-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
-
- trents replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7High DGP-A with normal IGA
Sorry, I think I got you mixed up with another poster. -
- rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7High DGP-A with normal IGA
I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in. -
- trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
GI DX celiac despite neg serology and no biopsy
I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet. -
- RMJ replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5GI DX celiac despite neg serology and no biopsy
It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.5k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Celiac.com Sponsor (A21):
-
Who's Online (See full list)
-
Upcoming Events
-
Posts
-
By knitty kitty · Posted
Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals. Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain. Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high. Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself? The AIP diet helps lower inflammation and promotes intestinal healing. The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in. The low histamine AIP diet will help reduce inflammation further. Histamine is released as part of the immune response in celiac disease. Foods also contain various amounts of histamine or provoke histamine release. Lowering the amount of histamine from foods helps. The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial. Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease. Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants. Processed foods like sausages and gluten-free processed products are high in histamines. All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate. You can have vitamin deficiency symptoms before blood levels show a deficiency. Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized. The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder. Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins. The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease. Because they are water soluble, the body can easily excrete any excess B vitamins in urine. The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks. Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable. The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily. Benfotiamine has been shown to promote intestinal healing. Remember your intestines are in a damaged, permeable state. Treat them tenderly, like you would a baby until they heal. You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts. Change your diet so your intestines can heal. I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain. These three B vitamins have analgesic properties. They relieve pain better than other otc pain relievers. -
-
Sorry, I think I got you mixed up with another poster.
-
I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
-
I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.