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Wanting To Talk To Someone

Guest kmmolina

By Guest kmmolina
in Introduce Yourself / Share Stuff

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Guest kmmolina
Guest kmmolina
Posted

This weekend I was in the Bakersfield, California area visting my folks. We went to Bakersfield to a place called Lassen's. It is a family owned store similar to Whole Foods. They had a lot of great gluten-free products. The best thing about that visit was that one of the employees is a Celiac. We were able to talk a bit. After I left I realized that this was the first time that I was able to talk face to face with someone else who is dealing with celiac disease. It felt GREAT!!! :D I've asked this before...anyone reading this from Fresno, CA??? :unsure:

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gf4life Enthusiast
gf4life
Posted

Hi Kathleen,

I am in your area. We talked on email a few times, but I lost my entire email address book, so I haven't contacted anyone in a while. Please email me and we can plan a time to get together.

god bless,

Mariann

Guest ahinton
Guest ahinton
Posted

Hi Kathleen,

I recently moved to Fresno from San Jose (just a bit south/west of Clovis). I am classified as "gluten-intolerant" rather than celiac because I have not been diagnosed via the biopsy. Regardless of the label, however, I need to be gluten-free to stay healthy. I was diagnosed almost 2 years ago, so have some experience with the disease and the emotional impact it can have on your life. I don't know much about Fresno yet, but would be happy to talk to you any time. Feel free to email. - Alicia

  • 5 months later...
DingoGirl Enthusiast
DingoGirl
Posted

Hey, I am here in Clovis, just diagnosed last week, feeling lonely and like I've entered a bizarre universe!! Thankfully, Trader Joe's saved my life.

This thread is from last summer, but if you guys check it again, let me know! We could meet for gluten-free coffee..... :rolleyes:

Susan

  • 5 months later...
Guest kmmolina
Guest kmmolina
Posted
Hey, I am here in Clovis, just diagnosed last week, feeling lonely and like I've entered a bizarre universe!! Thankfully, Trader Joe's saved my life.

This thread is from last summer, but if you guys check it again, let me know! We could meet for gluten-free coffee..... :rolleyes:

Susan

Hi Susan...I havn't been on this board in a long while. I just read your message from the beginning of this year. Wish I had read it earlier. I know what you mean by a bizarre universe. After 6 months ...how are you feeling...Kathleen

  • 9 months later...
Cindi Mundschau Newbie
Cindi Mundschau
Posted
This weekend I was in the Bakersfield, California area visting my folks. We went to Bakersfield to a place called Lassen's. It is a family owned store similar to Whole Foods. They had a lot of great gluten-free products. The best thing about that visit was that one of the employees is a Celiac. We were able to talk a bit. After I left I realized that this was the first time that I was able to talk face to face with someone else who is dealing with celiac disease. It felt GREAT!!! :D I've asked this before...anyone reading this from Fresno, CA??? :unsure:

Hi, I am pretty close to you, living in Bakersfield, going to Fresno often as my husband attends FSU. I love Lassen's as well. The owner there takes a real interest in Celiac's and Gluten intolerance as well as Wheat intol. Their Kinnikinik bread is THE BOMB.

  • 1 year later...
Paul Jackson Rookie
Paul Jackson
Posted

I would like to invite anyone who's in the Fresno, California area with celiac disease or gluten intolerance, and who's serious about adhering to a gluten-free diet, to consider joining Gluten Free Fresno, a Yahoo! group at

Open Original Shared Link.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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