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Cd Child And Time At A Farm

jsmasudek

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jsmasudek Rookie
jsmasudek
Posted

Hi all. My 7 year old son has been diagnosed for 4 years. We follow a strict gluten free diet and alot of his original symtoms are gone. In fact he has been growing like a weed for the past year or so. However, he has continued all along to have frequent loose stools. In fact he rarely has what I would call a "normal looking" stool. But the last few weekd have been worse with lots of stomach pain and frequent loose stools. At first I thought he had a stomach virsus becuase other family members had. But now I am wondering about his day camp. He started there about 6 weeks ago. It is wonderful program but it is held on a really working farm. He takes all his own food, but I am wondering about the influence of feed grains and such. I read somewhere on this board that gluten can be inhaled. Is this true? I had never heard that before.

Thanks.

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Guest Lucy
Guest Lucy
Posted

You sure he isn't "trading" food with other kids? Just a thought.

scaredparent Apprentice
scaredparent
Posted

My son is 2 so he puts everything in his mouth but if they have grain out thier and he is touching it and not washing his hands good and then eating he might be geting a cross contamination. Its on his hands then touchs food and food goes into his mouth. We live across the street from our feed mill and 1 and 1/2 blocks from 2 wheat field and during harvest and when they clean out our mills my son can't be outside because the dust settles on his toy and he touches the toy, toys to the mouth and then he is sick. This is just a thought about what it could be. My son also has esosinophlic gastroniteris and so he is "allergic to everything". He has a major allergy to glutten. He was 15 mo when he was tested and so I don't think the test was correct. It showed that he didn't have celiac disease. We have been gluten-free since Feb 05 and he is doing very well. Hope this helps and good luck.

Roo Explorer
Roo
Posted

Jsmasudek,

I don't have an answer to your question about your son, but something you said made me curious about something.

My 13 year old son has been gluten-free since March 05. He is definately on the small side and we were told the celiac disease was probably slowing down his growth due to Malabsorption. His vili were completely flattend even though he was completely asymtomatic. Anyway since going gluten-free in March he has grown 1 3/4" which is great, I don't know what we were looking for but somehow we thought he was going to have a bigger growth spurt.

I just took him last week to have his blood tested for the second time since since March and his markers were completely untraceable. Which is great. His TTG when he started was over 100 (they didn't give the exact number), the next time it was 70 and now it was 4! But my question is you said your son is "growing like a weed" can you be more specific? How much did he grow in how fast a time? MY son has not gone through puberty yet so that is a good thing as he has more time to grow. I've always thought they say that 3" a year is the average so at his rate 2" in 6 months is about 4" in a year so that's pretty good. but he is only 4'11" so we have alot of catching up to do. Do you think that maybe he only grew 1 3/4" in the first 6 months because he was just first healing for a part of that and now that he is completely healed his growth could really start to pick up?

I know you might not have all the answers to this, but if anyone else wants to chime in, be my guest, all opinions would help.

Thanks,

Roo

jsmasudek Rookie
jsmasudek
Posted
  • Author

Roo,

Matthew has grown 2 inches in the past 5 months or so and 6 inches in the past 18months according to his Peds GI Doc. Not sure what is normal per se, but he sure seems to be bigger everyday and his doc was quite please with his progress.

:)

jsmasudek Rookie
jsmasudek
Posted
  • Author

[Lucy, I appreciate the the thought but I don't think this is it. He has had several bad accidents over the past few years and knows how sick he gets. Alot of the time he second guesses me as to wether he can eat someting or not. However, he is a kid and anything is possible!

emeraldskies Rookie
emeraldskies
Posted

Height isn't necessarily an indicator that everything is fine. When I was 11, I grew a ton in a year (went from a size 1 shoe to a size 7) and was the second tallest child in my class (and played basketball for many years as the starting center, usually the tallest player on the team). But I did this by devouring large amounts of food--an entire pizza plus three other courses for a meal. I would sometimes vomit all night long (from being sick). I stopped eating massive quantities when my growth spurt ended. I am still on the tall side for my gender. I'm not claiming this is anything similar to what is happening with your son--I'm just trying to show an example of significant growth occurring while having celiac disease. Some celiacs go through different "stages" of the disease depending on their age, so certain symptoms can disappear while others newly appear. Also, the severity of reactions can decrease after the intestines heal. If you believe he has been gluten free, then there has to be another explanation for the loose stools and stomach pain. By the way, I commend all parents who care enough about their children to examine their health problems carefully. This did not happen to me at all (in fact, I was completely brushed aside), so I am in a bad state now.

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Guest Lucy
Guest Lucy
Posted

I agree with the growth thing. My son has always been a "bigger" boy. Even before diagnosis of celiac. He too had damage of villi and was completely asymptomatic.

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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