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Need Help! Gluten Withdraw? Is That Whats Going On?

ScarlettsMommy

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ScarlettsMommy Explorer
ScarlettsMommy
Posted

This is I think day 4 of my gluten-free diet and last night before going to bed and this morning I feel jittery and also kind of shortness of breath. Just doesnt feel right like something is sitting on my chest. Should I be concerned? I made an appt tonight with my dr but they cant see me until 7:20. All the dr's are busy so this is going to be with a physicians assistant. I doubt he will be that knowledgeable about Celiac anyway. Gluten withdraw or something else??

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saintmaybe Collaborator
saintmaybe
Posted

You might be iron deficient. Do you have severe fatigue? Sleeping a lot? Ask for hemoglobin, hematocrit, and a full iron panel, plus CBC. Post your numbers and let us know!

ScarlettsMommy Explorer
ScarlettsMommy
Posted
  • Author

would the iron deficiancy be caused from not eating gluten? Ive never felt like this before until now

saintmaybe Collaborator
saintmaybe
Posted

It usually adds up over time. In my iron deficiency, it wasn't unmasked until I went gluten free and I felt better but not well, after my gluten detox. My anxiety was through the roof my first week, which wore off. But my iron deficiency showed up two or three months later when i was still sleeping like I was in a coma, 10-12 hrs per day.

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    • Mettedkny
      Searching for the source - anyone have problems with Crunchmaster crackers?

      By Mettedkny · Posted

      Thank you so much for your validation. I completely agree with you that the crackers COULD be the culprit even with very small trace amounts (less than 20ppm) and accumulating over time - I am at the point where I am about to request that my son gets retested to make sure that my "control subject" is still testing perfectly lol. I have a meeting with my celiac disease doc tomorrow and will run the crackers by him to see if he is willing to retest in a few weeks. I have not had any of them for the past 3 weeks so far, so fingers crossed, we can retest and hopefully find out if it is them. And no - I have been scouring EVERYTHING to make sure nothing else has changed. Only use gluten-free lip products and toothpaste so not there either (but very good suggestion). Thank you for validating me. I feel like many are just saying "you are not being gluten-free enough - but I do have a perfect 16 year track record that proves otherwise - so has to be something sneaky.
    • Mettedkny
      Searching for the source - anyone have problems with Crunchmaster crackers?

      By Mettedkny · Posted

      OMG thank you so much for validating me in my "craziness" of being on the hunt for the culprit in my case. "Unfortunately" I do not eat any of the foods you mention, but have stopped eating the crackers that are labeled certified gluten-free to see if they might be the problem. I did NOT know about chicken being injected with gluten liquid - that is horrible!  Hoping my doc will agree to retest after I have been off the crackers for a while. My biggest mystery is - why do I not have ANY symptoms of being cross contaminated or glutened? There is no damage (thank godness) to my villi, and normally I will get canker sores the moment something is even the slightest bit cross contaminated... the hunt continues and I will follow up once I find the answer. Glad you found yours! 
    • Winnie-Ther-Pooh
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      By Winnie-Ther-Pooh · Posted

      Fascinating, thanks! So Canada (at least in 2017) had changed the criteria for detection in oat products from 20 to 5ppm. If the regulation still stands in 2025 then that would mean that any product sold in Canada that contains oats and is claimed to be gluten-free must (theoretically) test less than 5ppm... 
    • maryannlove
      Searching for the source - anyone have problems with Crunchmaster crackers?

      By maryannlove · Posted

      I recently had same problem and posted on here.  My bloodwork also unexpectedly skyrocketed.  When doc sent online comment saying something like "you need to be eating gluten-free food" I was almost in tears because had been very careful.  Like you, went on a mission.  Narrowed mine down to Yasso yogurt mint chocolate chip bars (formerly had Certified Gluten Free label on package but learned now only on small boxes but not large boxes) or BJ's only mixed nuts without "may be processed on equipment that also processes ....wheat" allergy warning and said in big letters "A GLUTEN FREE FOOD."  I went off both and bloodwork drastically improved.  Still don't know if culprit one or both (will add one back in and test again).  Throwing out in case you're eating either of these.  I live in Pittsburgh and during appointment my gastro told me some U. of Pittsburgh students were having same problem.  They finally narrowed it down to liquid injected into chicken they were eating.  (Apparently to make it moist and/or plump.)  Understand how frustratitng it is when you're making all the sacrifices to be careful.  
    • gerbilgirl
      Celiac.com has tons of free gluten-free recipes

      By gerbilgirl · Posted

      Thanks for the reminder!
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