Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Exclusion Diet Symptoms


Catazonon

Recommended Posts

Catazonon Newbie

A recent blood work showed that my ferritin (iron stores) were at 6 ng/ml (abysmally low). As my diet is extremely healthy otherwise and packed with iron rich foods, my primary physician suggested a celiac panel to begin the search for a potential iron absorption issue (note: my B12 levels are within reference ranges, but on the lower side additionally). The panel returned within reference range, but on the higher side. An exclusion diet was suggested as my physician stated that many gluten intolerant individuals are self diagnosed through such a means. Additionally, it would make a good and thorough followup to confirm if the panel was truly negative.

For a week and a half I was on a strict gluten exclusion diet when I accidentally drank a large flavored coffee. Unbeknownst to me, some of the main cafe chains use barley's, etc, as flavor additives and such within certain coffees. It took about an hour of sipping through the coffee, but once done I felt rather strange shortly thereafter. My throat became very sore and swollen. I thought that I was coming down with a sudden cold and went home. Within an hour my tongue was tender and I had little bumps in my mouth, a swollen belly, and nausea. The next morning I was a bit off still, but by the early afternoon I was completely fine.

A few days later, I slipped again and had something with gluten (but luckily just a small amount before noticing). Within a few minutes I felt suddenly tired, foggy, and slightly queazy.

Oh, one more thing, I'm a small individual (120lbs) and in great shape, but my belly got a bit of a pudge on it over the past two years (strange, I thought, considering the exercise I partake in). Already, since the exclusion diet and not changing any other habits, the belly is flat and smooth once again - which suggests it was bloat, to me.

As I find this all rather interesting, I proffer the question: Has anyone else gone on an exclusion diet, having never really experienced too many noticeable issues with gluten, only to have stronger reactions shortly thereafter when eating gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Yes. Although I've yet to clearly ingest gluten again to really "know" that was it.

I'm sure it will happen, though....

mushroom Proficient

For even those with very noticeable symptoms from gluten, the reaction to it is often stronger after having been gluten free than it was previously. It is a common reaction.

Welcome to our community and let us know if there are other ways we can lhelp you. :)

Skylark Collaborator

As I find this all rather interesting, I proffer the question: Has anyone else gone on an exclusion diet, having never really experienced too many noticeable issues with gluten, only to have stronger reactions shortly thereafter when eating gluten?

It's common. We think it has to do with your immune system getting back to functioning normally after the constant assault from gluten. You react quickly and strongly to gluten instead of having the reaction suppressed. It's just a guess from some folks on the board because we see it happen so often.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,121
    • Most Online (within 30 mins)
      7,748

    jenr8er
    Newest Member
    jenr8er
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
    • trents
      I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
    • RMJ
      It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
    • captaincrab55
      Hi Colleen H,   I suffered with the pins and needles/burning feeling in my legs and feet for at least  6 years until my Nephrologist figured out that I had to go on a low salt diet.  He said my kidneys weren't strong enough to remove the salt.  The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option.  On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away.  Good Luck and hope this helps.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.