Has Anyone Had Negative Aga But Positive Ttg/ema/dgp Values

[alicewa]

When I look online at others' blood test results, I often see that the tTG/EMA/DGP values are lower than that of AGA. Sometimes the tTG/EMA/DGP values are well within the normal range when AGA values are up in the 50s.

With other cases I've seen AGA values 1 or 2 digits lower than tTG values when they're both up in the 100s.

Is it possible to have had negative AGA but positive tTG/EMA/DGP values?

[cassP]

When I look online at others' blood test results, I often see that the tTG/EMA/DGP values are lower than that of AGA. Sometimes the tTG/EMA/DGP values are well within the normal range when AGA values are up in the 50s.

With other cases I've seen AGA values 1 or 2 digits lower than tTG values when they're both up in the 100s.

Is it possible to have had negative AGA but positive tTG/EMA/DGP values?

yes, i had absolutely ZERO AGA... a very LOW positive TTG... and a Positive EMA.. i had all the symptoms, and once i got my genetic test back (double DQ8), i decided to self diagnose. right after i went gluten free-> i got my first case of DH that lasted for 4 months.... so do not let the doctors fool u- this disease is never "textbook"

[alicewa]

yes, i had absolutely ZERO AGA... a very LOW positive TTG... and a Positive EMA.. i had all the symptoms, and once i got my genetic test back (double DQ8), i decided to self diagnose. right after i went gluten free-> i got my first case of DH that lasted for 4 months.... so do not let the doctors fool u- this disease is never "textbook"

What do you mean by "absolutely ZERO AGA"?

And also would the DQ8 genes possibly be a result of no AGA?

Which test did you use, was it EnteroLab or the blood test?

[cassP]

What do you mean by "absolutely ZERO AGA"?

And also would the DQ8 genes possibly be a result of no AGA?

Which test did you use, was it EnteroLab or the blood test?

my celiac panel was done by my PCP & Gi... blood. and zero- as in - i had NONE Antigliadin Antibodies.... none whatsoever.

oh wait- it might have been a 2 ??? but it was definitely negative.

im not sure what your DQ8 question means? the genes always come first- they would not be the result of my antibodies.

i DID do my genetics test thru Enterolab.. it was a cheek swab

[alicewa]

my celiac panel was done by my PCP & Gi... blood. and zero- as in - i had NONE Antigliadin Antibodies.... none whatsoever.

oh wait- it might have been a 2 ??? but it was definitely negative.

im not sure what your DQ8 question means? the genes always come first- they would not be the result of my antibodies.

i DID do my genetics test thru Enterolab.. it was a cheek swab

Correct me if I'm wrong but aren't the genes something you possess from birth to death? I was thinking you always will have and have had double DQ8.

[Roda]

My youngest son was negative on his IgA/IgG gliadin antibodies, but was positive on his IgA tTG. His value was 16 with 0-15 being negative. We didn't do a biopsy. He had terrible symptoms when we gluten challenged him.

[cassP]

Correct me if I'm wrong but aren't the genes something you possess from birth to death? I was thinking you always will have and have had double DQ8.

yes of course u have genes from birth to death, that's why i did not understand your question/comment about my DQ8s being a result of my antibodies...they would not be a result of anything other than what happened at conception