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Eye Problems, Skin Itching


Booghead

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Booghead Contributor

Hey again.

For about 3 years I have gotten "lesions" or bumps at the corners of my eye and up on the sides of my nose. This is "normal" for me. I have both of them back since I have started gluten free. One is very itchy and both my eyes burn and itch and water non-stop. Now this symptom is new: The insides of my eyelids are white and the corners of my eyes (medical term Caruncle). I read this could be from anemia. I have been eating plenty of meat (including roast last night and ground beef for lunch). I have gotten my mothers cold which is why I'm not at school right now. Seems I can't catch a break. I'm going in for a half day. I was wondering if any of you ever had eye problems from your celiacs? Now to the thing I know is from celiacs. Skin itching. Both my shampoo and conditioner have wheat in them and my body lotion has wheat in it. Every time I wash my hair my hands itch like crazy. And all last night while I was trying to sleep my scalp was driving me crazy and my body was itching very bad. I shower before bed because I have to be to school too early for me to shower before school. We are getting new shampoos and lotions this next grocery trip (probably friday). I was just wondering how you guys deal with it? And if you guys think this is from my shampoo and lotion. Also I am very freaked out about the eye stuff as its never been so itchy. My eyes are usually (the past 2 weeks) pink and red. You can see the veins. Today I woke up and they are perfectly white. The eyelids white and everything. This is not usual for me. The bumps that I get are not as big as they have been but they aren't slowing down either. :P I went to an eye doctor for the bumps about 1 1/2 years ago. He tried to "milk" them and nothing came out. He wanted to go in to drain them but my tear ducts were so small he couldn't get in very far (he even used the tools they use on newborns and my tearducts were smaller). I ended up fainting (it's kinda my thing, I fainted both times I got an IV last week <_< ). He gave me eye drops and told me to put vaseline on them. They went away after 3 more weeks. I don't know if the eye drops helped or if they just went away. We always thought they were from allergies, because I get them in May and they last until near August (then they kinda scap over and go away, but not like a blood scap). And I get them around December. What do you guys think?


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Takala Enthusiast

I think you're a classic example of why I tell people to stop using lotion, soap and shampoo with wheat in it, if they are are getting drastic physical symptoms from it.

Okay, to get you to friday if you cannot go shopping sooner - which I would recommend.... :blink: At least get a bar of soap that doesn't have that &&^%$#@ garbage in it!

Take ANY and ALL towels and washcloths you have used with the old shampoos and lotions, and throw them in the laundry hamper or washing machine, and get new, clean ones.

Change your pillowcases to clean ones.

Find a box of baking soda. Mix a handful of this into a plastic cup of warm water. Wet your hair with water in the shower, rinsing it out thoroughly, then apply the baking soda/water mixture to it and massage it in gently. Now rinse it out really well, again. That's your shampoo for this week, it's called "co- rinsing" and it will get your hair just as clean without soap.

Towel dry hair with CLEAN towel.

For the conditioner. Take PURE apple cider vinegar. Mix 1 part vinegar with 7 parts water. Use this as a final rinse on hair, to detangle and make shinier. This may be also mixed up in a spray bottle and spritzed on clean hair afterwards. If you don't have pure apple cider vinegar, do not use a grain vinegar, try something like pure rice vinegar or pure wine vinegar, or a squeeze of lemon or lime juice in water.

If your hair is very curly, brittle, or dry. Take a tiny amount of a pure food oil that you are NOT allergic to, that you can eat without a problem, such as coconut oil, almond oil, olive oil, or pure palm oil shortening, and put a pea sized amount into your palm, rub hands lightly together to warm it, then rub hands thru hair to spread it out. (I am assuming that you don't have any pure shea butter in the house, if you can find some of this, it's also good for conditioning.)

Yes, some of these exotic oils are expensive, but a jar of them, used in this way, lasts for over a year. I have a 2 year old jar of shea butter that's only half gone, because I need to only scrape off a little bit with my fingernail to do my hair. For coconut oil, so you don't contaminate the jar, dip a clean spoon into it, then take the oil off the spoon. Coconut oil also works as a very good moisturizer, a little bit goes a LONG way on your skin.

