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Joints, Muscle Pain, Arthritis, Nerve Pain

AVR1962

By AVR1962
in Coping with Celiac Disease

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AVR1962 Collaborator
AVR1962
Posted

Ran across this and wanted to share, very good info!Open Original Shared Link

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rosetapper23 Explorer
rosetapper23
Posted

Yes, this is an excellent, informative piece! This is the one of the articles that helped me heal my tendons. Manganese is so important for many things, and, yet, nobody ever discusses it.

Thanks for the info--I'm sure many people will find this information useful. You might want to go back into your post, though, and edit the link ("info" needs to be deleted at the beginning of the link).

IrishHeart Veteran
IrishHeart
Posted

Yes, this is an excellent, informative piece! This is the one of the articles that helped me heal my tendons. Manganese is so important for many things, and, yet, nobody ever discusses it.

Thanks for the info--I'm sure many people will find this information useful. You might want to go back into your post, though, and edit the link ("info" needs to be deleted at the beginning of the link).

RoseT, my friend :) Among my many supps :rolleyes: , I take curaphen and a really good bone formula with MSM, cal/mag/D , glucosamine, etc... AND manganese and boron is in it as well.

How much--in your opinion-- is enough of these last two? Do I need to add more? Thanks, hon!

rosetapper23 Explorer
rosetapper23
Posted

IrishHeart,

I love your use of Emoticons--how do you place them in your posts? (Yes, I'm technologically challenged!)

Regarding manganese, I take 10 mg of chelated manganese daily, but I don't know if that's a perfect dose or not. Doctors don't seem to know much about it. As for boron, I know I should probably take it, but I'm taking sooooo many supplements already. I recently saw an ad for an interesting new bone supplement (provides collagen, too) that is produced by the same company that makes BioSil, and, depending on the cost, I'm thinking of adding that to the heaps of supplements I already take.

I sure wish this were more of an exact science....

IrishHeart Veteran
IrishHeart
Posted

IrishHeart,

I love your use of Emoticons--how do you place them in your posts? (Yes, I'm technologically challenged!)

Regarding manganese, I take 10 mg of chelated manganese daily, but I don't know if that's a perfect dose or not. Doctors don't seem to know much about it. As for boron, I know I should probably take it, but I'm taking sooooo many supplements already. I recently saw an ad for an interesting new bone supplement (provides collagen, too) that is produced by the same company that makes BioSil, and, depending on the cost, I'm thinking of adding that to the heaps of supplements I already take.

I sure wish this were more of an exact science....

When you hit reply, the little box of emoticons should be on the right of the box you are typing in? Ok, move your cursor over and click on the one you want ...okay watch me now, ready, moving my cursor over and click :) see, there it is! :lol: :lol: :lol:

There is no exact science because no one studies the impact of celiac on the muscles, joint, bones, tendons and tissues and therefore, cannot help us. There is no such thing as a "muscle doctor". Dr. Travell and Dr. Simon, who wrote the groundbreaking book on Myofascial Pain and Trigger Points said "Muscles are the orphan organ. No one studies them." :(

My new GI-- a very celiac-savvy dude-- asks ME what I am doing supplements-wise. :rolleyes: The only thing he suggested (once my Folate, B-12 and D deficiencies were corrected) was a good multivitamin. He said not to "over supp" as they will not absorb properly in guts like ours and will circulate in the body and cause toxicity. Not all of it is expelled. He also suspects gluten in supplements and meds is what keeps many celiacs from healing fully. (He's probably right).

We are winging it ourselves--those of us with osteoarthritis because dosing with prescription NSAIDs is the WORST thing we can do for the gut. I took all that crap before the celiac triggered in me and they never did a darn thing. I read everything I can about supplementing and "healing a leaky gut" with supplements, yet some people's theories are just that--theories. One thing I have read much about--that makes sense-- is N-A-G.( N-acetylglucosamine ) and I am using it in conjunction with a bone strengthening supplement and pray for it all to "kick in" as my intestines absorb more effectively. It has been written about in Pub Med articles as being effective for treating various inflammatory bowel diseases.

Let's face it. If we have been long unDXed -- our joints, bones, muscles, tendons, ligaments and tissues have been starved. I asked my doc about secondary hypocalcemia, hypoparathyroidism, osteomalacia and cachexia in celiac. I asked "Is this what happened to me? Because I lost MAJOR muscle mass and my entire body HURTS. I have no muscle tone

whatsoever. This is not "fibromaylgia" as I was told back in 2004 by a doctor who saw me for 5 minutes. :angry: That is BS.Did the prolonged malabsorption cause my loss of muscle mass and this severe bone pain? This burning nerve pain? Does the body leech calcium like that?"

He said quietly, "YES. Look, if the body is not getting the nutrients it needs or if there is not enough available calcium, the body will leech it right from the bones. Gluten toxicity affects every muscle, tissue, and tendon. "

Dr. Green's book states it affects the heart muscles as well.

In time, as the gut lining heals, that stops. (so the thinking goes :rolleyes: ) Fingers crossed!

No wonder we HURT so much. :(

AVR1962 Collaborator
AVR1962
Posted
  • Author

Guess I need to reread my post, my eyes read magnesium. So what is manganese, and did you find it helped?

IrishHeart Veteran
IrishHeart
Posted

Guess I need to reread my post, my eyes read magnesium. So what is manganese, and did you find it helped?

manganese explained and what a deficiency of it will cause:

Open Original Shared Link

I hope it will help me! Some of the best food sources are in brown rice, turmeric, green leafies like mustard greens and spinach, etc. But the article will tell you more.

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AVR1962 Collaborator
AVR1962
Posted
  • Author

manganese explained and what a deficiency of it will cause:

Open Original Shared Link

I hope it will help me! Some of the best food sources are in brown rice, turmeric, green leafies like mustard greens and spinach, etc. But the article will tell you more.

Thanks IrishHeart, read the link, soundslike some really good stuff. Think I will have to give it and the borron a try.

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