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Week 4 Of Gluten Free


Metoo

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Metoo Enthusiast

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.


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ciamarie Rookie

Yay you! :D It's been just over 4 weeks for me too, and the 2nd week for me of low iodine for DH. While trying to figure out what affected the DH using a food diary (and before I knew it meant celiac), I gave up most dairy a few months ago. I miss cheese the most. I actually was using 'smart balance' instead of butter for a few weeks, until I discovered that soy is not good. So now my only dairy is butter, and that I've been having at 50% with palm shortening the last couple of weeks. But as far as it affecting the DH, that's probably more to do with iodine than lactose digestion, perhaps.

After all of that, I have heard or read, that some of the damaged sections of intestine are responsible for producing the lactose enzyme, so that many of those with celiac disease can go back to consuming dairy after they've had a few months for healing. How many months that is, is variable I guess? I'm going to wait at least another month or 2 or 3 perhaps. At this point I'm used to it...

ravenwoodglass Mentor

I am just over 4 weeks gluten free!

I feel sooo much better! I can actually feel full again when eating, not nagging pain!

My stomach pain is gone, except for when I have ate gluten (only 2 times so far! Which I have found the quantity of glutening seems to affect the time and amount of stomach pain, as well as nausea the next couple of days).

My ezcema on my right hand (pomphoxly) is completely GONE! I actually have all the cracks and lines back on my palm! After 6 months of dealing with it, and being given the highest steroid cream they could and claiming it was stress related...It was clearly gluten related!

I am now able to stay up past 10pm! I wake up and feel awake!

I guess you guys were right...even though I couldn't get a formal diagnosis, and frankly I don't care if I do at this point. i feel 100% better gluten free. There is no way I am going back! I just wish I could convince my mom and sister who both have autoimmune problems, and my sister has the same stomach pain to go gluten free.

The only thing that bums me out is that I need to stop eating dairy. I realized after week 2 I should...but I dont' want to. I already feel its difficult to eat gluten free and takes concentration and planning....not eating Dairy is going to be very difficult for me! Very. But the only time I am not feeling great now is with dairy (gas, indigestion, nasuea the next morning). I just love milk, cheese, yogurt and ice cream. I might try and go lactose free first.

Glad to hear you are feeling so much better. Many of us can go back to dairy after we have fully healed. If you want to try just going lactose free first hard cheeses like Cheddar and yogurt may be tolerated. If you are going to go with a dairy replacement do avoid Rice Dream as it may say gluten free but it is processed using barley and many of us have reacted.

RiceGuy Collaborator

So glad you're feeling and doing so well gluten-free!

As for the dairy, there are many products out there to choose from, so you actually do not have to give up milk, cheese, yogurt or ice cream. Just the ones made from dairy. There's coconut milk, almond milk, rice milk, cashew milk, hemp milk, etc. Soy milk is also a common dairy-free milk alternative, though soy is controversial and is a top allergen.

Coconut yogurt and ice cream is fabulous stuff as well. Look for products from Open Original Shared Link and/or Open Original Shared Link.

There are non-dairy cheeses too, and even recipes so you can make your own in a blender.

love2travel Mentor

What happy news! Speaking of dairy intolerance, I grew intolerant and was strictly off dairy for about four months. Then I tasted some cheese one day without thinking and nothing happened. So, a few days later I tried some more. Then a few days later again, more. I am taking it easy but so far so good!

Thanks for posting. :)

GlutenFreeNewB Rookie

That's great news! It's been about 4 weeks for me too, and it has been well worth the effort. I've been using almond milk and I don't have any issues with that. I started using that back in February though, so I'm used to it. I get the unsweetened one. Keep up the good work!

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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