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New Celiac 1; Non gluten-free Savvy Dietician 0

Jen Z

By Jen Z
in Coping with Celiac Disease

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Jen Z Rookie
Jen Z
Posted

Would have been nice if my doctor sent me to a dietician that had a background in celiac disease. Not sure how this happened but I think that on day 4 as a celiac, I may be more informed as to appropriate food options than he was as a clinician with years of experience in the dietary field. Cross contamination- no worries that's only for the super sensitive... and other such interesting statements. Thank goodness for the internet ;). I went to Trader Joe's this morning and bought a whole bag full of gluten-free foods. woohoo. Lunch sucked and is now in the trash.

Hoping dinner goes better :)

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YoloGx Rookie
YoloGx
Posted

Would have been nice if my doctor sent me to a dietician that had a background in celiac disease. Not sure how this happened but I think that on day 4 as a celiac, I may be more informed as to appropriate food options than he was as a clinician with years of experience in the dietary field. Cross contamination- no worries that's only for the super sensitive... and other such interesting statements. Thank goodness for the internet ;). I went to Trader Joe's this morning and bought a whole bag full of gluten-free foods. woohoo. Lunch sucked and is now in the trash.

Hoping dinner goes better :)

Am glad to hear you are beginning your journey on a positive, humorous note. It does help to keep up that amusement!

Just wanted to note that I would be careful of pre-made food from TJ's especially, though elsewhere too. Both my bf and I had to learn the hard way that a lot of TJ's supposedly gluten-free food is not actually completely gluten-free due to cross contamination from stray gluten. The gluten-free yeasted ":Food for LIfe" rice bread made elsewhere is OK but the rest?? Not so. Esp. avoid their waffles. Shared equipment with wheat products does not make it in my book. I would also be careful of Glutino products. For some of us their allowable parts per million of gluten just does not cut it. We both got migraines from the stuff--not for as long as some things, but very unpleasant nevertheless...

Its far better overall to cook things from scratch, whether your supplies are bought at TJ's, Whole Foods or Food Maxx....

It is a journey, complete with its many ups and downs. You have come to a good place to share, vent and learn. Welcome!

Bea

Lisa Mentor
Lisa
Posted

Yes, it's best in the beginning to eat naturally. Meat, fish, potatoes, rice, fresh veggies and fruit. It will help you heal better.

In order to appreciate gluten free fast foods, you need to forget what the real ones taste like. :P There is some good food out there, fear not!

It's an adjustment, but you'll get through it. Read through the "What are you cooking tonight" thread...it might give you some ideas. We are not deprived! :D

luvs2eat Collaborator
luvs2eat
Posted

By the time I got in touch w/ the hospital dietician (about a week after diagnosis) she told me I already knew way more than she did about celiac. That was 10 years ago. One can only hope they're more informed about celiac now!!

I've had some bad experiences w/ Trader Joe's gluten-free stuff... be careful.

Jen Z Rookie
Jen Z
Posted
  • Author

Thanks everyone for the advice on TJ foods. I am finding that just about anything in the prepared meals doesn't work for me. I was using them as well as other vegetarian meals over the summer before diagnosis and not able to eat most of them due to the high spice content. I can not have anything with chili pepper at all or my reflux flares horribly. Chili pepper is in almost as many foods as gluten it seems some days ;)

It really comes down to having to cook for myself. To quote my dear friend Eeyore- 'oh bother.'

Today I will cook with my beautiful new gluten-free pasta made with rice flour. If that doesn't cut it, I'll move on to the quinoa flour pasta. I have plan B ready :)

pricklypear1971 Community Regular
pricklypear1971
Posted

Yes, be careful at TJ's. So far the only luck I've had are the creme br

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    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
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      By knitty kitty · Posted

      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
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      By knitty kitty · Posted

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    • knitty kitty
      Blood Test for Celiac wheat type matters?

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