Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Electric Shock Sensations...didn't Know It's Link


carecare

Recommended Posts

carecare Enthusiast

A little background. Husband has been gluten free for 2 yrs after 17+ yrs of digestive issues...so he's undiagnosed...just took the matter into his own hands finally and went gluten free with success. Me and 3 of my kids are getting tested for celiac (bloodwork + endoscopies) as we all show symptoms and when we were gluten free we all felt better and symptomless. The only daughter I have not pursued an endoscopy for I now think I should have went ahead and had her tested too. I guess I will do that soon though.

The reason for my post is a few years ago she was having shock sensations that would travel into her hands...then it started being the roof of her mouth too. That went on for about 3 yrs and at this same time she was having joint pain and stiffness. Always got worse after an illness like a cold or other virus and would be bad for about a month following. She was seeing a rhuematologist who never did diagnose her with anything but neuralgia..I guess a general term for joint pain and stiffness. She did have a positive antinuclear antigen blood test..and at one point I remember he dr calling me after a round of blood work to have her make sure and take b12 and folic acid and they wanted to redo her bloodwork up. Something was off but it was corrected with the vitamins I guess. During that time I even brought her to see a neurologist to figure out what those shock sensations she was having. He looked her over...did some tests on her and by the end of the visit said she was fine and sent us on our way. He made us feel like what she was experiencing wasn't anything so we didn't continue on trying to figure out what was causing it. So I'd say the last 3 yrs she's been joint pain free and hasn't had those shocking sensations at all either. What we are dealing with currently for the past week is a pain on her side that is what I feel stemming from her appendix. Bloodwork was fine though and ultrasound was clear. Though I read that often times ultrasounds are not good for determining if an appendix is inflamed. I don't think she has acute appendicitis but my guess is she has one of the other appendicitis conditions...like chronic appendicis and it bugs me the doctor just brushed us off again...blaming her condition on constipation when my daughter is not constipated. In fact after dr's orders for taking miralax every day for a week or longer she decided it was too unpleasant after day two and felt she was not dealing with constipation because as she explained...she is not constipated...LOL

So, what I am surprised to read this evening is this article about peripheral neuropathy and it's link to celiac disease in some cases. I never knew what my daughter was experiencing...or actually what condition it was. I had that "ah ha" moment when I read this "Patients with celiac disease tended to experience small fiber neuropathy, which causes severe burning, stinging, and electric shock type pains." Open Original Shared Link This was from an article on peripheral neuropathy associated with celiac disease.

What bothers me most is none of the doctors she seen for having those electric shock symptoms seemed to ever take her seriously. I'm really ticked with the doctors right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Well, as they say, "don't get mad, get even." ;)

Yes, nerve damage = pins and needles/electrical charge sensation shooting down your arms to hands. Like "burners" that football players can get. This can also be caused or made worse by cervical spinal stenosis and bone spurs. It's all nutrient related as the body doesn't get what it needs from food, because the gut lining is damaged.... supplement, supplement, supplement ! And stop eating gluten if that is the cause.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.