Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here Horrible Left Abdominal Pain


matt6965

Recommended Posts

matt6965 Newbie

Trying to find out if I have Celiacs. Thanks for checking this out.

I started having gagging attacks in 2006 daily I went to a gluten free diet the daily gagging attacks went away. if I order gluten free pizza from a pizza chain or eat cheese I get these horrible pain attacks in the upper left stomach every 6 months.

1. the pain attacks starts as an gurgling stomach with water noise, in my stomach followed by water diarrhea, followed by horrible pain in the left upper stomach, the pain is so bad that bending over on the couch helps relax the pain. my stomach sour during these attacks. (staying in bed laying on the left side also reduces pain.

2. before these episodes hit I notice pain under the right shoulder blade 1-3 weeks forehand., I am extremely nauseous 1-3 weeks before the attacks. the attacks happen.

3. the night before the pain attacks I have cheese or creamy cheese dairy products or cake or pizza.

4. I have a burning in the upper left stomach all the time.

5. after the horrible left side pain calms down my whole left stomach in sore with a raw feeling, the pain can be felt in the left side of back.

6. I can not eat Citrus Fruit, soy, wheat dairy because it causes theses pain attacks to come on.

the doctors have done many test for gallbladder, liver everything comes back good, all the cat-scans and xray's are good.,

The doctor has put me on maalox and famotidine 20mg twice a day to help resolve the stomach pain and burning, the famotidine has help stop the burning and pain. I am going to have an Endoscopy with the G.I Doc.

The main Problem is

horrible Burning pain in upper left abdominal quad

does anyone have any ideas where to start ruling out what the problem is, Something is wrong causing pain, but blood test, diagnostic imaging are all good.

Thanks

Matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Have you been tested for celiac while you were still eating gluten? You have to be eating a regular gluten filled diet for the tests to be accurate.

You mention you notice the pain when eating gluten, soy and dairy. It sounds like you may be intoleant of all of them if they bring on the pain and D.

If you want to be tested for celiac then you need to be eating gluten at least 3 times a day for about 3 months before testing. If this is something you can't do because of the reaction you do have your answer and you need to be very strict with avoiding all three of those items that you are reacting to.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748

    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.