Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here...considering Diagnostics


LuvQuints

Recommended Posts

LuvQuints Newbie

Hi all,

I just joined the forum as it looks to be a great wealth of information! I am a 34 yo female and considering asking my physician to test me for celiac disease. Recently, I had comprehensive bloodwork done, including CMP, CBC, and others. It was found that I have very significant iron deficiency anemia (microcytic) with Hbg of about 9.2 and Hct of about 27. Overt reason for this is suspected to be very heavy menstrual cycles, which has been corrected with insertion of Mirena IUD. This happened second week of September. ANA was negative, C-reactive protein positive. Thyroid, liver function all normal. In recent months, I have had horrible chronic hives which I have managed using Zyrtec (at times coupled with Benadryl) and cortisone creams with varying effect (but none have "totally" gotten rid of the hives). I will be getting bloodwork drawn tomorrow for serum Fe, ferritin, and sed rate to see what progress has been made.

I decided to change to a paleo/primal diet, which advocates high fat/moderate protein/low carb foods and eliminates grains, sugars, and starches (and dairy, depending on the books you read). Since I have changed my diet, not only am I losing weight (yay!) but I haven't had a single hive or hint of a rash. I have cheated twice in the past 3 weeks, and both times I have gotten another round of hives AND nausea/vomiting/diarrhea.

My other concern is the literature I have read that states anemia can be caused by celiac disease. Now, I know I already have one very feasible reason for my anemia (heavy menstrual bleeding); but what if it is also symptomatic of celiac disease? Since I was an infant I have had various "food allergies" (not technically diagnosed/tested), very sensitive skin, and have battled hives. I have been overweight for years, with GI upset and reflux more often than not. I read these lists of symptoms and am appalled at how many I have experienced over the years.

I feel like a WHOLE NEW PERSON going paleo and thus, gluten-free. I am really considering going to my PCP to have further testing done. Does it sound like I should? What blood tests should I ask for (assuming those come before the biopsy)? I am finding conflicting information on whether or not to eat gluten prior to blood tests. What say you? Any information or advice would be so very helpful!!

Thanks much :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

If you want to be tested for celiac you will have to be on gluten for at least 2 months, some docs want 3. Testing is not very reliable so while it is possible for you to have celiac your tests may not prove that. If you are feeling better on a gluten-free diet I would definately make mention of this to your doc.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,573
    • Most Online (within 30 mins)
      7,748

    Dawn Nauman
    Newest Member
    Dawn Nauman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.