Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Always Feel Bad When Glutened


Chad Sines

Recommended Posts

Chad Sines Rising Star

I will pre-assume the scolding, chastising, yelling, and spanking for eating gluten and freely admit you are right. I plead "male" stupidity and stubbornness. But I have a real question.

Do you always feel bad when you eat gluten. Ok. Here is what bad Chad did. I had a cheeseburger with bun yesterday, one for dinner today, and for lunch I had Taco Bell. I might have accidentally eaten a chocolate cookie too. There were some healthy things in between, but you can see that there was a large amount of gluten.

I had a little lower GI issues, sort of, but nothing major. Kinda like what a lot of Taco Bell people might have. No nausea or anything. No heartburn, no symptoms.

Ok, so already fully accepting that I was a dumba.. and that just because you do not feel it damage can be done, how normal is it to have no noticeable ill effects after a significant gluten experience that lasted two days?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katrala Contributor

You may not get visibly ill.

If you have celiac disease the symptoms vary and it doesn't necessarily mean that you're going to be running to the bathroom just from walking into a Panera.

Some people have no outward symptoms (damage is still being done, but the symptoms aren't immediately noticeable.)

Some people have immediate, vicious symptoms that are debilitating.

And some people fall somewhere in between these two.

rosetapper23 Explorer

If you keep dancing with the devil, you may discover that--out of the blue--you suddenly won't be able to absorb iron. You'll end up having to get weekly intravenous iron, since you'll be unable to absorb pills or even the liquid form. Or you'll be walking down the street when all of a sudden you fracture a bone in your foot. You stumble...and, by golly, a bone in the OTHER foot fractures. This is because your tendons became floppy from nutritional deficiencies, and they couldn't support your bones. Or you suddenly notice that more hair can found found in your hairbrush...and hair is clogging your shower drain. You then realize that you're beginning to go bald....and it's because of nutritional deficiencies.

I don't want to scare you, but the above scenario is very plausible. All three things happened to me. However, I wised up and stopped torturing my body with the occasional gluteny temptation. I've been extremely careful during the past six years--no more cheating for me! You're still young and able to protect your body from further damage--please don't feel as though you need to tempt fate. Sometimes we're able to heal our intestinal lining...and sometimes the damage is permanent. During my first year of going gluten free, I noticed that I didn't get terribly ill when I ate gluten (perhaps my body was "used" to it), but after that first year, the damage after each "accident" became more frightening. You've been given an opportunity to be healthy for the rest of your life--don't waste it.

pricklypear1971 Community Regular

Bad Chad...

No, I doubt I always get sick from gluten or break out in a rash...because I have been sick very few times and only broken out once and I seriously doubt I've really been THAT lucky not to get glutened in the last 5 and a half months.

That said, we went out Friday night and I ate from a gluten-free menu...and they didn't leave out the shrimp and I'm unsure if they left out the gluten...I felt like I was coming down with a flu the next day and am still off today. I'll never know, and that Bad Chad, is sometimes how it rolls.

If my "new" gluten symptom is feeling like I've got the flu then it sucks. But at least I didn't crap down my leg. Yet.

I'll probably get that symptom for Christmas NEXT year.

Oh, and another thing...if you're going to eat gluten can you please go to a good French bakery and eat a sinful chocolate croissant and stay OUT OF TACO BELL???

Chad Sines Rising Star

That is interesting. I always find it interesting when you notice something that does not seem to fit and then you find it is common in others, ie waxing and waning celiac, no symptoms sometimes and near death the other.

But yep. back on the wagon. I good boy again starting....now.

Ellie84 Apprentice

In my case I won't touch a crumb because my symptoms are so severe. But two friends of mine hardly have any symptoms when they've made a mistake or "cheated". However, one of them got an endoscopy lately and still had Marsh 2 after 1 year on the diet. Even if you don't feel a thing, your body is getting ruined. If you're a celiac, taking your diet seriously is a matter of good or bad health. There's really no food in the world that's great enough to endanger your health for.

Katrala Contributor

Oh, and another thing...if you're going to eat gluten can you please go to a good French bakery and eat a sinful chocolate croissant and stay OUT OF TACO BELL???

I second this!

:D

Taco Bell is like cheating on cheating!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

I second this!

:D

Taco Bell is like cheating on cheating!

I third this. Yuck.

I sometimes wonder if my symptoms weren't so severe if I'd be tempted to cheat...but since it's flu symptoms, crippling arthritis, brain fog and a lovely all over blistery rash, I'm never really tempted. But OMG...at the very least I'd do a nice chicago style pizza. Taco Bell. Ewww.

Chad Sines Rising Star

i did not eat croissants before I was celiac. They are just snobby pieces of bread. I always imagined them talking in a french accent :)

pricklypear1971 Community Regular

Yes, they whisper sweet nothings as they land on your hips...

love2travel Mentor

i did not eat croissants before I was celiac. They are just snobby pieces of bread. I always imagined them talking in a french accent :)

Then we will not bother explaining the virtues of great buttery croissants. That is one thing I miss most. :angry: Sure, you can make croissants, but they definitely do not resemble the real thing.

I did not have any outward symptoms when eating gluten, either. I loved gluten! My motivator to stay on the path is to remember what gluten does to my gut and the long-term implications and potential diseases. I think once you get into the habit it will help. Even though I did not get sick I have never ever cheated even once and I think that strictness right from the beginning did it for me. Cheating is not an option. So, for someone as passionate about food as I am, if I can do it, you certainly can. :) Think of Taco Bell as a poison factory or radiation plant or something. :D

Katrala Contributor

You also have to remember that "feeling bad" is different for everyone.

Especially the "when" part.

You may not have a reaction from the gluten itself (as in, it hits your stomach and you have an immediate outward reaction.) It may be issues caused by malabsorption, etc. Those issues can be the type to build up over time - the more damage, the more problems associated with that damage.

Also, some people have different thresholds regarding "feeling bad." I know people that will stay home from work with a mild headache and others who would try to go to work with an IV in their arm.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.