Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

In Pain And Feeling Depressed


hazesdaze

Recommended Posts

hazesdaze Newbie

I have been in pain for years. 3 years ago I went into the hospital with pain, they found gallstones and removed my gallbladder. After that I started having trouble with my stomach and the doctors said it was IBS and also acid reflux and I was given antacids.. Recently after nothing is helping, I saw a new doctor. He did alot of blood work and also some stool samples and he beleives I may have celiacs. I went off of gluten after he told me this (and after tests) and then to test myself, I ate a hamburger with the bun. I had diarrhea so bad after that which is confirming this for me. I also stayed sick and still feel sick 4 days later. What is going on? How long does gluten remain in your body and is there a faster way to get it out other than force vomiting? I am so scared, I cry about this because it seems that even the smallest amount of gluten is going to hurt. everything seems to have gluten. :( Help this newbie, please.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Hey there.

First, it can take while to "detox" from gluten. For some, a week. Others, longer.

The best way to get rid of gluten is no not eat it - so no more testing.

You'll probably feel better, faster if you eat whole foods - fruits, veggies, meats. Stay away from the processed foods (even gluten-free ones) for a month or so.

Digestive enzymes and probiotics may help your stomach get back on track. Make sure they are gluten-free - I use pb8 probiotics and Enzymedica digestive enzymes.

Check your cosmetics, shampoo, etc. Many of them contain gluten.

Clean your kitchen thoroughly - most replace colanders, cutting boards, scratched plastics, scratched nonstick pans, wooden spoons since all can harbor gluten. Reseason cast iron cookware, clean BBQ grates with oven cleaner or repace them. Soap and water is sufficient to remove gluten from most nonporous surfaces.

Start reading threads, ask lots of questions.

And drink lots of water and get some nutritious gluten-free food in you - that will help. Go for a short walk if you can.

BeFree Contributor

"everything seems to have gluten"

Hang in there...it seemed like that for me too at first. You'll start discovering more and more things without gluten as you get used to the diet. There are a lot of tasty and healthy foods that naturally don't have gluten (like canned tuna, popcorn, hummus...) you just have to get used to a new way of thinking and it takes some time.

This page has some good ideas for things to eat:

Open Original Shared Link

AVR1962 Collaborator

My reaction to gluten lasts 3 weeks. It gets easier within the 3 week time but I will go to any length to avoid it. It sound slike you have an answer and if it is the glutens that are causing the problem, you will get better the longer you stay away from them.

hazesdaze Newbie

Thank you everyone. I am just feeling frustrated with being sick, I feel like I am missing out on so much. I have been reading the topics here and know that I have a lot to learn. I also read that the body needs to detox and you can get worse before getting better. I think I'm driving my family crazy with how careful I am trying to be. lol

They don't grasp the seriousness of cross contamination and think I am taking it overboard. Sometime I wonder if I am going to far but then I read these threads and realize I am not.

BeFree Contributor

"They don't grasp the seriousness of cross contamination and think I am taking it overboard. Sometime I wonder if I am going to far but then I read these threads and realize I am not."

Just remember, you are the one that knows your own body, be confident in eating what feels right to you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.