Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Most Annoying Thing About Celiac Is...

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

love2travel Mentor
love2travel
Posted

Although I love murder mysteries, I dislike being a detective when it comes to eating out. I have yet to attend a social function such as a church potluck or wedding since my diagnosis this year. My husband and I get invited out less often; in fact, rarely.

I do not like drawing attention to myself in restaurants when questioning the server and/or chef (though I always call ahead). But I still do it because I must. As I have severe chronic pain, I always carry around my lumbar support so I feel like a sickly chick with my celiac, lumbar support and having to get up and walk around several times during the course of dinner. :( I do not want it to be my identity from others' perspectives. There is far more to me than celiac disease!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 59
  • Created
  • Last Reply
beebs Enthusiast
beebs
Posted

Oh god - I am with you love2travel. I hate hate drawing attention to myself when eating out. I hate being "the gluten free one" hate, hate, hate!

Ellie84 Apprentice
Ellie84
Posted

Agree with Glutendude: it takes all the spontaniety out :( Also, I'm in constant fear of being glutened because my symptoms are so severe.

Glutin-Free Man Rookie
Glutin-Free Man
Posted

I do have another pet peeve actually.

I would like to go to the store and buy some gluten free cookies/bread/cereal/cake mix/snacks/frozen meals. Not gluten free, corn free, dairy free, egg free, organic, vegan, fat free, peanut free, seed free and fair trade.

It's not that any of those other things are bad but I get annoyed when all the "special diet/allergy" groups are lumped together into one really expensive and substandard product.

I like eggs and dairy and nuts and meat and fat in my food.

Same goes for cookbooks.

I get that. I used to feel the same way.

Now I'm gluten-free, AND dairy-free, AND nightshade-free, (and probably xanthum gum-free). I know people who are gluten-free, dairy-free, and corn-free.

Note that none of this is by choice.

It's actually nice to be able to eat some things they sell at the supermarket.

(although nightshade-free means I can't eat most of the gluten-free products that are on the shelves, as most of them contain potato starch.)

MenHen Rookie
MenHen
Posted

Traveling and spontaneity for sure. I have not done much long distance travel yet, but I am nervous about that. I hate all the planning and packing I have to do to go on short trips to like my dad's house.

I also do not like being the center of attention at all. All the questions and being singled out is not fun at all to me.

love2travel Mentor
love2travel
Posted

Oh god - I am with you love2travel. I hate hate drawing attention to myself when eating out. I hate being "the gluten free one" hate, hate, hate!

I know - it can be annoying and frustrating at times. And some servers are excellent at making me feel "normal" by discreetly offering house-made gluten-free breads for bread service, for example, without drawing unnecessary attention. Others make such a big deal out of it which attracts attention I do NOT want.

tennisman Contributor
tennisman
Posted

All the extra health problems :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfpirate Rookie
gfpirate
Posted

Hey there, I'm new to this site, but have been gluten-free for 8 months now:)

I'd have to say the most annoying thing about Celiac is everyone else's cluelessness! For some reason, it always bothers me when I go to a restaurant and the waitstaff has no idea what I'm talking about when I ask about gluten free options. But I know that this is a double standard, because before I was diagnosed, I wouldn't have known what gluten is either. :P However, I do believe it is important for waitstaff to know about common food allergies. I am servsfe certified myself, and throughout the course we learned about all the major allergies and how to avoid CC. I know it is more or less of a lie, but I usually just say I have wheat allergy, because it is easier than to describe Celiac disease. I've noticed that people tend to take allergies more seriously than a disease they've never heard of, even though it's probably the opposite!

curlyfries Contributor
curlyfries
Posted

Knowing that my Mom was never Diagnosed with Celiac...

Me too....sadly.

curlyfries Contributor
curlyfries
Posted

All the extra health problems :(

.....and the other food intolerances that appear.

....and having to prepare every meal. Before gluten free, I had reached a point in my life where I had decided that I was tired of cooking. Kids are grown....I'm just going to slack off. Oh well....I probably would've been eating a lot of processed food. I am eating much healthier this way.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    2. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    4. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
    5. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748
    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.