Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Relief From Vitamin E Skin Oil

Michelle1234

By Michelle1234
in Dermatitis Herpetiformis

Recommended Posts

Michelle1234 Contributor
Michelle1234
Posted

About 3 days ago I started having clear blisters come up through my skin that itch like crazy. I don't yet know if it is DH but if I itch it then it gets worse and more clear blisters come up wherever I've itched the skin. I've tried a number of things I had around the house to get it to stop and am having good luck with Vitamin E skin oil with soybean oil (not derived from wheat). Has anyone found this effective for itch relief on DH? I'm seeing the Dr for something else tomorrow so will see what she thinks it is.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I found it helps to keep rashes moisturized with something heavy-duty. Oil would count as heavy duty.

Michelle1234 Contributor
Michelle1234
Posted
  • Author

I found it helps to keep rashes moisturized with something heavy-duty. Oil would count as heavy duty.

What have you found that works for you? I tried coconut oil on the advise of my mom but it made it itch worse.

Thanks!

pricklypear1971 Community Regular
pricklypear1971
Posted

Vanicream during outbreaks, with a layer of Vaseline.

Ugly but effective.

My DH is under my arms, so it's very sensitive skin.

When the sores weep, I pack washcloths and ice packs under my arms to help stop the itching and the gross feeling.

Michelle1234 Contributor
Michelle1234
Posted
  • Author

Vanicream during outbreaks, with a layer of Vaseline.

Ugly but effective.

My DH is under my arms, so it's very sensitive skin.

When the sores weep, I pack washcloths and ice packs under my arms to help stop the itching and the gross feeling.

Thanks!

I don't know if I have DH (If I itch even just a little horrible little bumps come out and the itchiness becomes worse) but wondered if anyone who knows they have DH would mind doing an experiment with Vitamin E skin oil (from soybean not wheat). I slather it on very liberally and let it sit without disturbing it for maybe 5 min. Then I notice my itching is decreasing and then gone. I'd be curious if it worked for someone who knows they have DH. Please post your results. Periodically if any itching comes up I reapply the oil and it goes away again.

I'm also taking 400 I.U. Vit. E internally but that doesn't have to be part of the experiment.

I saw my Dr. yesterday. She had never heard of DH before. She suggested Benadryl and sent out an expensive food allergy blood test that isn't covered by insurance. If I can't figure out how to get rid of this on my own then I'll have to pay big $s to go to a holistic Dr.

Thanks!

Michelle

pricklypear1971 Community Regular
pricklypear1971
Posted

Anything that cuts off air to the rash tends to help, I've found.

If you want to find out if it's DH go on a low iodine diet, in addition to the gluten-free diet. Resolution under those circumstances is a pretty strong indicator.

Michelle1234 Contributor
Michelle1234
Posted
  • Author

Anything that cuts off air to the rash tends to help, I've found.

If you want to find out if it's DH go on a low iodine diet, in addition to the gluten-free diet. Resolution under those circumstances is a pretty strong indicator.

Thanks again. I did make my husband eat the asparagus in the house, I don't salt anything and we don't eat seafood. Other than that I'm not sure what to eliminate since a general search for iodine lists lots of fruit and veggies that I probably should be eating.

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Google "thyca" for low iodine diet guidelines. They have a cookbook, etc. free and online.

Michelle1234 Contributor
Michelle1234
Posted
  • Author

Google "thyca" for low iodine diet guidelines. They have a cookbook, etc. free and online.

Thanks! That was very helpful. Alot more stuff to avoid though <sigh>. I'm having good luck combating the itching but am not making any headway on the bumps so far.

Michelle

pricklypear1971 Community Regular
pricklypear1971
Posted

Thanks! That was very helpful. Alot more stuff to avoid though <sigh>. I'm having good luck combating the itching but am not making any headway on the bumps so far.

Michelle

If it's typical DH they will pop, then refill (or new ones form, I'm not sure...mine are small and in patches that run together). I am guilty of rubbing them til they pop, because I can't stand the weeping (The sores, not me...although DH does make me want to cry) under my arms. Mine pop for 3 days or so then dry up and scab over...which is when moisturizers are important.

DONT SCRATCH!!!! Put ice packs on it - helps stop itching.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    2. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    3. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    4. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress ...
    5. Scott Adams
      - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,488
    • Most Online (within 30 mins)
      7,748
    Debruary
    Newest Member
    Debruary
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.