Make a conscious effort to never touch your hands to your eyes during the day, unless your hands are clean and it is with a clean tissue. Try purchasing a new, fresh, uncontaminated bottle of moisturizing eye drops. To put the eye drops in, make SURE your hands are freshly washed, lay down on bed, rest bottle of drops sideways on the bridge of your nose with one hand, pull down eyelid gently by placing index finger on cheek muscles and pulling downward with other hand, and squeeze bottle to have eyedrop land in eye. THIS IS WHY YOU MUST HAVE SOAP WITHOUT ALLERGENS, to wash your hands with before doing things like touching your face.

YoloGx Rookie

Takala gave you very good advice.

I also suggest you take dandelion root capsules or tea for the hives. It will help your liver which in turn should help out your skin and eyes. Eyebright tea is also excellent, both to drink and to use as a compress. If you can handle cleavers tea, make some up too as a tea. It is an excellent purifier of the lymphatic system--which in turn helps out your eyes and skin as well as liver. Nettle tea is also quite excellent. Do not use herbal tinctures since they are usually made with grain alcohol, and that most often is at least cross contaminated with gluten, if not made with out and out glutenous grains.

I suggest you look up online how to improve your liver and gallbladder health. Often liver/gallbladder congestion increases one's chance of getting hives exponentially plus it can have a huge effect on the skin and eyes. Going off the gluten of course is key!! Though it is often not mentioned. I have a thread here on celiac.com you might want to watch concerning the liver/gallbladder connection too.

Eating less fat from meat products as well as eggs is very important initially for liver and gallbladder health (and again thus skin and eyes). Lentils are a good choice as a source of protein for now, as is plain nonfat organic yogurt -- unless you are sensitive to the lactose or casein. If it is just the lactose, you can make your own yogurt and ferment it for 24 hours--thus all the lactose will be fermented out of it. If you like it, you can make a lot at once. It is much cheaper and better tasting than store bought.

Eat more greens!! Fresh green smoothies are excellent. I often make mine in my blender with chopped up lettuce, celery and parsley and a bit of water.

Get a clean coffee grinder and grind a tablespoon of flax seed you then put in a tall glass of spring water. Do this once or twice a day. It helps you get needed Omega 3's (excellent for the eyes and skin) and pulls out toxins from the intestines. It is a great bulking agent. If you have constipation, the flax seed really helps. Plus take 1/2 teaspoon of magnesium citrate twice a day. I get the powder. Or get the capsules. Again make sure they are gluten free...

Also, start the day with a drink made from pure spring water and fresh lemon juice a half hour before you eat. This gets your liver and gallbladder more active and ready for breakfast and helps purify your system. Be sure to brush your teeth with baking soda. It is gluten free plus helps your body be less reactive as well as protects your teeth enamel from the lemon juice. In fact taking a teaspoon of baking soda in water then chased with more water might help against some of your hives (don't take it right after having the lemon juice however since your system will get all fizzy!!).

Trader Joe's tea tree oil soap is gluten free. Another good soap is the plain unscented Dove soap. In a pinch, I have at times used these products on my hair. I have also used gluten free dishwashing soap to wash my hair. I think Trader Joe's is OK. I used to use both the lavender and the orange kind. I don't use it now since I don't do well with the coconut products anymore, plus for me now fragrance free is better, so I avoid fragrances where I can. Instead what I now use is the plain, original green Palmolive dishwashing detergent. It has no coconut or fragrance. Speakiang of which, its best to use a laundry detergent that is fragrance free too.

A very good hair shampoo is Desert Essence Organics Fragrance Free Shampoo. It has coconut however it otherwise is quite good.

Taking epsom salt baths can be a lifesaver for your skin by the way. Start with a small amount of epsom salts and work your way up. I started with one handful. I now use 5. The two cups they recommend isn't necessary for the likes of me, and just might cause me nausea. Certainly I would get woozy. I recommend taking your bath at night. Helps for sleeping too as well as detoxification. Plus it gives your body often much needed absorbable sulpher as well as magnesium.

Hope some of this helps...

Bea

Di2011 Enthusiast

Don't forget to check you clothes washing detergent too. Use liquid instead of powder

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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