Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Real?


egallag

Recommended Posts

egallag Rookie

I was diagnosed about a week ago and have been gluten free since. Is it odd that I was happy to get the diagnosis? I mean it has been years of suffering, to finally have an answer and an answer that is something I can control, was such a relief I did not even think about what it would take to change my life (well not right away anyway).

So I am working on changing my life, went out immediately after my appointment and bought some Gluten free to get started. I started researching before getting my results, just in case. I ordered a couple of Gluten free cookbooks and a shopping guide (I should get them today!).

Here is the "Is it real?" part. I feel like a new person already, it is amazing! I addition to Gluten free, I have started taking Lactaid for my Lactose intolerance (I could not bear not having gluten or dairy, so I figure stop one and put up a defense for the other for now). I have also added a daily dose of DanActive.

I have not had an "episode" in 3 days. It is such an odd sensation to not feel dread when I eat that I keep waiting to feel awful and when I don't I am inclined to want to dance :). And since I am not totally exhausted all of the time, I just might dance.

Don't get me wrong, I am completely freaked out by the whole thing and found myself day dreaming about Perogies and Pizza. But when I eat something and that inevitable pain and discomfort does not follow, it is great.

That's all for now, I just had to get that out there. Thanks for listening, I am happy to have a place to come to talk about things and ask the questions that I am sure will come.

Beth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeNewB Rookie

Congratulations on feeling better already! It is an awesome feeling to finally figure out what helps. Be very careful eating "gluten free" processed foods at first. Sometimes it takes a while before your body is ready for anything processed. Try eating meat, vegetables and rice at first; foods that you prepare yourself. Try adding in new foods slowly - one at a time while checking for a reaction to each one. After a couple of months, it gets much easier and you start to feel like a "normal" person again. Keep on dancing!

Skylark Collaborator

Yes, you can stop pinching yourself. It's real. :)

Nicolevh Newbie

;Oh you are not alone! I was diagnosed about a month ago. My switching to totally gluten-free has been slow (I went on a trip just a couple of days after my dx and I did not adhere to a strictly gluten-free diet). But, I have been gluten-free for about a week now, and I do notice a huge difference. I'm not running for the bathroom or the couch immediately after eating. Tonight I tried Tinkayada's (sp?) penne with mozzarella, tomato, and basil and it was amazing. I was prepared for it to taste different but I thought it tasted exactly the same (and I'm Italian and grew up with the homemade stuff so that's a pretty high review). A slightly different texture but It was way better than I ever thought it could be. In it's defense I used olive oil so it just made the pasta a little slippery and hard to get it to stay on the fork- flavor wise I thought it was spot on. With the exception of just a few items I found everything I needed/wanted at my local Safeway so that makes it even better. I did have some frustrating moments on my first major shopping trip and had to bypass some items to wait until I could come home and research if they were gluten-free but that's just part of the learning curve. My tip: take a printout of what isn't gluten-free AND what is. I had the "what isn't" sheet but then when something wasn't on it I got confused. Was it not on there because it is gluten-free or because the list was from a few years ago? Ex: soy lecithin wasn't on my 'do not eat list' but was on the gluten-free one. I wish I had both with me. Overall, like you, I am so happy to have a dx that is something I can control and that I am already feeling the results from!

  • 4 weeks later...
Simona19 Collaborator

I

Don't get me wrong, I am completely freaked out by the whole thing and found myself day dreaming about Perogies and Pizza.

I can help with this part: https://www.celiac.com/forums/topic/89355-gluten-free-potato-pierogi-with-sour-cream-and-roasted-onion/page__pid__769296#entry769296

Aly1 Contributor

Oh man, why did someone say pierogies. I love pierogies. I am now having a major craving!

Skylark Collaborator

Oh man, why did someone say pierogies. I love pierogies. I am now having a major craving!

Yeah, and my chance of pulling off that recipe is slim. I had enough trouble making stuff like that with gluten dough! I can just picture dough sticking to my rolling pin and the uneven dough and the tears and all the filling coming out in the pot while I boil them. :lol: :lol: :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BrittLoves2Run Apprentice

I am on day 7 of Gluten free and I haven't had ONE joint ache, almost zero nausea, or a headache in almost a week. I can hardly believe it. If i feel this decent already, I can't wait to see how I feel in a few months.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.