Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Help Please


BamBam

Recommended Posts

BamBam Community Regular

I'm in a rutt right now, I need some help with meals. I am not eating well right now and am having lots of bathroom problems again, I'm either too regular or no movement at all. The fiber supplements are too much for my system. Could you help me out by giving me some basic meal ideas that are not too hard on the system?

BamBam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



higgins Newbie

I would be tempted to disregard the self-diagnosis, and get it done for real. Even the professionals don't get it right half the time. It still took 3 GP's and 1 Specialist roughly 7 years to diagnose my condition correctly. This is too serious a condition to mess with, or to leave in the hands of an amateur - you. There could be associated cancers, and other complications, sensitivities, etc. Don't guess with this stuff; it's too complicated and too risky. Also, the more-progressed the condition at the time of diagnosis, the more serious and prolonged are the effects of gluten on the system. Mine is such that I have to be scoped "up and down" every three months looking for cancers; it aint pretty. Check it out by a pro.

One issue I overlook often is the financial cost to many of you on this forum. Being Canadian, I just walk into the hospital, get it done and walk out...no cost. Unfortunately, folks in the U.S. get stung with a lot of the costs, and I have noticed that the associated expense can deter someone from obtaining a definitive diagnosis. That is really unfortunate, as this condition is so insidious it should never be tolerated any longer than necessary, and it is terrible to consider that the cost of diagnostic procedures may stand in the way of peoples' health.

We eat very simply around here..."meat and potatoes" but NO spices, sauces, preparations, unless carefully checked with the manufacturers (or with others on this forum) Consult the lists and talk with people; it is a monumental task, but we all go through it. That is another reason why I suggest getting a real diagnosis: why make all the necessary sacrifices if you don't have to, and a real examination will resolve the matter. Good luck.

ianm Apprentice

Another thing people in The Great White North don't realize is that in the US a celiac diagnosis means "pre-existing condition." Insurance companies can use your official diagnosis as an excuse to deny you coverage or charge very high premiums. One of the reasons why I won't get an official diagnoses.

Try to keep your meals simple. Fruit, veggies, simply prepared meats. Buckwheat and flaxseed meal is great also. Cheese and yogurt if you can tolerate dairy. Nuts also. That is what I eat and rarely have gut problems.

BamBam Community Regular

Thank you for your response. I've basically been gluten free for the couple of years with a few slip ups here and there. I know when I eat gluten, I feel absolutely horrible. I don't want to eat gluten for 3-6 months in order to get a positive test. There are several of us here that are self diagnosed. Every now and then I get to feeling sorry for myself and this is where I go, to bug you guys, some of you are probably sick of my "whining."

In the past I've had several colonoscopies and other scopes from top to bottom. They have never found anything wrong with me. I took the "gluten challenge" and found that my body does better without gluten.

If I eat gluten I get horrible abdominal pain, diarrhea, gas, constipation, my anxieties sky rocket and my depression is worse than usual.

You are lucky to live in Canada and be able to have these tests done as needed.

nettiebeads Apprentice

[if I eat gluten I get horrible abdominal pain, diarrhea, gas, constipation, my anxieties sky rocket and my depression is worse than usual.

The emotional reactions you are having makes me suspect Celiac. My depression is horrible when I've accidentally ingested gluten, even though I'm on zoloft for life (disthymia). Have you played with the gluten-free flours? Potato flour is heavy and dry, rice is grainy, soy makes a very light baked item. Last night I got ambitious and made zucchini muffins (tasted great, texture off), oven fried chicken nuggets, and zucchini fritters. All gluten-free! Gorged myself. I make chicken alfredo using store bought cheese sauce (I think Ragu - it's gluten-free) with pre-cooked chicken and serve it over spaghetti squash. I've used the gluten-free pantry pizza mix. Passible, I just load it with everything so you don't notice the crust as much. Lots of veggies -I love potatoes - OreIda makes a steak fry without seasoning. Then my husband seasons them and oven bakes them - just like seasoned steak fries w/o gluten!

Oh, and fruit - canned or fresh helps fight the constipation.

Jnkmnky Collaborator

I don't agree that you NEED an official dx. Of course, the more celiac disease gets into the mainstream, the more people will try to benefit financially from it. Pressuring celiacs into believing they NEED to purchase something they're selling.

Anyway, while this forum is free, so is the advice and you can take it or leave it. Here are some meal ideas since that WAS your question.

Split pea soup. Make with peas, onions, carrots, salt pepper, bacon or ham chopped.

Stews/soups. Get a gluten-free broth or boullion to start it with.

Manwich sloppy joe sauce with chopped beef on a Kinnikinnick Pizza crust *my kids like it like that. Call it sloppy pizzas and make a disaster of the kitchen.

Chebe hot pockets. Fill with any combination of gluten-free ingredients regular hot pockets are filled with.

Spinach salad. Yum We have that every week.

Chicken salad with chopped grapes, apples, walnuts, salt and pepper. On a salad or on a sandwich. My husband eats this till his nearly exploding, it's so good.

Chicken salad sandwich (plain chk salad this time) on Kinnikinnick bread...but sprinkle CURRY into it. YUM. My favorite, and curry is an anti-inflammatory!

Hope these staples in my house offer you some varied taste sensations!

