Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Starbucks Saga Continues...

Monklady123

By Monklady123
in Coping with Celiac Disease

Recommended Posts

Monklady123 Collaborator
Monklady123
Posted

Don't know if you remember my question last week about the Starbucks peppermint mocha lattes. I had that awful gluteny headache last week after I had the skinny one. I called the company and they had no idea of the ingredients. (which is odd, but that would be a different post.)

Anyway, so I'm sitting in Starbucks right now, finishing my peppermint mocha. I looked at both ingredients lists and didn't see anything that had gluten. So I decided to try it one more time. The girl assured me that whatever it's made in was a clean container, etc. (although of course I understand how easy it is to cc something).

Then, it suddenly occurred to me that last week I had the SKINNY one, but I just blanked out on that and had the regular calorie-laden one tonight. So I just went and asked to see the bottle of sugar-free peppermint. On that list is "maltodextrin" which is not in the regular peppermint syrup. I thought that maltodextrin was safe, despite its name. The only other ingredient not in the regular syrup is sucralose. I didn't think I normally react to artificial sweeteners... I have a Diet Coke several times a week and never have any kind of reaction.

The only other options might be the "natural flavors" or whatever it was called. Or vanillan?

Anyway, I just thought I'd try this experiment since I don't have to work tomorrow. But now I'm annoyed at myself that I forgot I ordered the skinny one last week. So I may have to repeat the whole thing next week, if I don't have a reaction tomorrow morning. :P (I only do Starbucks on Thursdays while my dd is in a two-hour dance class...we live just too far for me to drop her off and then drive home, so I come here.)

I feel like a detective. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Some people have a reaction to sucralose. It isn't in regular diet coke. There is a special diet coke with a yellow stripe that has sucralose. Sucralose is Splenda.

Monklady123 Collaborator
Monklady123
Posted
  • Author

Some people have a reaction to sucralose. It isn't in regular diet coke. There is a special diet coke with a yellow stripe that has sucralose. Sucralose is Splenda.

Well...I'll see if I have any reaction from this not-skinny latte. Then I'll try the skinny one next week. Or find something else with sucralose in it. I never use artificial sweeteners of any kind, except for that diet coke (which is actually about half and half, half diet and half regular cherry coke).

We will see... sure did taste good though. B)

Di2011 Enthusiast
Di2011
Posted

Also read about maltodextrin:

Open Original Shared Link

tarnalberry Community Regular
tarnalberry
Posted

Sucralose, trade named Splenda, does not sit well with everyone, and isnot the artificial sweetener used in diet coke.

Good luck figuring out your answer!

Monklady123 Collaborator
Monklady123
Posted
  • Author

Well I woke up this morning feeling perfectly fine. So either it was the skinny latte that I got the first time, or just some cc. sigh... wish I hadn't fogotten that I got the skinny version! <_<

Anyone know off-hand what else uses sucralose? I might try that little experiment and see what happens.

Off to google sucralose. :)

edited to add: I just googled "foods with sucralose" and discovered that some of the low-cal yogurts have it. Dannon I think was one. So that will be an easy experiment since I'll only have to buy one small container.

kareng Grand Master
kareng
Posted

Well I woke up this morning feeling perfectly fine. So either it was the skinny latte that I got the first time, or just some cc. sigh... wish I hadn't fogotten that I got the skinny version! <_<

Anyone know off-hand what else uses sucralose? I might try that little experiment and see what happens.

Off to google sucralose. :)

edited to add: I just googled "foods with sucralose" and discovered that some of the low-cal yogurts have it. Dannon I think was one. So that will be an easy experiment since I'll only have to buy one small container.

Snitch a pack of Splenda at Starbucks?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Monklady123 Collaborator
Monklady123
Posted
  • Author

Snitch a pack of Splenda at Starbucks?

Lol...didn't think of that. :P

Monklady123 Collaborator
Monklady123
Posted
  • Author

Okay, I take it back about feeling fine. Over the course of this morning I've developed that awful gluten headache. :ph34r: I'm 100% positive it wasn't anything I ate yesterday because it was all made here at home. Oatmeal (gluten free, and I eat it all the time so I know it's fine) with milk, an apple, a Glutino cereal bar, a salad (eaten at work but brought from home in my own container and with my own salad dressing), hummos, carrots, chicken, baked potato, green beans. All cooked by me.

So it had to be my peppermint mocha latte. :( And it wasn't the splenda since I had the high-calorie regular one last night.

Now, is it the mocha? or the peppermint syrup. I'm betting on the syrup because the ingredients list on the mocha stuff was very short. Plus, I'm sure I've had mocha there before with no effects.

Anyway, I'm done with Starbucks I think. Going to the grocery store today and I'll be looking for peppermint syrup. :)

kareng Grand Master
kareng
Posted

Look up Coffeemate. They might have a peppermint flavor.

Open Original Shared Link

I saw this on a TV show for hot cocoa. Might work for coffee, too. Pulverize a candy cane really fine. Put that in the coffee.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.