Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could The Milky Way Ingredients Have Been Misleading?


Neighbor808

Recommended Posts

Neighbor808 Newbie

Hello all! I am still quite new to this whole diet, being introdcued only before Thankksgiving. From the start of this diet, I've seen good imporvement, which makes me happy. Anyways, I just got a Milky Way bar a few minutes ago, read up online a bit, read the ingredients (I'm already pretty knowledgeable of the good and bad of ingredients, but not wholly familiar), and it seemed okay. I saw no wheat ingredients, but I DID see an ingredient listed as "Malted Barley". Now, I knew that most things "Matled" cannot be good news. What lead me to believe it's gluten-free status was printed on the bottom: the allergy information, "MAY CONTAIN PEANUTS". Now, if wheat or gluten was in that product, it would've also listed "CONTAINS WHEAT INGREDIENTS", right? Since it said nothing about wheat, and was made by Mars (which I heard was very good about giving you correct allergy information and ingredients on their products), I thought that it must be okay. The doctor described me as having "Latent Celiac Disease", I've felt slightly better after the diet, and my mornings have been much less agonizing. I don't exactly get "glutened" when I eat products with gluten, but I do experience very slight discomfot and burping, which I've been having after eating this. Should I saty away from these for good, or am I okay? My body can't exactly give me the asnwers....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Hello and welcome. I'm glad you are feeling better. You are correct that Mars is very good about labeling and they used the word "barley" to warn you.

We can NEVER eat wheat, rye, or barley, and you want to avoid oats unless they state they have been tested for gluten. "Contains wheat ingredients" only covers wheat. If you see a rye or barley ingredient like malted barley anywhere in the ingredients, the food is not safe to eat. You cannot eat any more Milky Way Bars, or other candies with malt, barley malt, or malted barley.

There is an unsafe ingredient list here. You might want to print it out and keep a copy until you are more used to the label reading. It's a pain!

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

Skylark Collaborator

Oh, and avoid oats until you are 100% well. At that point you can cautiously try adding some gluten-free oats and see if you can tolerate them. Some celiacs react to the gluten-like protein in oats as badly as if it were wheat.

AMom2010 Explorer

Milky way dark bars are gluten free!!

psawyer Proficient

Welcome to the board, and welcome to the process of learning to read labels.

The Milky Way bar contains gluten (barley malt), and is not safe for us.

Gluten, defined in terms of celiac disease, is a protein found in three grains: wheat, rye and barley. Oats are generally contaminated with wheat, and a minority of us also react to pure oats.

The list of top allergens that must be disclosed includes wheat, but not the other three.

"Contains" and "May Contain" are different animals, too.

In the US, if a top-eight allergen is present, it must be listed by its common name, EITHER in the ingredients list OR in a contains statement. Only allergens may be listed in the contains statement. The eight allergens under the federal Food Allergen Labeling and Consumer Protection Act (FALCPA) are: wheat, soy, milk, peanuts, eggs, tree nuts, fish, and crustacean shellfish. Since barley and rye are not on that list, they will never appear in a "contains" statement. (In Canada, the list also includes sulfites and sesame seeds.)

If there is a "contains" statement, it must list every allergen present. But, again, barley and rye are NOT "allergens" as defined by the label regulations.

In this example, barley was listed in the ingredients by name. As someone new to this, I understand your confusion. But the label is not misleading, and conforms to the rules. You can not rely solely on the "Contains" statement to identify gluten. You'll know about wheat, but not barley or rye.

Rye is not something you need to worry about. It is in very few foods, and those are confined to selected baked goods where you would expect it, like rye bread and pumpernickel. In my experience, it is always clearly listed on the label.

"May contain" means that the ingredient is not intentionally present, but despite Good Manufacturing Practices and other precautions, it is not possible to be sure that trace contamination does not occur. Like the previous discussion, only ingredients legally described as allergens will be listed.

And, last, Open Original Shared Link If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." This makes shopping MUCH easier.

Edit: Three other posts were made while I was composing this.

Skylark Collaborator

Great explanation, Peter!

Neighbor808 Newbie

Thank you very, very much Skylark and psawyer, I appreciate the help and explanation tremendously! I didn't have a reaction to the Milky Way bar when I ate it before the post but I do now understand that it is harmful, and to look out for anything with "Barley". But I have one more question, say that something just had malt as an ingredient or did not have something like Barley, Wheat, Rye, etc. at the end but it was "Malted" something else. Is this Malt ingredient harmful, as well? I think I remember hearing something about Malt ingredients not being safe. I appreciate it! And also to AMom2010, I'm very happy to hear that the midnight edition is gluten free. Milky Way is my favorite and although I'm a little upset with having to part with the original, the midnight not being quite as good, I'm still happy that I can enjoy one Milky Way product.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Malt is unsafe.

Please read this list! You really need to start to learn where gluten hides.

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

Neighbor808 Newbie

Malt is unsafe.

Please read this list! You really need to start to learn where gluten hides.

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

Okay, thank you very much. I will check out that list, also.

  • 2 weeks later...
heatherjane Contributor

The "Simply Caramel" version of Milky Way is also gluten free. It's closer to the original than Midnight. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,949
    • Most Online (within 30 mins)
      7,748

    Stephanie94
    Newest Member
    Stephanie94
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.