Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tingling/hurting Feet And Legs


abqrock

Recommended Posts

abqrock Newbie

My 5-year old son has celiac disease and DH. He complains fairly often that his feet or leg and sometimes his hands tingle to the point of discomfort. I first thought that his feet or leg at the time and just fallen asleep by the way he described the feeling. His senses seems to be more acute the most people. He needs to wear earmuffs when we go to the movies. My sister and I both have a very strong sense of smell (not always a good thing) so I think it just runs in the family. I started keeping track of when he complained about the tingling feeling and noticed that his body was not in an awkward position that might cause them to loose circulation. Someone said vitamin B deficient but the Doctor said he would have to be in pretty bad shape for that and she said it was just growing pains. Since my faith in western doctors in limited, I thought I would check here.

Does anyone know if this could be connected to celiac disease or DH?

Tas


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

to answer your question, yes it can be related... look into Peripheral Neuropathy related to Celiac... I'm actually experiencing something very much like this at the moment. Numbness and tingling in both arms and legs and feet and hands... it's very disconcerting to say the least!

Rachel--24 Collaborator

I get tingling/numbness in my face, hands, arms and feet.

ravenwoodglass Mentor
My 5-year old son has celiac disease and DH. He complains fairly often that his feet or leg and sometimes his hands tingle to the point of discomfort. I first thought that his feet or leg at the time and just fallen asleep by the way he described the feeling. His senses seems to be more acute the most people. He needs to wear earmuffs when we go to the movies. My sister and I both have a very strong sense of smell (not always a good thing) so I think it just runs in the family. I started keeping track of when he complained about the tingling feeling and noticed that his body was not in an awkward position that might cause them to loose circulation. Someone said vitamin B deficient but the Doctor said he would have to be in pretty bad shape for that and she said it was just growing pains. Since my faith in western doctors in limited, I thought I would check here. 

Does anyone know if this could be connected to celiac disease or DH?

Tas

<{POST_SNAPBACK}>

This can definately be connected. Before diagnosis this was a great problem for me. One thing that helped was sublingual B12. You should be able to stop the B12 after he has been gluten-free for awhile and his gut has had a chance to heal. Of course ask the doctor first but there shouldn't be any contraindications for this. Make sure the b12 is sublingual that way you know it is getting into his system. Of course make sure it is gluten-free. Also about the senses this is not your imagination, my son was so skin and noise sensitive that he would only wear sweats for over 5 years and music at any level physically hurt him. My daughter and I have the same thing but not as severe. Maybe it is something that is related to our genetic difference. Good luck and thank goodness this was recognized early our families delayed diagnoses resulted in unresolvable problems.

julie5914 Contributor

I'm surprised no one has mentioned Raynaud's yet. I was recently diagnosed. It is also autoimmune and is tied to the same gene as Celiac. It is also related to lupus and other rheumatic diseases. Basically, the immune system overreacts to changes in temperature or emotional upset and sends all the blood away from the extremeties and towards the internal organs as a survival reflux.

My doctor simply put me on calcium channel blockers to relax my blood vessels and tame the reaction. It doesn't completely resolve symptoms, but it helps. I am also being tested for lupus because of the strong connection.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,958
    • Most Online (within 30 mins)
      7,748

    Nancy Denhart
    Newest Member
    Nancy Denhart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      Thanks. I believe I can trace my gluten and milk allergies to specific traumas in my life. I've had some quite severe traumas over my lifetime. Mostly in my history I was so out of sorts surviving that diagnosing gluten sensitivity/allergy/celiac was just not on the table for such a survival mode existence. Vitamin D makes sense too. Now I take very good care of myself, I have a rock solid stability and I do take 1,500 IU of D daily. It's more obvious to me now what's causing problems and so most of the time I only eat protein and vegetables. I cheat sometimes. I end up paying for it though. 
    • Heatherisle
      Thanks everyone for replying. Actually made a mistake when stating the lab range for results, should have been 0.0-7.0 not 0.7 u/ml. She was 19 u/ml. I’m afraid science bamboozles me especially trying to understand all the IgA’s and other bits!!!!Regular blood results like full blood count etc not so much!!!!
    • John767
      DiGiornos gluten free pizza at one point was  made from a dough derived of wheat starch...yet they were able to call it gluten free probably because it came in at under 20ppm for gluten.  Apparently the recipe was changed and the pizza not longer contains a wheat starch derived crust.  As for the Heinz dressing, it could be an issue with cross contamination with wheat barley and or rye somewhere during the production process.  If you read how Frito-Lays (on their website) designates items gluten free, you will understand the variances in the lengths companies go through in deciding when to put on a gluten free label and when not--Frito-Lays is pretty solid.  Also being in Canada, they may follow a common international rule of less than 20ppm of gluten is all that is required to be labeled gluten free regardless of the grains used to manufacture the product (common in Europe, Central, and South America)...it took a couple of really rough mornings after consuming some Dura Damm (labeled as gluten free outside the USA) for me to realize that it was a gluten reduced beer. Same with Mahou Beer which actually says in Spanish "suitable for celiacs", unfortunately it is not suitable for this celiac and of course the following day was really rough as well...really take the time to read the ingredients because had I read the ingredients of  Mahou's "suitable for celiacs" "sin gluten" beer I would have noticed that it was made from cabada (Spanish for barley)...hope this helps...        
    • Wheatwacked
      Here is an article that explains test results and what they mean.  Testing for Celiac Disease is so elusive, any positive, unless a lab error false positive, is evident of Celiac.  It is easier to be in denial, tnan committing to gluten free.  Like not believing a pregnancy test.  Denial will lead to more suffering. Are You Confused About Your Celiac Disease Lab Results?
    • Wheatwacked
      I believe that what triggers acute Celiac Disease is vitamin D deficiency.  When we have stress it depletes our already low vitamin D, (40% to 60% of us in the industrial world are deficient) allowing the Celiac genes and the immune system to run amuck.  At 93 ng/ml 25(OH)D blood level, the last time I accidentally glutened myself, all that I got was a runny nose and burning eyes three days later.  It took 8 years, taking 10,000 IU a day to get to this blood level. Vitamin D Is Not as Toxic as Was Once Thought Possible Role of Vitamin D in Celiac Disease Onset So true.  If I am working on something I'm enjoying, I put off eating because after I eat I mostly feel worse.  Not so much anymore, but it's been a life long struggle with the anorexia.  M&M Peanuts is a good go-to snack.  For the dairy Kosher Dill pickles, brine fermented, not vinegar quick pickles (vinegar kills the bacteria), will repopulate your gut with Lactobacillus that exretes lactase, the reason adults are not lactose intolerant.  Also, grassfed milk has less omega 6 fatty acids than commercial grain fed dairy. Grassfed omega 6:3 ratio is 1:1; Organic milk 3:1; Commercial Dairy 5:1.  Omega 6 causes inflammation.  The typical western diet is 14:1.  Wheat flour is 22:1.  A good reason not to eat gluten.  Here is a list: High omega-3/low omega-6 I find it interesting that the new diagnosis of Non Celiac Gluten Sensitivity was created 10 years after Norman Borlaug, "the father of the Green Revolution" and our modern grain crops, received the Nobel Peace Prize in 1970.  
×
×
  • Create New...