BamBam Community Regular

What happened was I ate several cereal bars that contain soy flour. A member on the boards warned me that soy flour causes her horrible constipation. Well, you know, the not me game. Well, I ate these cereal bars and I was fine most of the time before them. Well, everything came to a complete stand still and I had to talk Milk of Mag last night - two doses to get things moving, and moving they are. So I am basically looking for good food items that will calm my irritated system. I like all of the salad ideas on the previous thread - some of them look yummy. Thanks for all the above ideas, I really do appreciate it.

A new recipe I found and looks good is to take two or three medium zucchini, pierce them and microwave for 3-5 minutes, when they are cool cut in half and discard the seeds, then scoop most of the pulp out. Then in a pan combine 1/2 pound burger and 1/2 pound ground sausage, onions and peppers if you desire, 1 cup spaghetti sauce and mix together. Scoop this into the empty zucchini cavaties.

Then you take 1 cup milk, 2 T gluten-free flour, 2 T margarine and cook on the stove and add whatever kind of cheese you like - about 1/2 cup to a cup, depending on what you are using. Mix the cheese into the hot mixture and then spoon over the burger mix. Bake in oven at 350 for 30 minutes.

Sounds yummy to me, and shouldn't be too hard on my system.

BAM BAM


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Matilda Enthusiast

Hi Bam Bam,

I've been eating Think Organic fruit bars, cashew and something or other , which have nothing in them but fruit and nuts, breakfast and lunch if I don't have any other bright ideas. I get them at my local Fred Meyer. Dinner is mostly grilled meat or fish with marinade. Otherwise I've really enjoyed using my Wholefoods shop cook book, which isn't all gluten free, but because I haven't cooked using it before I'm not missing the gluten at all. I hope you manage to get out of your food rut. You've been doing this much longer than me, I'm sorry if this is cheeky advice.

Hi Higgins,

Your advice to everyone to get a proper diagnosis is very sensible advice but difficut to achieve. Some people can't afford all the testing, and maybe the tests are still inadequate. A lot of people here can't afford to wait the 11 years or so it takes on average to get an official diagnosis. I was sorry to read on another thread that you've had to give up your career recently. It's the fear of that kind of outcome that has made me, for one, take matters into my own hands.

Best wishes,

Matilda

jenvan Collaborator

bambam-

stick with it girl!! here are some random ideas below. e-mail me again if you like--i have some good recipes. also--i love www.allrecipes.com you can search by category, ingredient and people write in and rate the recipes. ck them out-i'm sure you can get ideas there too.

Thai Kitchen--lots of gluten-free thai type dishes...really good. You just add the meat you want, noodles, sauce etc are included. Open Original Shared Link

Amy's makes quite a few frozen dinners and a cheese pizza that are gluten-free. Amy's also makes quite a few gluten-free canned soups that are good too. You can see their products and get their gluten-free list here. Open Original Shared Link

If you have a Trader Joe's by you-they have several gluten-free frozen stirfries and dinners. Just ck the gluten-free list on the website--east or west coast. They also have chicken sausage that is awesome!

Gluten free pantry makes some good skillet meals. Just add meat or beans. We really like the stroganoff meal. Open Original Shared Link free.com/glu/showprod.cfm...jectGroup_ID=74

Have you tried Tinkyada's gluten-free pasta yet? It is great and you can make a ton of quick meals with it.

Dinty Moore beef and chicken stew are gluten-free--just throw them in a pot to heat up.

Other quick meal ideas--tacos and taco salads are made gluten-free easy, rice and beans, lasagna, pasta dishes, stirfries, hamburger/fries (love Alexia fries-gluten-free!), rice/quinoa pilafs (there are a lot of quick/precooked rices out now), chips/salsa, we eat "breakfast for dinner" sometimes--gluten-free pancakes (Pamela's mix is our favorite) w/ meat/veggie omelettes, frozen veggies are usually gluten-free and easy to prepare as a side, baked beans--(most of Bush's are gluten-free), sandwiches with gluten-free bread and miracle whip etc, Delmix has some gluten-free taquitos as well as costco beef taquitos, Dinty Moore microwave meals, Hormel Tamales, Lundberg Rice Sensations, Perdue Short Cuts, Sam's Club beef Taquitos...

skbird Contributor

Cabbage soup is supposed to be really healing to the gut. Chop an onion up, sauté it in some olive oil, then add a chopped head of cabbage (get a big pot! or just use half a cabbage) and then add some salt and pepper, sauté some (just for a minute or two, to kind of mix it all around in the pan) and then add enough water to cover the cabbage, or half water and half chicken broth (I use Open Original Shared Link). Simmer for an hour or so. Also, you can shred or slice up carrots and toss them in for more flavor/nutrients, and celery as well. This makes a pretty tasty soup that can be stored and eaten for days, if needed.

Stephanie

2old4 Rookie

bambam-

A quick and easy recipe I got from a Bette Hagman book:

Meat-stuffed Potatoes

1 lb lean ground beef

Onion salt

4 fist-sized baking potatoes

Salt & Pepper to taste

4 tablespoons marg or sour cream

1/2 to 3/4 cup grated Cheddar cheese

2 to 3 green onions, sliced thin

Brown meat in skillet, add onion salt, turn heat to low.

Wash potatoes & puncture w/knife. Microwave on high 4 to 5 min per potato

Let sit for 4 min to continue cooking.

To serve, cut X on the tops of potatoes & squeeze open. Add salt & pepper & margarine. Spoon in the ho meat sauce & sprinkle on cheese. Microwave for 30 seconds to melt cheese, top with green onions. Yummy, I also try other variations, like salsa with the meat, or Manwich sauce. You can use whatever and get a full meal easily & quickly.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.