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Bone/joint Pain

AVR1962

By AVR1962
in Coping with Celiac Disease

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AVR1962 Collaborator
AVR1962
Posted

I'm posting this out of concern for my 26 year old daughter. She has been gluten-free/dairy-free for 2 years. Was still having pain in her joints and in her bones so went off corn as well. The only grain she is taking in right now is rice. She is not eating high fructose or corn syrup. As she has takes thing out of her diet she feels like she is doing better but the bone and joint pain remain.

She was anemic as a small child. Doc told me how to pair her foods to help her absorb the iron from her food but she has always had problems with anemia. Supplements help. She does take a probiotic and a multi vitamin as well.

For the past 1 1/2 years she fought with a strep D infection and was on some very powerful antibiotics which did not knock it out until she did double therapy, 2 different antibiotics at the same time. This was just recently resolved.

I have little doubt that she is celiac and she feels the same but this is not something docs have made any connection to and she has never been tested, and doesn't want to go back on gluten for testing.

My question is, is it possible that she may have been deprived her lifetime of proper nutrients and could that now be effecting her bones? Could the bone pain and/or the strep D infection be a result of something else? She is now saying that she is having crawling sensations on her skin and muscle spasms which seems to me that she might not be absorbing nutrients even with all of the eliminating she has already done. She has gone from a size 10 to a size 3 in the time she has been gluten-free. Mostly eating a vegetarian diet with some meats.

Your thoughts are welcome, thank you!

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captaincrab55 Collaborator
captaincrab55
Posted

I'm posting this out of concern for my 26 year old daughter.

My question is, is it possible that she may have been deprived her lifetime of proper nutrients and could that now be effecting her bones? Could the bone pain and/or the strep D infection be a result of something else? She is now saying that she is having crawling sensations on her skin and muscle spasms which seems to me that she might not be absorbing nutrients even with all of the eliminating she has already done. She has gone from a size 10 to a size 3 in the time she has been gluten-free. Mostly eating a vegetarian diet with some meats.

Your thoughts are welcome, thank you!

AVR1962, Has your daughter ever tested low for Vitamin D ???

AVR1962 Collaborator
AVR1962
Posted
  • Author

AVR1962, Has your daughter ever tested low for Vitamin D ???

Not sure. I do know here doc suggested she take 5,000 units daily.

captaincrab55 Collaborator
captaincrab55
Posted

Not sure. I do know here doc suggested she take 5,000 units daily.

I suffered with shoulder, neck, arm, hand, finger and other pain in the coldest month. well into spring.. Hot weather seemed to make the pain go away... Jusy last May I was diagnosed with Low Vitamin D (14.6) and started taking 50,000 units once a week... The pain vanished as my D level went up... I'm sure the extra sunshine helped too... Last lab, my D was 28 and I'll be getting another lab done next month... BTW, my blood preasue went down too, as my D level rose....

AVR1962 Collaborator
AVR1962
Posted
  • Author

I suffered with shoulder, neck, arm, hand, finger and other pain in the coldest month. well into spring.. Hot weather seemed to make the pain go away... Jusy last May I was diagnosed with Low Vitamin D (14.6) and started taking 50,000 units once a week... The pain vanished as my D level went up... I'm sure the extra sunshine helped too... Last lab, my D was 28 and I'll be getting another lab done next month... BTW, my blood preasue went down too, as my D level rose....

Awesome CaptainCrab!!!!

YoloGx Rookie
YoloGx
Posted

AVR--you should have your daughter checked out for salicylate/phenol problems too. She might be having sulpher uptake problems. Does taking epsom salt baths help relieve some of her joint pain?? There are various No Fenol products out there as well as the low salicylate etc. diet you no doubt are now aware of. If she can't always take a bath, a half hour epsom salt foot soak can really help.

I also take extra minerals as well as the vitamin D (plain cod liver oil is the best for me). As said previously I could not do without E-zorb calcium, a far more absorbable calcium you can get online that was developed by the Chinese since 20% of their population tends to get osteoporosis. I go off it at various times and always come back to it since without it for a couple of weeks using calcium citrate instead, my joints ache terribly, especially my elbows, hips, wrists and neck.

I also take the other minerals--all of which I need: magnesium citrate, trace minerals, zinc and silica drops as well as now MSM for the sulpher. All very important!! for joint pain and reducing cartalidge problems and possible osteoporosis. Recently I have started taking sulpher homeopathics as well as their cell salts -- all with good effects on my joints as well as helping me sleep.

I also find taking nattokinase greatly reduces the scar tissue in the villi and thus increases absorption of needed minerals and vitamins.

I take co-enzyme B vitamins since they go directly into the blood stream and thus are more easily absorbed (on an empty stomach).

Taking some Vit. C, and E as well as NAC and Alpha Lipoic Acid also helps.

Given she was on a long course of antibiotics, pro-biotics are a real necessity. I suggest you get the best refrigerated live cultures you can find.

If she ate more meat it also might really help. Chicken is usually the easiest to start with. Taking pancreatic enzymes with meat will help her digest it better.

Good luck!

Bea

AVR1962 Collaborator
AVR1962
Posted
  • Author

Bea, thank you. I will pass on this info for my daughter to try.

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CR5442 Contributor
CR5442
Posted

Hi, I was just wondering if she has had her bloods taken recently. That might shed more light on what is causing the continuation of pain... just a thought!

domesticactivist Collaborator
domesticactivist
Posted

I think the others are right about needing more testing. I have a couple anecdotal things to add.

My partner's muscle twitching goes away when she takes concentrace mineral drops.

My son's biggest problem was bone and joint pain. Exposure to gluten even in trace amounts brings that back. How careful is she about cross contamination?

Part of her problem could be her vegetarian leanings. Would she consider adding in bone broth and meat stock based soups? They are full of readily absorbed nutrients, protein, and fat.

AVR1962 Collaborator
AVR1962
Posted
  • Author

Thanks for the responses, all wonderful thought!

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