Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed


Jenni121

Recommended Posts

Jenni121 Rookie

Hi all,

What an informative bunch you are! This site is proving to be a wealth of information. Unfortunately to the point where I'm feeling a little overwhelmed.

I was diagnosed with coeliac disease yesterday and I'm a bit unsure what to do now. I thought I just had to avoid breads, cereals and pastas but it seems there are a thousand other nasties I need to steer clear of. Foods and additives I've never even heard of, but have probably been eating.

What does a typical day's eating look like for you? I will copy what I can until I start to get my head around this...

Thanks everyone :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

We have a thread on here about what's for dinner & breakfast.

Here's the breakfast:

Here's the dinner:

Also check out these recipe sites:

Bubba's Mom Enthusiast

I would recommend trying to just eat whole foods like fruit, vegetables, non processed meat, and dairy if you tollerate it well to start with. It's best not to go out and get a bunch of gluten-free versions of things, like baked goods and such at first. Those have some hard to digest starches in them, and can contain some small amounts of gluten, along with various gums and ingredients to expand shelf life. I eat rice versions of pasta myself, but they only contain rice in the ingredients. Tinkyada is by far the best brand of those I've tried.

It would be a good idea to take digestive enzymes when you eat at first if you have a lot of digestive upset or intestine damage from gluten.

Read labels of everything before eating!

For breakfast you could have cream of rice cereal with a little brown sugar/milk, or eggs, or fruit. Rice Chex cereal and Corn Chex cereal seems to be well tolerated by most, and there's a gluten-free version of Rice Krispies.

Lunch could be baked potato, baked sweet potato, refried beans and corn chips(read the labels) cheese and a fruit, gluten-free soup, salad (check the ingredients in the dressing)grilled or baked chicken and a vegetable, left overs from supper the night before, etc.

Supper could be a baked or grilled meat, potato, rice with your own seasonings added, vegetables,salad. Homemade vegetable beef soup, stews, spaghetti, chili, lentil soup, bean soup, etc. There are a lot of things that are naturally gluten-free. Just check your seasonings and broths for gluten and use cornstarch in a bit of cold water to thicken your sauces.

I like to make a pot of chicken and rice soup with carrot, celery, mushrooms if I have them, and have some to eat and freeze several servings in easy to grab containers. Good for times I don't feel like cooking and easy on the tummy if having a bad day.

I make meatloaf or meatballs using smashed Rice Chex as the filler.

It's best to eat smaller amounts, more frequently at first, rather than overload and tax your digestive system.

AND..if you feel like eating left over lentil soup for breakfast..go ahead! The important thing is that you eat.

Get a new toaster, tooth brush, cutting board, colander, can opener. Replace scratched non-stick cookware. They are impossible to get completely clean of gluten.

You can do this! :D

AVR1962 Collaborator

Read labels. There is a great list of acceptable and not accepted foods on this site that will help you understand what to look for. Check everything though.....chapstick, soy sauce, cooking spray, ice cream, marinades. Oats are accepted but I would not chance them unless they were labeled gluten-free. A food journal will help. Keep it simple, go with a raw food diet until you can start venturing out with other foods. I would steer clear of fast food. And the one other thing I have had to learn is to ask the waiter/waitress if something on a menu contains gravy or breading. You have to specify no croutons of bread with your salads, don't assume it won't come with it. And then have a back-up plan in case something you have received in a restaurant looks suspicious.

desert rose Newbie

Being gluten free changes the way you look at all food. My advice is to read all labels every time you shop as ingredients can change. People assume that being gluten free must be very bland but it is not. There are so many gluten free products out there plus good wholesome natural foods. To start with it dose seem very overwhelming but I started with the celiacs website, although I am not a celiac but a super sensitive gluten intolerant. I only discovered this website last month and I have found it to be great. I dont feel so along anymore thanks to this site. Good luck.

granolagal Apprentice

Hi all,

What an informative bunch you are! This site is proving to be a wealth of information. Unfortunately to the point where I'm feeling a little overwhelmed.

I was diagnosed with coeliac disease yesterday and I'm a bit unsure what to do now. I thought I just had to avoid breads, cereals and pastas but it seems there are a thousand other nasties I need to steer clear of. Foods and additives I've never even heard of, but have probably been eating.

What does a typical day's eating look like for you? I will copy what I can until I start to get my head around this...

Thanks everyone :)

Hi Jenni -

I just wanted to say that I'm in the same boat as you are. I was just diagnosed 6 days ago and am very overwhelmed to say the least! Thanks for posting this question - it's helpful for me too! Although things are even trickier for me because I'm a vegetarian. I'm hoping to go to a dietitian or nutritionist for help.

Jenni121 Rookie

Thank you so much for the replies. The links were great. Its starting to seem a bit easier now I have found lots of recipes!

Grocery shopping took AGES. Reading labels is not easy! It was made easier by the iPhone app I downloaded though, its got a list of every ingredient and additive we can and cant have. So that helped.

Im now into my 3rd day of gluten-free eating. I cant believe how many gluten-free products there are in the supermarkets. I will take your advice though and stick to natural stuff for now, fruits, veggies, etc.

Thanks again :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi Jenni: To go back to your topic heading, you really need to start with your pantry. Depending on whether you have a shared or gluten-free kitchen: Take everything out of your pantry and read every label and if you can't determine, by looking up or calling the manufacturer, whether or not it contains gluten, either toss it, store it on a gluten shelf, or donate unopened to a food bank. This also happens to be a great way to learn where gluten lurks for future reference. :D

While you have everything out of your pantry clean your shelves thoroughly with soap and water. If you have to share a kitchen with a gluten, make sure the gluten free shelves in pantry and fridge are above the gluten shelves to prevent cross-contamination. Set aside gluten free counter areas if you are sharing. Get your own jars of products you would normally share like spreads, dips, PB, pickles, and mark them all with a clear identifier as not to be shared. Also get our own sponge / dish cloth, pot holder. That should keep you going for a while :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.