Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Getting Irritating Worse... Not Better


lorka150

Recommended Posts

lorka150 Collaborator

These symptoms seem to be worse AFTER being gluten-free for about three and a half weeks. Is this normal?

- fatigue

- going poop more often (once a day, if that, up to two or three... Always very loose)

- sore throat (never, ever got this before)

- weakness

- stomach pains after eating some things, especially spicy stuff

- depression (maybe that isn't worse.. maybe that is just the same)

Does that make sense that I'm still feeling those, and things are getting a little worse at first? Anyone else experience this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
These symptoms seem to be worse AFTER being gluten-free for about three and a half weeks. Is this normal?

- fatigue

- going poop more often (once a day, if that, up to two or three... Always very loose)

- sore throat (never, ever got this before)

- weakness

- stomach pains after eating some things, especially spicy stuff

- depression (maybe that isn't worse.. maybe that is just the same)

Does that make sense that I'm still feeling those, and things are getting a little worse at first? Anyone else experience this?

<{POST_SNAPBACK}>

Did you replace the gluten-containing foods in your diet with some other food item you don't tolerate well? Is there a particular ingredient (or a few) that is now much more prevalent in your diet? What else has changed since you removed gluten?

lorka150 Collaborator

Hi Tiffany,

Nothing else has changed - I've been really careful. Could my body just be trying to figure itself out? I've pooed regular twice today, plus two more times of pure runny, non-diarreah but very loose stools. (Sorry if that's gross, but hey, it happened.)

I assume this whole thing just takes awhile for my body to get used to. Could that be it? This is so frustrating!

tarnalberry Community Regular
Hi Tiffany,

Nothing else has changed - I've been really careful. Could my body just be trying to figure itself out? I've pooed regular twice today, plus two more times of pure runny, non-diarreah but very loose stools. (Sorry if that's gross, but hey, it happened.)

I assume this whole thing just takes awhile for my body to get used to. Could that be it? This is so frustrating!

<{POST_SNAPBACK}>

Well, something has to have changed, or you're eating too few calories! :-) If you stopped eating wheat, and to make up for the food you weren't having, started eating more fruits, or more vegetables, or more rice, or more meat, or more fat, or started vitamins, or tried *any* new product you hadn't had before, there's a change that could be part of the problem. If there was something else that you're sensitive to that you're now eating more of (like corn and rice, which are pretty common substitutions for wheat in our diets), you may be getting worse symptoms.

The other thing that comes to mind is that you've got a virus going around that is causing part of this.

Rachel--24 Collaborator

Lorka150,

When I first changed my diet (didn't know gluten was a problem at this point just knew everything I ate made me sick) there were some big changes my body went through. First off when I went from eating regular food to only eating meat, veggies and fish I felt alot worse for a little over a week. I don't know if it was the drastic change in my diet or withdrawl or what. I was pretty sick when I made the dietary changes and thought I might die if I didn't do something. Well I started having stomach pain, loose stools, nausea, shakiness and everything I ate bothered me. It sort of calmed down as each day passed though. Maybe your body is just adjusting to a new diet or maybe like Tiffany said you're eating something that doesn't agree with you. It took a little while for my bm's to start looking normal again also...it didn't happen overnight. I remember after about 1 month on the diet I had diarreah all of a sudden and it lasted for a whole week. Looking back I think it had to have been something I was eating or a supplement I was taking. I had started making my own yogurt around that time and that was probably the cause of the diarreah.

lorka150 Collaborator

So I am confused... It's NOT just my body readjusting? I added no new foods, just took the ones I wasn't allowed away. I am still consuming the average calories I did before.

I thought my body was just adjusting. Now I am so confused! :(

lorka150 Collaborator

I forgot to add, however, that some symptoms have significantly gotten better. Nausea after eating and extreme bloating have both gotten a lot better. So has dizzyness.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
I forgot to add, however, that some symptoms have significantly gotten better. Nausea after eating and extreme bloating have both gotten a lot better. So has dizzyness.

<{POST_SNAPBACK}>

So it sounds like you have experienced improvement. Your body is probably still recovering...its only been 3 weeks so you'll have good days...not so good days. Also you could just be coming down with something causing you to be tired and have a sore throat. It could be unrelated to celiac disease. Are you eating dairy? I used to get sore throats after eating dairy...I haven't tried eating dairy again..other than some yogurt which gave me a bad reaction :angry:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    3. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.