Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd's Over 50yrs.


Lisa

Recommended Posts

Lisa Mentor

I would like to talk to someone my age or around. I am a little frustrated with the message board. I have asked many question and few were answered. Also, I have learned alot just monitoring the sight. That has been invaluable. Seems to be all good people with a common interest.

I would like to correspond with someone (THROUGH E-MAIL) on a one-to-one basis. I think that that would be very helpful to me and vise-versa. If anyone would be willing to correspond to me on that basis, would be wonderful.

I am 50yrs old, have two daughters 21 and 24. Eastern European decent. My youngest has digestive issues that may be related to Celiac.

If anyone has the time and willingness to be a "pen-pal" regarding Celiac, please contact my e-mail address, as registered on the members list, please contact me.

Thank you for your time and hope to hear from some of you. -- Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Hi Lisa,

I'm not over 50, so don't meet your qualifications :) but if you are looking for more one-on-one stuff, you may want to investigate local celiac groups. The folks affiliated with them are generally very helpful, especially for local info, and will talk with you on the phone and answer any questions you have. At least, that has been my experience.

As for posting online, it does take a while to get the hang of. It helps to be very specific in your subject line, and also ask a clear question in the text, so that people have something specific to respond to, and know if they have anything valuable to offer.

Best wishes,

Merika

chronic Newbie

Hi LIsa, I sm Way over 50 but would be happy to correspond with you. I have multiple problems, such as chronic fatigue and severe allergies. Also 40 years of trying to get medical help along with homeopathic procedures has given me many experiences but no cure.

Chroic :blink:

elwood Newbie

:)

I would like to talk to someone my age or around.  I am a little frustrated with the message board.  I have asked many question and few were answered.  Also, I have learned alot just monitoring the sight.  That has been invaluable.  Seems to be all good people with a common interest.

I get mixed up with this message board. I think I have posted twice. I've also learned alot just reading the threads.

elwood Newbie
:)

<{POST_SNAPBACK}>

Hi Lisa,

I will be glad to chat and email with you. I am 55 and have one daughter who married this year and I have my first grandson on the way. :lol:

I believe I have been celiac for years (my entire life probably?). My Mother was celiac, and I just did not want to admit that I was as well. Just in denial and so depressed all those years!

So now I have gone Gluten free. Just one week now.

I will email you soon,

Ellyn

Claire Collaborator
Hi LIsa, I sm Way over 50 but would be happy to correspond with you.  I have multiple problems, such as chronic fatigue and severe allergies.  Also 40 years of trying to get medical help along with homeopathic procedures has given me many experiences but no cure.

Chroic :blink:

<{POST_SNAPBACK}>

Saw your response and had to :lol: I do have been struggling for a long time - about 30 + years to get to the cause of multiple health issues. It took 10 years just to find out that I had Type II, Delayed Food Reactions - to a very lenthy list of foods. Though that helped I still had a long way to go. Right now I am only semi-diagnosed - have a serious neurologival disorder that may or may not be primary. I think not. I think when all is said and done it will secondary to Celiac. My fatigue level grew more and more intolerable over the past two years. Recently I added CoQ10 to my supplement list. After just about two months I can say there is a noticeable improvement. I won't run any races but the energy level has definitely improved. You might want to try it. Give it at least two months trial - anything less wouldn't be a fair test for the product. Claire :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,872
    • Most Online (within 30 mins)
      7,748

    terrymouse
    Newest Member
    terrymouse
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ehb
      @knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily 
    • Alibu
      I just had my endoscopy the other day and the doctor took 12 samples because he said if we're going to find something we're going to find it today LOL. But when he got down there, he said everything looked good. So I have it in my head again that it's going to be negative because everyone I've heard of who had a positive biopsy had their endoscopies where the doctor was like yep, I can see the damage. My tissues all look great apparently. So if they come back negative, I'm not sure where to go from here. Could it still be a non-celiac gluten sensitivity even with my blood work? I thought NCGS didn't show up on blood tests. Is it possible that the biopsy still comes back positive even if everything looked healthy on endoscope? I had it done at a big hospital in the state, so I would think they'd have the kind of equipment where they'd be able to see it well. I even have pictures in my report and they don't seem to have the damage that others have seen.
    • trents
      That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we frequently have posters on this forum who were silent celiacs for years and were diagnosed incidentally with celiac disease when their docs were checking for other things. They developed other medical problems such as anemia or vitamin and mineral deficiencies, neurological deficits, Hashimodo's thyroid, osteoporois, etc. - non GI symptoms - but their docs recognized those problems as often connected to celiac disease and had them checked for celiac disease, both blood antibody testing and biopsy, and found damage. A couple of years ago the Mayo Clinic did a large study involving over 300 people. They started with those officially diagnosed with celiac disease and also tested their first degree relatives. They found that almost 50% of  the first degree relatives tested positive for celiac disease and many or most were totally caught by surprise because they were largely asymptomatic. Their diagnosis was confirmed by biopsy. I really don't have anything more to say. You have some decisions to make.
    • knitty kitty
      Blood tests are affected by what you've had to eat in the previous day or two and any vitamin supplements you've taken in the past month or two.   If you have been taking vitamins before the time of the blood test, the vitamins supplements could mask a deficiency.  So get the tests before supplementing, or allow eight to twelve weeks for the supplements to wear off.    The thing with blood tests is that they measure what is in the blood, not what is stored inside organs and tissues where vitamins are actually utilized, and may miss subclinical deficiencies.  In times of shortages, the brain can order cells to release their stored vitamins into the blood stream in order to keep important organs like the brain and heart functioning.   Overall, getting blood tests for deficiencies is a good idea if it's available to you.  If you're deficient in any of the B vitamins, take a B Complex with all the B's in it.  The eight B vitamins work with one another like an orchestra.  Supplementing just one can throw the others off.  
    • Shining My Light
      Thank you @trents! This is all sound advice. In 2022 I did have a biopsy done with the EGD: SPECIMEN: (A) DUODENUM, BIOPSY (B) GASTRIC BIOPSY(C) GASTRIC POLYP, BIOPSY(D) ESOPHAGUS BIOPSY (E) ESOPHAGUS BIOPSY This would have been when the candida was found.  If I understand right it’s the duodenum they take a biopsy of. Nothing was mentioned about Villous atrophy however they were not looking for that particularly.    Something that stumps me is the correlation between symptoms and damage. One seems to equal the other. I have yet to see damage with “silent celiac”. Not saying it doesn’t exist.  Also super curious on other symptoms that would improve based on a gluten free diet. Obviously silent celiac wouldn’t have an improvement in GI symptoms but that is all I have read any data for. No one saying things like my anxiety went away or my headaches and joint pain are gone.    I see why it would be a “gluten challenge” since eating 4-6 slices of bread daily is a challenge to do. 😳 I would replace that with cake 🍰😉 
×
×
  • Create New...