng the pregnancy. Tons of ridculously severe acid reflux, high blood pressure, water retention, migraines, thyroid was hard to stabalize, 'morning' sickness...and I was pushing that line between overweight and obeseity at conception and gained a lot of weight during. I know these things are 'normal' to an extent.

I don't really know what I am looking for, I am just starting my way through this thread right now. This is just a shout-out in case anyone out there has some adivce or a kernal of wisdom they'd like to throw back ;)

Thanks!

Thanks for posting this, Muffy! While I cannot offer any advice, I do hope others can/will as I am in a similar situation as you are. I'm 35 and have only just very recently started on my gluten-free journey, all the while TTC (or, as we like to say, not NOT trying...lol...with very strong hopes). Neither my husband nor I have other children, however, so no history to draw upon. Since going gluten-free almost one month ago now (Sept. 13 was my last day of consuming gluten, so tomorrow will be one month for me), I already feel like I've gained at least 10 years of my life back! Good luck TTC! I hope we both have good news to share soon!

Jen

  • 4 months later...
addis001 Apprentice
addis001
Posted

Just found out Gluten was the key to everything... We've been trying since November to get Prego. And I've been gluten free for a month now.. Any advice on how to get prego would be great!! I have a 2 year old now. We want one more then we are done. It seems like TTC is a struggle since we got prego with our first on the first try. My body feels different and everything feels like its not working right.

upwitht21 Rookie
upwitht21
Posted

My advice would be don't rush healing and make sure your doctor is involved. I was gluten free for 2 months and got pregnant completely unassisted after 10 cycles of fertility meds. We lost the baby at 7 weeks and I can't help but feel we just tried to soon. I was just starting to really feel better when I added the stress of a baby into my already weakened body and although I healed enough to conceive it wasn't enough support the fetus.

I hope that helps....

Jess

addis001 Apprentice
addis001
Posted

Definitely does help.. my best friend just had a miscarriage.. And I don't think I could handle that... I want to heal first so i can be as healthy as I can be...But at the same time, I'm not getting younger either.. Its so hard to know when, I'm working with my GI closely.. Maybe he'll tell me when I seem ready.

  • 3 weeks later...
Ellymay Rookie
Ellymay
Posted

I too had a miscarriage before my current pregnancy but you can't blame yourself if that happens - they can be caused by any number of reasons and are most often nature's way of dealing with a fetus that wouldn't have lived anyway. Personally, if I was 38 I wouldn't be waiting for the perfect time unless there are obvious health reasons to wait.

However if you haven't already been checked for nutrient deficiencies I would get blood tests to check your folic acid, vitamin b12, iron and vitamin c levels in particular. These are often deficient in people with gluten intolerance and can take some time to restore. I had injections for b12 deficiency (which is important for fertility) and along with folic acid this is also important to prevent neural tube defects such as spina bifida. Beware if you are taking a high dose of folic acid when they test your b12 levels this can mask a deficiency. I have just found out I am low in b12 again and it is not recommended to have b12 injections during pregnancy so I recommend you check this out so you can get any injections required before getting pregnant.

By the way, you may find you can have dairy products again. After 6 months on the gluten free diet I found I had healed enough that I no longer had a lactose intolerance. It is good to be able to eat lots of calcium rich dairy products while pregnant, especially when you have cravings for custard.... :)

Goodluck

Eleanor

JillianLindsay Enthusiast
JillianLindsay
Posted

Just to share, I was gluten-free for 2 1/2 years when I got pregnant the first time. I was in excellent health and still had a miscarriage. Many perfectly healthy people have unexplained m/c, sadly it is just a part of TTC. I'm happy to say, that I'm now 6 weeks and 2 days along and so far everything is going well :)

I agree with keeping your DR in the loop and following his or her advice as you go along. I did have initial bloodwork done before we started trying, and everything was in the normal range, even my iron, which hadn't been the case since I was a teenager! Good luck!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.